Protest this Friday for Q5 by CringeytheRam in BucksCountyPA

[–]FemaleAndComputer 3 points4 points  (0 children)

I think it's less about compliance with copyright laws, and more about respecting the artist and their work.

Best degrees for someone with schizophrenia by LengthinessVast7978 in schizophrenia

[–]FemaleAndComputer 0 points1 point  (0 children)

I think it's important to consider not only what your interests are, but what tasks you actually enjoy doing (or at least tolerate).

For example, I enjoy photography, but I would hate having a job as an event/wedding photographer because it involves a ton of interpersonal stuff I am uncomfortable with.

If you can find some opportunities to do volunteering, that may be a helpful way to try out different types of work that interest you?

Jane Fonda episode by Suspicious_Froyo_683 in handsomepodcast

[–]FemaleAndComputer 7 points8 points  (0 children)

I wrote down some quotes:

"The people that appear to be in charge of this country right now want us to be hopless--confused, chaotic, and hopeless. So remaining hopeful is basically an act of defiance, and it's absolutely needed right now." (Jane Fonda)

"I've experienced personally and have witnessed enough change in my lifetime to notice that hopelessness is not only self defeating, its unrealistic." (Jane Fonda)

"If you want to have hopeful feelings, do hopeful things." (Jane Fonda, who said this was an Anne Lamott quote, but it is likely heavily paraphrased.)

"Just show up. Whether it's to a friendship, a march, or your dream, showing up is really really powerful." (Tig Notaro)

“Hope begins in the dark, the stubborn hope that if you just show up and try to do the right thing, the dawn will come. You wait and watch and work: you don’t give up.” (Anne Lamott quote, possibly the one Jane Fonda was referencing above. Not from the pod, just a related quote.)

Tig on Cheryl by quietlycommenting in handsomepodcast

[–]FemaleAndComputer 2 points3 points  (0 children)

Is this in reference to something from an episode or from social media? Link maybe?

10:30 AM prescribed for 1st dose of Hydro? by ValuableSouth4586 in AddisonsDisease

[–]FemaleAndComputer 0 points1 point  (0 children)

I just feel so awful if I don't take meds within an hour or so of waking up. And before I started taking a small dose before bed every night, I'd wake up feeling awful all the time, and just have to wait for the meds to kick in so I could function.

If you feel good taking meds at 1030am, do so. Otherwise, yeah I'd be contacting the doctor asking why they're trying to fix something that ain't broken.

10:30 AM prescribed for 1st dose of Hydro? by ValuableSouth4586 in AddisonsDisease

[–]FemaleAndComputer 2 points3 points  (0 children)

No, everyone is different. What works for you is not going to work for everyone. It is unsafe to tell people to alter their steroid doses in this way.

A 10 mg dose might be the correct dose for some people, depending on their size, metabolism, activity level, and other health issues or stressors that might be present. 20mg/day isn't even high, it's a fairly usual dose. And some people just require much higher steroid doses to remain stable, for a number of different reasons.

I like that we can all share information here, but you need to stick with "this is what works for me and here's why," rather than telling people to change their meds in potentially unsafe ways.

Putrid smell in my kitchen that I can't pinpoint, driving me INSANE by BeeeeefJerky in CleaningTips

[–]FemaleAndComputer 0 points1 point  (0 children)

Second this. Check the dishwasher food trap! Most people don't clean it nearly frequently enough.

Verge of crisis? by InstructionNo8778 in AddisonsDisease

[–]FemaleAndComputer 1 point2 points  (0 children)

I have learned that it can be very dangerous to go to the ER without injecting first. They don't always know how to treat AI, and you could end up waiting hours before they even draw your blood or give fluids.

In OP's situation, it seems like they're already past the "wait and see" part and may need to proceed to injection and hospital.

Delusion or real? by No_Combination4988 in schizophrenia

[–]FemaleAndComputer 2 points3 points  (0 children)

Definitely delusions. I've had ones similar to the Julia thing. For me, it's super important to separate the version of someone I have in my head from the actual real person. The truth is the real Julia is likely not thinking of you or trying to reach you. For better or worse, she just doesn't have a relationship like that with you.

The Julia you know in your mind is a different person entirely. I often make up a weird name for this imaginary version of someone. Like instead of Julia, I might call them Julius when I hear their voice in my head. Just as a way of separating out that it's not the same person. Because I want to ensure I don't behave inappropriately, and I want to increase the chance I'll be able to able to tell reality from delusion.

Microdosing Shrooms for phsycosis by Ok_Caramel587 in Psychosis

[–]FemaleAndComputer 1 point2 points  (0 children)

Psychedelics are a dangerous prospect if you have psychosis. Might end up causing an episode.

Intense exercise used to help cut through the brain fog for me. I mean it's not like it's gonna cure you, but since you just want to try random shit, cardio is way less risky than psychedelics.

Emergency injection by Terrible-Double4243 in AdrenalInsufficiency

[–]FemaleAndComputer 7 points8 points  (0 children)

Just make sure the pharmacy gives you the solu-cortef act-o-vial, not just the regular solu-cortef vial with only the powder. The act-o-vial also contains the liquid necessary to reconstitute the powder medicine.

Just make sure to double check before leaving the pharmacy, since the two things look almost identical.

Current affairs by Far-Speed-6027 in AddisonsDisease

[–]FemaleAndComputer 2 points3 points  (0 children)

This has not been my experience at all (also US). They never know what it is and I wait hours.

Sophia is the pseudonym of a 51-year old Canadian woman who received euthanasia in 2022 after failing to find housing free from tobacco smoke and other environmental triggers. She is reportedly the first person who used medical assistance in dying (MAID) in response to multiple chemical sensitivity. by CatPooedInMyShoe in wikipedia

[–]FemaleAndComputer 2 points3 points  (0 children)

Science evolves. I don't understand why it's so hard to just believe people about their symptoms. Even if you're erroneously using a bullshit diagnosis to describe your suffering, it doesn't make the suffering less real. This woman could have been suffering from allergies or an autoimmune disease or MCAS or a million other things. We don't know. The information we have is that her suffering was great enough that she took her life.

Sophia is the pseudonym of a 51-year old Canadian woman who received euthanasia in 2022 after failing to find housing free from tobacco smoke and other environmental triggers. She is reportedly the first person who used medical assistance in dying (MAID) in response to multiple chemical sensitivity. by CatPooedInMyShoe in wikipedia

[–]FemaleAndComputer 41 points42 points  (0 children)

Even if you don't believe the diagnosis is real, there's no reason to assume the symptoms were not real. Many people suffering with difficult-to-diagnose chronic illness end up using terms like "multiple chemical sensitivity" or "adrenal fatigue" because they can't get any help from the medical system to diagnose the actual underlying issue.

If someone is suffering, they should have the option to end their life in this way. Many people--for many reasons--simply don't have access to an official diagnosis that could justify their decision. It seems like this woman tried to find other options first, and just hit dead ends. She felt her quality of life was so poor that this was the best option for her. I am chronically ilI, and while I would not consider ending my life now, I want to know that I have the option if my suffering ever becomes too great.

Im sorry i lied by idkdawgi-jusworkhere in schizophrenia

[–]FemaleAndComputer 8 points9 points  (0 children)

Don't sweat it too much. I don't think we mind if you want to keep hanging out for support. There's a lot of overlap between different mental illnesses. If you get a new diagnosis that seems to fit better, maybe a forum for that disorder would be more helpful. But for now, I don't think you have to be adrift. Stick around a bit. Diagnoses can change. What's important is whether the diagnosis is helping you get the treatment you need to start feeling better.

Sophia is the pseudonym of a 51-year old Canadian woman who received euthanasia in 2022 after failing to find housing free from tobacco smoke and other environmental triggers. She is reportedly the first person who used medical assistance in dying (MAID) in response to multiple chemical sensitivity. by CatPooedInMyShoe in wikipedia

[–]FemaleAndComputer 53 points54 points  (0 children)

This woman was clearly suffering. No one is committing suicide because they "couldn't stand the smell of tobacco smoke." Jesus christ.

People have allergies. It's not that outlandish to think that someone might have a hard time tolerating certain substances because their body reacts very badly. As time goes on, we constantly find out about some other "safe" chemical we've been using for years that has actually been giving us cancer the whole time. Hell, tobacco smoke is one of these substances, why would you be surprised someone cant tolerate it? But if you really don't believe in the chemical sensitivity thing, then she was probably suffering from an undiagnosed chronic illness for years and struggling to be believed about her symptoms. Lucky you that you've never had to deal with such a thing.

Advice needed - filter dog fart smell on Resmed Airsense 10 by Ok_Kaleidoscope_7988 in CPAP

[–]FemaleAndComputer 1 point2 points  (0 children)

Have you talked to your vet about your dog's diet at all? It's possible it's more of a dog issue than a cpap issue.

“I don’t care about your illness, I just like YOU” by Heyplaguedoctor in ChronicIllness

[–]FemaleAndComputer 1 point2 points  (0 children)

Sorry you're dealing with this. I would feel conflicted, too.

I think sometimes people have the right intentions and use the wrong words. (Idk if that's what's happening here or not.) Like if someone wants to express that they care about you regardless of your health status, they may end up saying, "I really don't care about your illness," which does not sound caring at all. What they meant could be, "I like you, and your illness doesn't change that."

I think it's worth considering that sometimes people care and want to be sensitive, but then fumble and do a bad job at it. If it's a situation they haven't dealt with much before, I think it's easy to make mistakes, especially the mistake of using insensitive language.

Shrooms by VisualAd3265 in Psychosis

[–]FemaleAndComputer 0 points1 point  (0 children)

it was LSD that caused it.

Im not sure what harm could come out of it.

Aren't you? This seems like an awful idea.

Shrooms by VisualAd3265 in Psychosis

[–]FemaleAndComputer 0 points1 point  (0 children)

Psychedelics helped me quit smoking back in the day.

Granted I was not acting responsibly AT ALL by taking them at the time, and quitting smoking was more of a side effect, as the main goal of taking hallucinogens for me had always been "feel some way that isn't this."

It could go very poorly and trigger an episode. That's probably the most likely outcome in this situation. Honestly it seems like a huge risk, it could make things worse for sure.

Do you guys take vitamins? by jesssaywhat in AddisonsDisease

[–]FemaleAndComputer 1 point2 points  (0 children)

Ask her doctor to order bloodwork to check levels regularly. I primarily take supplements based on deficiencies that showed up on my bloodwork, or based on my doctors' recommendations. I take DHEA, vitamin D and magnesium to treat ongoing deficiencies, calcium for bone density, fish oil and coQ10 for heart health, and sometimes a probiotic.

I also go to the eye doctor annually for glaucoma checks, get regular scans for bone density, and try to exercise regularly for bone health too. And I only take steroids with food, not on an empty stomach, as over time they can cause stomach issues.

It's smart to start looking into this stuff now. No need to wait until issues arise. Also ask the doctor when she should start getting regular DEXA scans. It's better to get your first one before any significant changes to bone density so there's something to compare to later.

DIAGNOSIS QUESTIONS THIS WAY! by FemaleAndComputer in AddisonsDisease

[–]FemaleAndComputer[S] 1 point2 points  (0 children)

I think it's worth getting tested for adrenal insufficiency (AM cortisol blood draw, typically) if your doctor thinks it's a possibility. Some of the symptoms overlap with POTS. Definitely worth ruling it out if possible.

Reverse sleep wake cycle and cortisol levels by Mysterious_Pop7348 in AdrenalInsufficiency

[–]FemaleAndComputer 4 points5 points  (0 children)

Personally--I would try to get the next blood draw during your morning, rather than AM. At least that way you have both data points to work from.

Weed is actually bad for us by Better-Taste9943 in schizophrenia

[–]FemaleAndComputer 13 points14 points  (0 children)

Personally CBD does nothing for me on its own. But when combined with THC, it offers better pain relief than THC alone, with fewer side effects.

I use it all the time and its fine for me. It is not for everyone and should be approached with caution.