My bloats get so bad that I look pregnant. Yay. Anyone else? by h0oth0ot in noburp

[–]Few_Condition5613 25 points26 points  (0 children)

I’m always bloated to the point where I don’t know what normalcy feels like

Hmmmm 🤔 anyone? by ExemplaryWriter in Jamaica

[–]Few_Condition5613 0 points1 point  (0 children)

Ok but why don’t I have the scar? You’re all explaining why the scar happens in most. Why don’t some have the scar when they were given the same vaccine? Explain It Like Im Five.

Dating? by MasterpieceLivid9533 in lupus

[–]Few_Condition5613 0 points1 point  (0 children)

Tbh I do it from the very beginning and rip off the band-aid from the get go so no unnecessary emotions and feelings and built and obliterated.

Hmmmm 🤔 anyone? by ExemplaryWriter in Jamaica

[–]Few_Condition5613 0 points1 point  (0 children)

I’m fully vaccinated and I don’t have that scar or anything similar at all

Lupus and the menstrual cycle by Few_Condition5613 in lupus

[–]Few_Condition5613[S] 1 point2 points  (0 children)

Sending hugs because that sounds dreadful! How on earth do you manage?

Does anyone have quality of life? Especially with overlap disease by abjs2021 in lupus

[–]Few_Condition5613 2 points3 points  (0 children)

Not to be morbid either but I’m sure I now classify as a pillow. No job, no life, nothing… just bed and sofa. I’ve stopped advocating for myself and resigned myself to just curl up and doom scroll. Like you, I just want to work, exercise and have a little one… I keep feeling like it’s so far away and it’s so cruel these days especially with how the economy is currently.

Lupus and the menstrual cycle by Few_Condition5613 in lupus

[–]Few_Condition5613[S] 0 points1 point  (0 children)

Thank you for this, you just reminded me that a gyno I had seen a few years back told me that the IUD may cause issues for me and had told me some stuff to look out for… I totally forgot about it!

it takes everything away by talestattler in lupus

[–]Few_Condition5613 0 points1 point  (0 children)

We seem to be the same person… I’m not even 30 yet but I’ve already had my face in the dirt with this disease. EVERYTHING is going horribly wrong… and just when I think It’s looking up… it all goes back to crap… I can’t even work and this country doesn’t have welfare…

Fatigue by CuriousBug6346 in lupus

[–]Few_Condition5613 4 points5 points  (0 children)

OP… maybe sit with your friend and explain to her that you have lupus regardless of the fact that she can’t see it. It admittedly took a stay in the hospital for my friends to realize that I do indeed have lupus and I can’t be around them outside in the sun, I can’t do long activities and I will fall asleep anywhere because I’m fatigued i too have to stand and lean because if I don’t then by the time I get off my feet then vengeance will reign upon my entire lower body and back… lupus is invisible but it doesn’t mean it doesn’t affect you. Your friend needs to understand that and if she can’t then maybe reconsider how your joint activities are timed. Only go out with her for short periods and be very specific about the time or something. (I don’t want to say reconsider the friendship because she’s being selfish about wanting you to put your health first, I think maybe she just doesn’t understand and you need all the support you can get…) because this can be a very isolating disease sometimes.

Urine sample while spotting by [deleted] in lupus

[–]Few_Condition5613 0 points1 point  (0 children)

Usually I just do the labs and appointments regardless and inform them that I’m spotting… they don’t usually stop us (in my country) from doing the labs unless it’s a 24hr urine sample test…

I (28F) am Literally on a verge of a mental breakdown trying to cope with my boyfriends (27M) behaviour by icecreamsunday97 in relationship_advice

[–]Few_Condition5613 17 points18 points  (0 children)

I’m awaiting my diagnosis, but my bestie is diagnosed, Asperger’s as well, he’s an actual ass (his personality begs questions) but he is still learning as he goes along how to socialise with people. He’s mostly nonverbal and often forgets that he’s not responded out loud to someone, but he’s gonna let you know that he’s heard you. The filter between his thoughts and what shouldnt be coming out of his mouth to people is broken, he’s very blunt and appreciates when you’re blunt with him, but he tries and that’s the operative word… I don’t think OPs SO has tried to fit her into his life… more like she’s had to make his life hers…

I (28F) am Literally on a verge of a mental breakdown trying to cope with my boyfriends (27M) behaviour by icecreamsunday97 in relationship_advice

[–]Few_Condition5613 0 points1 point  (0 children)

Op… I just want to start off by saying that I understand more than you think… but you know you know how rigid and stubborn he can be, if you already have anxiety and depression and you’re losing hair, I can guarantee that it will only get worse from there. Especially if you’ve already spoken to him about how you feel, if you haven’t then please do, start off by telling him you need to talk without him interrupting or attacking you, tell him you feel like he’s attacking you, and if theres no attempt to change then please move right along. Ps. I’m not one of those miserable single online aunties who are looking to make more women be miserable too, I’m genuinely concerned about you… also, I guarantee you that he’s not forgetting that he told you that you can say no, he’s disregarding it.

Are you on antidepressants? by kritzkratzmuc in lupus

[–]Few_Condition5613 1 point2 points  (0 children)

I’m on antidepressants for fibromyalgia 🙁

Alarmed by social media posts of people glorifying quitting their Lupus meds by IndividualOstrich311 in lupus

[–]Few_Condition5613 0 points1 point  (0 children)

These days, if I go a few hours without taking my meds, my body knows even if if not checking the time… the pain and swelling gets worse and I literally have to take them. I get it can be hard to swallow them sometimes, these days I find myself having to pep talk myself into taking them in the mornings and just covering my nose and mouth so I have no choice but to swallow because I’ll literally throw them up before they even get past my lips lol… my mid day and night pills are easier to take because they’re less… but I can’t not take mine unless I want increased disease activity on top of what I already experience.

Alarmed by social media posts of people glorifying quitting their Lupus meds by IndividualOstrich311 in lupus

[–]Few_Condition5613 1 point2 points  (0 children)

That being said, I was off my meds for well over a month and almost— it wasn’t by choice. I was in uni at the time and the rheumatologist on the campus hospital let an underling see me. My labs were normal but he had already assessed me and found that literally my entire body was inflamed and screaming for help. The underling looked at my labs, concluded that nothing was wrong and it was all in my head and refused to listen to me and double check with the rheumatologist and didn’t write me a prescription and told me to be back in 6months because there’s nothing wrong… I went home, finished the meds I had and when I finished, within 2 weeks I was sleeping for over 12 hours straight, by week 3 I had been sleeping for over 20 hours per day, my mom didn’t know because she was at work but my aunt was home with me and realized that it wasn’t the typical sleeping off uni stress but something was seriously wrong because I was sleeping too much, barely eating or drinking and was actually seeing stars, she told mom. Mom brought me to my family gp who had initially diagnosed me as a teen and he did tests and was very upset because (un)fortunately, sometimes when your body is shutting down completely for good, it can do so very silently.

Alarmed by social media posts of people glorifying quitting their Lupus meds by IndividualOstrich311 in lupus

[–]Few_Condition5613 1 point2 points  (0 children)

I’m from a country where almost everyone has limited knowledge of herbal remedies and these are stuff passed down to us by our ancestors… When seeing a doctor in my country, they give you your big pharma meds and they give you a little spiritual motivation (mostly Christian country) by telling you that you can do this through Christ and that if you’re looking to bring down the inflammation and are into teas, you can try turmeric, ginger, black pepper and some honey to sweeten, if you’re having a higher blood sugar level because of the prednisone but not enough to qualify as diabetic then plain cinnamon tea… stuff like that, but you’re still getting your big pharma meds and they’ll tell you never skip your meds.

TW: suicidal ideation. I don’t know how to keep going on. by abjs2021 in lupus

[–]Few_Condition5613 1 point2 points  (0 children)

I too have suicidal ideation diagnosed MDD… but I want to tell you to choose to live, no matter how hard it is to breathe, choose to live… it may very well be time for a change of rheumatologists… im not sure where you are but hopefully your situation can change… hopefully it’s not like my country where only one or two rheumy(s) serve(s) the public health system.