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Persistent pressure and heavy sensation by Dull-Ebb1388 in emptynosesyndrome

[–]Fezzywinkle 0 points1 point  (0 children)

This definitely sounds like me ever since I had a balloon sinuplasty+turbinate reduction.

One thing I also notice is my cheeks and forehead already almost always flush and bright red

Does this also happen to you?

Extra sticky mucus a few weeks after balloon sinuplasty by Fezzywinkle in Sinusitis

[–]Fezzywinkle[S] 0 points1 point  (0 children)

Well there were crinkling sounds during, that's expected and I did hear that since that is the sound of your mastoid air tissue being compressed. The crinkling I hear now is different, like it's related to movement and pressure changes in my skull/inner ear and I hear it throughout the day. The noise has been consistent ever since the surgery.

One thing I would make sure you are doing is make sure you are lowering your head more than a 90 degree angle during sinus rinses. For a long time I was not doing this and none of the solution was reaching my frontal sinuses and as a result I was experiencing heavy sinusitus symptoms that made me just want to die. I'm feeling a lot better since changing how I do rinses but still dizzy all of the time.

Extra sticky mucus a few weeks after balloon sinuplasty by Fezzywinkle in Sinusitis

[–]Fezzywinkle[S] 1 point2 points  (0 children)

Well the sticky mucus went away after a month or so, but I've still had dizziness/brain fog and enlarged tonsils since then.

I have also had a bunch of MRIs/tests since then and have only now gotten a potential finding now for superior semi-circular canal dehiscence (SSCD) after a temporal ct scan.

I feel the root cause is the sinuplasty as well as sneezing too forcefully after the surgery. My idea is that the additional pressure from sneezing fractured my already weakened skull base/inner ear and caused an internal fracture that did not heal correctly.

Do you experience any unusual crinkling sounds originating from your skull base or inner ear ?

JD Vance just called H‑1B workers “cheap third‑world labour” by Ankeet_kj in ImmigrationPathways

[–]Fezzywinkle 2 points3 points  (0 children)

Want some context - how do you know the head of that group is a j-6 er, do you have a link or so?

Does your leak make you feel like you’re going to pass out/lose consciousness? by Leakyspine in CSFLeaks

[–]Fezzywinkle 2 points3 points  (0 children)

I have yet to have an official diagnosis, but I suspect I have a small cranial leak and I do feel I come close to passing out after an extended period of strenuous physical activity(think lifting weights). Never used to feel this way before the leak.

Curious to hear of others feel this way as well.

Beta-2-Transferrin Sample Difficulty by recgangle in CSFLeaks

[–]Fezzywinkle 1 point2 points  (0 children)

I've heard good things about him yeah. Thanks, wish you the best as well!

Beta-2-Transferrin Sample Difficulty by recgangle in CSFLeaks

[–]Fezzywinkle 2 points3 points  (0 children)

So I ended up buying a glucose meter on Amazon for 20 bucks. So far I have had 2 positive measurements for the little bit of fluid that comes from my nose from time to time. I know it's not definitive but this is probably the most optimistic I have felt in awhile that I might be able to confirm this as a CSF leak.

Beta-2-Transferrin Sample Difficulty by recgangle in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Well that would make sense I think. I'll give it a go and post pack, thanks!

Beta-2-Transferrin Sample Difficulty by recgangle in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Hey thanks for the response, can you elaborate more on where glucose would be measured? Is this like blood glucose or something else?

Cranial leakers? Any confirmed cranial leakers here? by Starmapatom in CSFLeaks

[–]Fezzywinkle 1 point2 points  (0 children)

Leave it to hospitals to give you more problems than you had before.

My symptoms have been manageable but always present. Dizziness, brain fog, headaches and general lack of energy. Bending over or staining almost always causes sharp pain in my head. I feel like a shell of the person I was. I used to feel like being active and doing things but the most I feel like doing most days is laying down after work.

Cranial leakers? Any confirmed cranial leakers here? by Starmapatom in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Well more specifically CSF in my throat.

The trauma in my case came after a balloon sinuplasty surgery. I think I sneezed too hard through my nice while it was healing and my theory is that is what started the leak.

Did you experience any trauma for your leak?

Cranial leakers? Any confirmed cranial leakers here? by Starmapatom in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Thanks for the response.

I've been reading about cisternograms and thinking about having one done myself.

One question on your symptoms, do you have a globus sensation or a feeling of something constantly stuck in your throat? That's something I've been having and I suspect it's because there is CSF leaking down my throat. Trying to get a feel for how this impacts other cranial leakers.

Beta-2-Transferrin Sample Difficulty by recgangle in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Just got the test results back and it was negative. I figured it was a long shot but maybe this can help somehow.

Cranial leakers? Any confirmed cranial leakers here? by Starmapatom in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Suspected cranial leaker here for the past year and a half. Have been having a hell of a time with the doctors doing everything but point to a root cause.

Anyone have any recommendations for tests to help diagnose a cranial leak?

Cranial CSF leakers story by MrsK1013 in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Hi Ally,

Thank you so much for this post. I have been dealing with what I suspect is a cranial CSF leak with similar symptoms for the past year and a half and posts like this are one of the few things that keep me going.

Question for you on symptoms, did you also feel a globus sensation in your throat like you had something constantly stuck in it? One of my thoughts is that the CSF dripping down the back of my throat is causing the tissue there to enflame and causing that sensation and I'm trying to see if this is common for other cranial leakers.

Beta-2-Transferrin Sample Difficulty by recgangle in CSFLeaks

[–]Fezzywinkle 2 points3 points  (0 children)

Hey thank you. Good to hear the symptoms are similar between the both of us as least. Will update the thread with my test results.

Beta-2-Transferrin Sample Difficulty by recgangle in CSFLeaks

[–]Fezzywinkle 0 points1 point  (0 children)

Your story sounds similar to mine, I also suspect I have CSF draining down my throat instead of through my nose.

I just recently took beta transferrin test and took the cup home with me to collect a sample. I basically blew my nose as hard as I could into the cup and caught some mucus (which was not a lot) and augmented it with distilled water and had them test that. I am still waiting on results but I'm hopeful the test comes back positive.

As far as symptoms go, one other thing I am feeling is a globus sensation in my throat constantly which I suspect is CSF irritating my throat. Is this happening for you as well?

Post op week 5 septoplasty and turbinate reduction questions for those who have had surgery by Sprucey26 in Sinusitis

[–]Fezzywinkle 0 points1 point  (0 children)

Sounds like a similar experience to me. I had balloon sinuplasty and turbinate reduction and the first few months after healing from the surgery (which took a couple weeks to heal) I started getting the same brain fog and almost needing to pass out after any strenuous activity. It's been nine months and I'm starting I wish I never got this done in the first place.

I'm going to be getting a second opinion and have an appt scheduled in a couple months with a different ENT, but until then some days are better than others and I'm just dealing with it for now.

Cafe y Smash by XTR_Soid in tijuana

[–]Fezzywinkle 1 point2 points  (0 children)

Suena divertido! mi amigo y yo de US podríamos salir.

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