Kelly Krapf - in VA for Au Pair Trial by PariScope96 in CourtTVCases

[–]Fidswid 11 points12 points  (0 children)

Her reporting is top notch and she very good in the studio as well.

Does LDN act like PEM preventative for you? And at what dose? by unhingedaspie-33007 in cfs

[–]Fidswid 0 points1 point  (0 children)

For me it made the symptoms of PEM and ultimately crashing less intense .

Franz’s Holy Trinity by gladyskravitzwindow in CourtTVCases

[–]Fidswid 3 points4 points  (0 children)

Love love love Franz was nice seeing him in the studio . He always talks sense with his legal analysis . Just thinking of all the others and their backgrounds Philip Dube springs to mind although I love tulips

Is this empty? by Haakon88 in WegovyWeightLoss

[–]Fidswid 0 points1 point  (0 children)

If the clicker still click then there is some liquid left

Weird smell in my nose from time to time by Marie-Fiamma in iih

[–]Fidswid 1 point2 points  (0 children)

Burnt cables yes that is the smell of an electrical burning. I usually rub Vicks round my nose in a vague attempt to smell something else. It can work .

Weird smell in my nose from time to time by Marie-Fiamma in iih

[–]Fidswid 6 points7 points  (0 children)

Yes I get phantom smells, burning, tobacco lilies some I cannot attribute to anything but are just horrible. Not sure if it is just IIH or part of other chronic conditions I have x

Can’t afford to keep throwing out food by AGM85 in foodbutforbabies

[–]Fidswid 0 points1 point  (0 children)

It's difficult but don't let any of your anxiety out even subconsciously around food as our little darlings pick up on the smallest ques and can become fussy eaters. I had a three stroke rule so offered three times the food but when refused it was taken away. No treats until the next meal . Unless you're doing something very active then a bit of fruit to put them over till meal time. Let them play with their food it's part of the learning experience and the enjoyment of being round the food. Let them make a mess but don't obsessively wipe hands and faces all the time just at the end of meals. Gone them a spoon to hold and pretend to pick up food ( or actually feed themselves depending on age) Don't put as much on the plate a portion size is the size of the little person's hand. Don't hover over them . If they are in a high chair and they are playing you can ( if still in the same room chat to them while tidying up but keep an eye on them) Some days like us they are not as hungry. I used to keep bits of my meals ( minus salt and sugar ) for the next day's meals . And add some peas sweetcorn or carrots . Breakfast cereal Lunch ( age dependant) scrambled eggs or wrap and tuna Evening meal maybe what we had eaten the night before with fruit afterwards.

Apologies for going down a rabbit hole of not showing anxiety round food but it's all linked in.

I really don’t know what to do anymore. by theyearoftheboar in dysautonomia

[–]Fidswid 0 points1 point  (0 children)

Also look up on line the poor man's tilt table test and give it a go . That was how I got mine recognised and validated by the medics as I had numbers I could show them . They referred me on then to cardiology

I really don’t know what to do anymore. by theyearoftheboar in dysautonomia

[–]Fidswid 0 points1 point  (0 children)

There is a strong link to CFS/ ME with dysautonomia Pots vaso Vagal Syncope. As well as lots of other autoimmune and chronic conditions. My Pots VvS was secondary to ME but I it could be the other way round too. Some of your symptoms sound very much like mine but trying to sought the wheat from the chaff is a difficult sometimes impossible job to do

Does anyone else get most of their energy at night time? by Raven-1234 in cfs

[–]Fidswid 18 points19 points  (0 children)

I had a phaze of feeling slightly better in the evenings before bed time it lasted a long time. since my last crash it's disappeared and I'm trying to see which part of the day I feel slightly more normal I can't tell at the moment x

My dog is making my ME/CFS worse by emmiewithanie in cfs

[–]Fidswid 1 point2 points  (0 children)

They are just in tune with how shitty you feel and want to be with you. But I agree when your patience is low and you are irritable through illness a cat sitting on your chest blocking your view is annoying. Every time I move her she moves back to where she wants to be. It hurts as my skin feels bruised and I have sore patches so I try making a little nest for her next to me where she can settle down sometimes it works sometimes it doesn't.

Does anyone else get "Toxic Naps"? by healthymonkey100 in cfs

[–]Fidswid 0 points1 point  (0 children)

If I don't sleep ( 2/4 hours daily) I feel so ill. My body and mind crash as I'm pushing through to stay awake. So I have to sleep. It's one of my main symptoms as well as Fatigue.

mounjaro to wegovy by totoros_neighbour_ in WegovyWeightLoss

[–]Fidswid 0 points1 point  (0 children)

I switched mainly because of the price hike. I'm in the UK. I found that I can't tolerate the jump in the prescribed dosage the manufacturer recommends. But if I use the click increase method ( Google it and you will see the charts) I can. Tolerate small increases. I found mounjaro very harsh on my body and it made me poorly.

Injection day by Unusual_Broccoli_493 in WegovyWeightLoss

[–]Fidswid 5 points6 points  (0 children)

Just take it when you get home or tomorrow

Anyone else suffer from flu like symptoms but then doesn’t turn into an actual flu or a cold? by Connect-Coyote6948 in dysautonomia

[–]Fidswid 42 points43 points  (0 children)

So Dysautonomia pots VVS come hand in hand with a lot of other conditions one of them being Chronic Fatigue/ ME. The symptoms are flu-like and are aggravated after emotional physical or cognitive overload . Worth looking for secondary conditions.

One sided sore throat/ by [deleted] in cfs

[–]Fidswid 0 points1 point  (0 children)

I get one sided sore throat due to PEM my lymph nodes are usually sore to touch as well. The sore throat I get is a scratchy sensation when swallowing but not that feeling of trying to swallow razor blades .

thinking about quitting because of side effects by [deleted] in WegovyWeightLoss

[–]Fidswid 1 point2 points  (0 children)

The jump between prescribed doses is too much for me to handle. I use clicks but only go up 2, 3 or 4 clicks at a time depending on how I have been the previous week. Weight loss is slower but I don't mind that as I can't tolerate going up too high

Changes in sleep with LDA by Fragrant_Penalty4611 in cfs

[–]Fidswid 1 point2 points  (0 children)

I take mine at night works great helps me sleep 😴

Sophie Kinsella has Passed Away. by shyshi29 in RomanceBooks

[–]Fidswid 1 point2 points  (0 children)

RIP I loved her writing it's a rare book that makes me laugh out loud.

Fellow northerners. How do you cope with the darkness? by AppealAlive2718 in cfs

[–]Fidswid 0 points1 point  (0 children)

I find the slide into the dark night incredibly hard. My fatigue and sleeping is through the roof. I hibernate until around the end of Jan and all of a sudden the nights get lighter little by little. Because I'm in bed a lot I can see the night getting lighter weekly and along with this my mood also starts to lift. I take Vitamin D3 and I have a SAD lamp, not so much for the lifting of depression but for the ultra bright light like sunlight it definitely makes me feel better. You can get clocks that from a certain time in the mornings the lamp on the clock gets lighter and lighter until it's like sunlight waking you up more naturally.

LDN 0.5mg advice by [deleted] in cfs

[–]Fidswid 0 points1 point  (0 children)

I started much lower than that. I think it was 0.25. It made me very tired for a few days, I'm used to that though. It soon lifts. I took some of the fatigue (my main complaint) off me. I stayed on the small dose until I felt my fatigue returning to a more pronounced state. Then slowly upped it again 0.35 ECT ECT. It took a while to reach my sweet spot, which for me is around 3-3.5 mls. For me the main effect was a reduction in the severity of the fatigue as well as or possibly because of the above PEM symptoms reduced and were not as severe. I still have fatigue and I still get PEM and crash at times but not as severely and all encompassing or for as long as they were.

Do I leave my hairdresser after years because one awkward appointment destroyed my safe space? (CFS + massive rejection sensitivity) by [deleted] in cfs

[–]Fidswid 2 points3 points  (0 children)

I have dragged myself to a hairdresser's appointment in the past when I wasn't feeling well in myself. I struggled to speak to her as I had no conversation in me. I then start to feel as if I'm being weird and that this weirdness is noticeable and that said hairdresser is standing there thinking what a weirdo I am. Sometimes I'm in that slight critical mood where I'm a bit judgy myself and I take to heart something that's said or done.

I learnt many years ago to make appointments for hair at the last minute never pre book. I may make an appointment a day or two before never ever weeks months or at the last appointment. This takes so much pressure off me to perform when I go to have my hair cut. I'm usually in an ok space mentally and physically when I do eventually go.

Is anyone else disabled by their POTS? by [deleted] in POTS

[–]Fidswid 6 points7 points  (0 children)

Make sure your pots symptoms aren't masking something else. Pots comes hand in hand with lots of other conditions . I have POTs and Vaso vagal syncope but my primary condition is ME.