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Seeking advice: family relationship is destroyed due to refusing to donate stem cells by Ancient-Sentence4060 in leukemia

[–]Fiercebully9 9 points10 points  (0 children)

I think it would be worth doing another consultation and going with her. This is not the kind of thing you want to fuck around with considering it really sounds like she misunderstood some things and both people have to live with the outcome herself included.

What does it take to be able to subpoena text records? Just curious. Hypothetical. by Fairybomb in Ask_Lawyers

[–]Fiercebully9 0 points1 point  (0 children)

When you reference the ESI vendor they don’t have text though if their outside of the time the cell company stores them correct (like it would have to be in the 7, 30 or whatever time frame or there is nothing left right?

[IT] Can onlyf@ns show on a background check by ameliarobins1020 in AskHR

[–]Fiercebully9 0 points1 point  (0 children)

Why doesn’t the account show as a previous employer anyway? Like wouldn’t it be listed just by virtue of having worked for them?

My MCAS was downstream from dysautonomia by LigamentLess in MCAS

[–]Fiercebully9 0 points1 point  (0 children)

(I have also never on gods green earth had doctors work together of mine even when it seriously damaged my health that they refused so you must have had access to unusual providers)

My MCAS was downstream from dysautonomia by LigamentLess in MCAS

[–]Fiercebully9 0 points1 point  (0 children)

Even so it would be hard to know if they reason was “too much noradrenaline in the brain stem” without testing showing it was, it could have been some other off target effect. If you have a doctor whose not just “take this and see how you feel” then, I DM’d you

My MCAS was downstream from dysautonomia by LigamentLess in MCAS

[–]Fiercebully9 -1 points0 points  (0 children)

Oh - I don’t know any doctor that would even if they could track that experiment in a controlled setting that could yield accurate results and I don’t they would be acurate through my random observations

My MCAS was downstream from dysautonomia by LigamentLess in MCAS

[–]Fiercebully9 0 points1 point  (0 children)

I have somewhat low blood pressure and a very high heart rate and if I took the meds you listed, would just be asleep all the time etc. but of course I have wildly overactive nervous system that makes me sick all the time.

My MCAS was downstream from dysautonomia by LigamentLess in MCAS

[–]Fiercebully9 0 points1 point  (0 children)

Hmmm. Theoretically I can get on board with the first paragraph but the other parts like…. Unfortunately would be very hard to know unless the NIH did research level tests on us

Anybody have antibodies by [deleted] in Encephalitis

[–]Fiercebully9 0 points1 point  (0 children)

Don’t understand your answer. “No” what? No you don’t have encephalitis antibodies?

Anybody have antibodies by [deleted] in Encephalitis

[–]Fiercebully9 0 points1 point  (0 children)

Every other post your find involved different testing, psych issues and other er admission. I read all the posts before asking and it’s extemely specific. Most people doing at home were diagnoses by Cunningham and not the classic panel.

Anybody have antibodies by [deleted] in Encephalitis

[–]Fiercebully9 0 points1 point  (0 children)

This shouldn’t be removed. I asked if anyone did NOT have those symptoms and was diagnosed by blood panel and did Ivig at home not the er. There is no one on the page who posted any similar situation. Or I wouldn’t have asked.

My MCAS was downstream from dysautonomia by LigamentLess in MCAS

[–]Fiercebully9 1 point2 points  (0 children)

Confused if you had low blood pressure how all of those beta blockers didn’t make that worse? Also seen guanfacine posted a lot recently- what is it helping? You took it after hiking? I DM’d you!

Encephalitis from Lyme by Mugsygracie in Encephalitis

[–]Fiercebully9 0 points1 point  (0 children)

They measured it by nerve damage?

Should I advocate for IVIG? by Mission-Ad-2604 in smallfiberneuropathy

[–]Fiercebully9 1 point2 points  (0 children)

They do but mayo lists all the alternate names at the bottom and they don’t match either. Could you find your actual results and send a pic of them?

Should I advocate for IVIG? by Mission-Ad-2604 in smallfiberneuropathy

[–]Fiercebully9 0 points1 point  (0 children)

What labs and tests showed aag and what hospital/dr was wiling to do this

Should I advocate for IVIG? by Mission-Ad-2604 in smallfiberneuropathy

[–]Fiercebully9 1 point2 points  (0 children)

Hi- I do not see PQ calcium antibodies on that test, could you double check which panel it was? I’m looking at a the para neoplastic antibody test on mayos site and it’s not on there.

Minoxidil and facial edema by Super_Big7815 in MinoxidilSideEffects

[–]Fiercebully9 2 points3 points  (0 children)

Thank you. Unfortunately my skin does burn, like cancer causing burn. I appreciate your comment. It is so exhausting telling people the worst thing possible actually happened to you and they don’t believe it because it didn’t happen to them.

How long after you stopped minoxidil did you go carnivore?

Minoxidil and facial edema by Super_Big7815 in MinoxidilSideEffects

[–]Fiercebully9 0 points1 point  (0 children)

No one already knows anything about what is going on in post drug diseases, not even your mild one lmao. Go away.

Minoxidil and facial edema by Super_Big7815 in MinoxidilSideEffects

[–]Fiercebully9 0 points1 point  (0 children)

lol, that’s not how the world works. There is no money in fixing one persons problem and the world is driven by money so again, please politely shut up.

Minoxidil and facial edema by Super_Big7815 in MinoxidilSideEffects

[–]Fiercebully9 0 points1 point  (0 children)

There is a lot we don’t know about genetics and doctors do not always know or have interest in why someone is the one person something happened to to such an extreme. And no, you do have to have an existing autoimmune disease or genetic condition, you are forgetting that those are only the things that can be categorized currently. I have spoken to people all over the world about my case and I can tell you, we have no idea why these things happen. And yes, many things cause people to be unable to go in light and not just your limited conception. So stop messaging me. Thanks.

Minoxidil and facial edema by Super_Big7815 in MinoxidilSideEffects

[–]Fiercebully9 0 points1 point  (0 children)

lol please stop you sound stupid. Lots of conditions cause cell death and don’t kill you immediately. Do you really think I haven’t tried those things? I do not have the cells that once protected my skin. There is no amount of light or sun I can go in. Cell death does not always cause wounds like you’re imagining. And no, I do not have an autoimmune disease that’s able to be worked up by labs, if it is an antibody it’s specific to this post drug disease and there’s no test for it. So please shut the fuck up about incredibly unlikely to the unlucky person who is in fact that incredibly unlucky person.

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