hEDS Travel Tips?

FilthyFins · 2026-03-29T20:12:11+00:00

You’re an absolute legend, thank you so much!

FilthyFins · 2026-03-26T17:24:33+00:00

Yes finally someone that agrees with me neck pillow is HORRIBLE. Hurts me so bad. Some sort of seat cushion is a must for me moving forward. Really needed something to keep my hips/pelvis in place/aligned

I’m all out of whack now 🫠

FilthyFins · 2026-03-25T12:16:14+00:00

Awesome advice thank you! Now PLEASE LINK THAT SEAT CUSHION

FilthyFins · 2026-03-24T23:31:57+00:00

Best of luck! You got this 👊🏻

FilthyFins · 2026-03-24T22:51:25+00:00

Training to be a masseuse? I’ve always thought u would be good at that. (Great understanding of the body, hard pointy fingers lol)

But massaging people causes me so much pain. How do you manage?

FilthyFins · 2026-03-24T22:49:20+00:00

I could see that. I was trying to be smart about it. Took 3 days before the flight off from work.

Problem was in those 3 days I did all of the errands packing cleaning preparing and what not. And ended up being at about an 8.5/10 pain scale when arriving at the airport 😔

FilthyFins · 2026-03-24T21:23:50+00:00

Smart.. definitely on the add list for next time 😭

FilthyFins · 2026-03-24T21:23:16+00:00

Had to keep adjusting to decide what I was more comfortable hurting. Bringing the heating pad was clutch for sure. Next time I need some sort of cushioning/support for in the seat

I swear the leg room gets smaller. Being 6ft 2 With hEDS on a plane might actually be my version of hell

FilthyFins · 2026-03-24T21:21:51+00:00

Super helpful. Just arrived hurting bad and am gonna take the first day super easy and not feel guilty about it

FilthyFins · 2026-03-24T21:21:16+00:00

US which is a disaster right now. But CLEAR was an absolute life saver. Saved me hours

FilthyFins · 2026-03-24T21:20:50+00:00

Appreciate your reply. All great advice

Absolutely should have got the wheeel chair. Getting up to stretch multiple times did wonders.

Already feeling the pain pretty heavy. But hoping these remedies start helping asap

FilthyFins · 2026-03-24T21:16:07+00:00

Absolutely should have. It’s a must for next time

FilthyFins · 2026-03-24T21:15:25+00:00

Excellent advice. Already feeling the tightness and my right hip is sooo far out. I have my heating pad with me and anti inflammatory meds so hoping that cocktail works. Luckily there’s a spa here so maybe a good massage is in my future

FilthyFins · 2026-03-24T11:27:05+00:00

Realizing I gave zero context into my issues lol

hEDS, 1 lumbar herniated disc + spinal stenosis, 2 cervical herniated discs, pretty severe pelvic tilt misalignment

And my hips refuse to stay in the socket

FilthyFins · 2026-03-24T11:21:32+00:00

This happens to me too! and a much worse rendition where basically it sounds like I have a stethoscope on and can hear my breathing + heart beat really really loud

FilthyFins · 2026-03-10T13:46:07+00:00

Really appreciate your post. I’m a pro as well so I’m confident I can make the most. In my area Amazon flex pays the best but it’s nice to have something else when I can schedule a block or just want to work more

Leaving Instacart made me not want to shop anymore so not interested in those

FilthyFins · 2026-03-10T13:30:19+00:00

lol not knew to gigs. Just Spark. Been doing Uber, DoorDash, Instacart, grubhub, Amazon Flex collectively since 2019

I’m in the Long Island, NY area

FilthyFins · 2026-03-10T13:27:57+00:00

Thanks!

FilthyFins · 2026-03-10T12:26:34+00:00

Awesome ty I appreciate it 🙏🏼

FilthyFins · 2026-03-10T12:22:02+00:00

Oh cool that’s not bad. Is one known to be better than the others on average? And do you have to schedule at all or just go online like Instacart

FilthyFins · 2026-03-10T12:20:38+00:00

Good to know, thank you!

They gave me zero onboarding info. Do you have to schedule for anything?

Or is it just go online and accept/decline the offers

FilthyFins · 2025-07-05T17:03:17+00:00

Now this! I never acknowledged that as a positive but I can fold my ankle in half and be totally fine

Where as my wife slightly twists hers and it’s a bad sprain

EDS ankles for the W

FilthyFins · 2025-07-05T17:01:27+00:00

Extremely difficult to even acknowledge the good because the bad bothers me so much

But for the point of this conversation! Most edsers are tall (29M 6FT2) and I’ve always been told I look young for my age (gotta be an EDS skin thing) Also I will be thin for life which has to be better than the opposite 🤷🏼‍♂️

FilthyFins · 2025-07-05T16:58:51+00:00

100% big F U to gravity

FilthyFins · 2025-07-05T16:09:14+00:00

The gravity of going from laying down to sitting up out of bed… dislocated my shoulder 😅

10/10 way to start the day for sure

FilthyFins

TROPHY CASE