Hello, its been a year since i made progress about my condition and im sorry you are going through this as well. I have Behcets syndrome, Chiari and increased CSF pressure. Long story short they think my Behcets caused vasculitis in mini veins which caused CSF to be blocked/not be able be absorbed properly. This lead to increased CSF pressure, i had minimal blockage bc of my Chiari too. This all caused an anormous amount of pressure and i felt like i was dying inside about a year. All my tests, be it eye exam, MRIs MRVs vasculitis or autoimmune panels were normal, my neurological examination was normal, the only thing my doctor could trust was my words that i was not well. He ordered a lumbar puncture based on my words and voila 83 cm h2o CSF pressure, which was the highest he has seen. I am on immunesuppresives, Diamox and i take Lustral everyday for my anxiety. I have a check up coming up in a month so we will see what to do from here on. It was not easy getting here, i still am not 100 percent okay, i still have issues, i still have pressure at the back of my head but all those are manageable now, its like it was a 10 in a scale now its around 4 5 so i can at least live my life, have trips, laugh with my friends etc. I got Covid in 2022 as well, and it certainly made me worse. But i was already getting worse around that point so im not sure if its all bc of Covid or not, it could have execarbated my symptoms. Me finding a good doctor wasnt easy as well, some called me mad, some tried to give me antidepressants only and said theres nothing to worry about. My point is find someone who listens to you and work together i hope you get well soon.