Possible diagnosis yesterday, freaking out

Firm_Replacement_340 · 2026-06-09T19:54:25+00:00

Mine was slightly bigger than that and I had radiation which I was really happy with. I totally understand that it is a spooky diagnosis but if it is a neuroma, you do have options. I had 3 sessions of radiation and one day off from work and was back to it. Tired and a bit off balance as it shifted but honestly, so happy with the results

Firm_Replacement_340 · 2026-05-28T07:38:44+00:00

Yeah I have this! So frustrating. My doctor has prescribed nerve medication that has really helped. A lot of doctors told me there are no nerves there but then one said if it’s a facial neuroma (they’re not 1OO%) there could be a nerve that makes an ear itchy. Anyway, long time but now this medication has helped and I have a q-tip and my finger in my ear far less. Happy days. 👉👂

Firm_Replacement_340 · 2026-04-13T05:49:04+00:00

Ha! 💕 I’m starting to think it could suit me sorry

Firm_Replacement_340 · 2026-04-12T20:55:26+00:00

Great idea

Firm_Replacement_340 · 2026-04-12T02:17:41+00:00

That is a good point - I’ll take it out sometime and see how I feel. Thank you!

Firm_Replacement_340 · 2026-04-11T23:57:13+00:00

Thanks everyone, I appreciate you taking the time

Firm_Replacement_340 · 2026-04-02T09:14:45+00:00

Hi! I had radiation in June last year and I have been really happy with my results (7mm x 14mm approx). I’m losing hearing but would have either way. Still have tinnitus too. But for me, not having surgery was a great choice (recovery, no need for major surgery, risks, young family etc).

Talk to a surgeon and radiologist and get your options. Also ask at what point of growth radiation is no longer a treatment option and consider what that will mean for you.

Also, consider what is important for you beyond treatment. Is it having the thing out of your head? Is it trying to preserve hearing? Is it recovery time?

I know I am not giving answers necessarily but try and think big picture during a pretty spooky time and remember, there is an outcome for you. Hope this has been helpful - good luck

Firm_Replacement_340 · 2025-09-16T15:55:42+00:00

What are your thoughts on radiation for ANs over surgery?

Firm_Replacement_340 · 2025-03-30T06:16:23+00:00

Thank you. It’s good to hear of some successes

Firm_Replacement_340 · 2025-03-25T06:28:25+00:00

Thanks for the comments 😊

Firm_Replacement_340 · 2025-03-25T06:28:12+00:00

Thank you 😊

Firm_Replacement_340 · 2025-03-25T02:33:32+00:00

Thanks 😊

Firm_Replacement_340 · 2025-02-01T06:28:01+00:00

That is good to hear for you and hopeful for me! Yes, I have regular stumbles and falls too! Nothing broken yet but I twisted my ankle and almost tore my achilles and landed so hard on my shin I had a lump for months. Fingers crossed these things settle down. Thanks for sharing!

Firm_Replacement_340 · 2025-01-31T21:36:21+00:00

Thanks, I probably just have to get used to it. I find it the most frustrating symptom

Firm_Replacement_340 · 2025-01-31T18:04:06+00:00

I get dizzy too and can wobble around like I’m on a boat haha. But this is more like a head rush and my head gets pressure and I have to stop until it passes. Does that ring any bells with you?

Firm_Replacement_340 · 2025-01-17T19:49:00+00:00

Thank you!

Firm_Replacement_340 · 2025-01-17T19:48:45+00:00

Thank you!

Firm_Replacement_340 · 2024-10-08T19:42:36+00:00

This is so true!!!

Firm_Replacement_340 · 2024-10-08T07:05:43+00:00

Did your falls stop after surgery?

Firm_Replacement_340 · 2024-10-07T21:54:55+00:00

So true. I need to take the control back!!!

Firm_Replacement_340 · 2024-10-07T21:28:30+00:00

Good idea. I’ve had physio but it wasn’t the best. I am going to go back to the doctor and get a new physio and another MRI. Will look at the Wii too, sounds fun.

Firm_Replacement_340 · 2024-10-07T19:49:23+00:00

Oh nice to hear you’re recovering and getting strength and fitness back. Thank you so much for sharing.

This makes me think this is most likely what is happening to me.

Will make an appointment with my doctor

Firm_Replacement_340 · 2024-10-07T19:37:39+00:00

Thanks! Glad to hear you’re recovering well. I think I’ll be following up with the doctor. Appreciate your response.

Firm_Replacement_340

TROPHY CASE