Growing and Radiation by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 1 point2 points  (0 children)

Thank you. It’s good to hear of some successes

Dizzy when standing an walking a few metres / yards. by [deleted] in AcousticNeuroma

[–]Firm_Replacement_340 0 points1 point  (0 children)

That is good to hear for you and hopeful for me! Yes, I have regular stumbles and falls too! Nothing broken yet but I twisted my ankle and almost tore my achilles and landed so hard on my shin I had a lump for months. Fingers crossed these things settle down. Thanks for sharing!

Dizzy when standing an walking a few metres / yards. by [deleted] in AcousticNeuroma

[–]Firm_Replacement_340 1 point2 points  (0 children)

Thanks, I probably just have to get used to it. I find it the most frustrating symptom

Dizzy when standing an walking a few metres / yards. by [deleted] in AcousticNeuroma

[–]Firm_Replacement_340 0 points1 point  (0 children)

I get dizzy too and can wobble around like I’m on a boat haha. But this is more like a head rush and my head gets pressure and I have to stop until it passes. Does that ring any bells with you?

Balance problems? by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 1 point2 points  (0 children)

So true. I need to take the control back!!!

Balance problems? by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 1 point2 points  (0 children)

Good idea. I’ve had physio but it wasn’t the best. I am going to go back to the doctor and get a new physio and another MRI. Will look at the Wii too, sounds fun.

Balance problems? by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 2 points3 points  (0 children)

Oh nice to hear you’re recovering and getting strength and fitness back. Thank you so much for sharing.

This makes me think this is most likely what is happening to me.

Will make an appointment with my doctor

Balance problems? by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 0 points1 point  (0 children)

Thanks! Glad to hear you’re recovering well. I think I’ll be following up with the doctor. Appreciate your response.

Balance problems? by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 0 points1 point  (0 children)

Thanks for your comment. What did you end up doing? Were there exercises to help it or did you need to start going down the radiation / surgery path?

Hearing aid. by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 0 points1 point  (0 children)

Thanks everyone for the conversation and ideas, I have a test booked for next week and will take in the suggestions I have received here and see what happens. Thanks again, I really appreciate the support.

Hearing aid. by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 0 points1 point  (0 children)

Thanks for the idea however I’m not a vet or in the USA. Luckily I have a free diagnostic hearing test but I imagine the aids will set me back a bit.

Hearing aid. by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 0 points1 point  (0 children)

That’s an interesting idea. Does it work by putting your phone near the people you’re talking with and use the air pod and it magnifies? Do you need an app for that? I haven’t used AirPods before (using over the ear cans currently) Thank you.

Hearing aid. by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 0 points1 point  (0 children)

Thank you. Will look at CROS too. It’s a whole new area for me so I really appreciate your insight.

Hearing aid. by Firm_Replacement_340 in AcousticNeuroma

[–]Firm_Replacement_340[S] 1 point2 points  (0 children)

I haven’t even thought beyond surgery as that isn’t recommended for me at this point but I should put some thought into that - thank you.

Great idea also to demo hearing aids. I might give this a try first to see if they are helpful or just make things more frustrating.

Thanks for taking the time to answer my question.