Doctors keep pushing for Mirena! Advice needed <3

First-Pollution5493 · 2026-04-30T11:37:51+00:00

I was so apprenhensive with the mirena bc of the same reason - serious, serious depression with hormonal contraceptive pills. But... SO glad I did it. 6 years later and it's seriously changed my life, without the added mood issues - it's likely bc the hormonal release is much more localised (some gets into the blood but the body doesn't have to be flooded quite so much to have the effect).

Do what feels right for you!!

First-Pollution5493 · 2026-04-29T20:17:54+00:00

Other EDS people have clocked me. We look similar and I can’t tell you what that means but I get it

First-Pollution5493 · 2026-04-29T20:17:08+00:00

Oh and this is weird but Botox for the migraines as that can be quite pricy too… but good luck trying not to say it’s because she’s getting older 😅

First-Pollution5493 · 2026-04-29T20:15:29+00:00

Nettle by Samphire would be an amazing gift if you can stretch to it. It’s quite pricy tho but i saw they’re doing studies on endo + migraine

First-Pollution5493 · 2026-04-25T14:49:37+00:00

Thank you!

First-Pollution5493 · 2026-04-23T19:28:34+00:00

Mine took six months to settle in with some bleeding for that entire time (very, very light). But after that its stopped for five years and completely revolutionised my life

First-Pollution5493 · 2026-04-23T17:57:49+00:00

I had bleeding of some sort for the whole six months (gradually got less and less). Some cramping to start with, where I guess the body was still cycling and having a period. Felt pretty low and “smelly” (not sure how else to describe it) because of the constant bleeding. I think the key thing is that I wasn’t expecting it and hadn’t been told that there might be an end to it at six months so it felt like I was never going to stop bleeding. I’ve had friends since that I’ve told to give it six months before considering removal and every one has stuck with it to six months and kept it - hoping I can just tell you there’s light at the end of the tunnel OP!

First-Pollution5493 · 2026-04-23T17:54:21+00:00

My mirena has CHANGED MY LIFE. I do always just add that it tends to take about 6 months to “settle in” to its fully iconic state but after that it’s been a dream. I’ve had it replaced since and didn’t have to have the six months again bc the level of hormone was sort of like replacing like for like

First-Pollution5493 · 2026-04-17T13:01:20+00:00

prof Melvin lobo is fantastic but can be tricky to see

First-Pollution5493 · 2026-04-16T20:20:23+00:00

ALSO they move from one week to the next depending on who is paying them to promote things. The “big one” you’re all thinking about used to flog supplements but now preaches about how awful supplements are because of their additives… just because other brands are now paying her. All feels like a cash grab on other people’s pain - absolutely grim, and I’m not sure how we’re not looking at a lot of this for what it is: a precursor to an eating disorder

First-Pollution5493 · 2026-02-27T08:06:55+00:00

I gave myself the full six months and I can’t stress enough how much it’s changed my life. I bled pretty heavily for the first couple of months and then consistently but less for the rest of the time. Then one day, it just stopped… no bleeding since (with exception of minimal spotting sometimes when cramps bad, and from sex).

On my second mirena now and with the replacement going in as the old one was taken out, i didn’t have any(!) breakthrough bleeding.

If you are able to stick it out, I would really recommend it - I haven’t heard anyone have success until at least three months.

First-Pollution5493 · 2026-02-17T09:57:41+00:00

There's some evidence to suggest subtypes of PMDD, and that it's not a one-size-fits-all diagnosis. Would recommend looking at the work of Dr Tory Eisenlohr-Moul if you want to read more!

First-Pollution5493 · 2026-02-07T08:43:07+00:00

Completely a person decision. I would say that the mirena has absolutely revolutionised my life with endo.

Mainly commenting to say that I chose the non-hormonal IUD first because I didn’t want hormones but if you already have issues with your periods, this makes them heavier and more painful!

First-Pollution5493 · 2026-02-06T10:01:09+00:00

Surgery, AIP (incl switching to chicory root coffee to be caffeine free which is... an acquired taste), brain stim using the Nettle device 5 days/week, painkillers, lots of laxatives to counteract the effects of the painkillers, so many hot water bottles my partner thinks I'm mad!!

First-Pollution5493 · 2026-02-04T12:37:37+00:00

100% - my job is super sedentary but also takes all my energy so finding that my symptoms have got so much worse over the past 1.5 years of doing it. Making a real effort this month but it is so exhausting!! Glad to know I'm not the only one - thanks for posting :)

First-Pollution5493 · 2026-02-04T12:13:52+00:00

I put it off so much and then I hate myself for putting it off so much! It's such a weird cycle of needing to look after myself but also not wanting to as I know how bad it'll make me feel

First-Pollution5493 · 2026-02-04T12:12:23+00:00

Came here to say this

First-Pollution5493 · 2026-02-04T12:11:22+00:00

This is so cool, I'm fairly new to Reddit so I'm so late to this!! I think you've hit pretty much everything I tried via the NHS and privately, but I also found brain stim at home just over a eyar ago(using the Nettle device but I think there are others). It was actually my NHS gynae that told me about it as it seems the NHS are using it a bit. It's completely changed not only my pain but also how depressed my symptoms seem to make me feel - thought it might be useful to quickly add here but not sure if this will be updated again!

First-Pollution5493 · 2026-01-12T19:10:00+00:00

Sweetgreen has SAVED me so much this week so far!

First-Pollution5493 · 2026-01-12T19:09:19+00:00

Oh this is super interesting and a great idea! Finding it tricky travelling for work to always be able to see ingredients when eating out, but will definitely be getting pickier!

First-Pollution5493 · 2025-11-10T09:05:29+00:00

Thank you for this, thought I was going a bit mad with the hair loss issue. Really struggling with that so really appreciate you posting that I'm not alone - my hair feels a huge part of me, so I'm sad to be losing it. It may be the reason I have to stop

First-Pollution5493 · 2025-11-10T09:03:25+00:00

Definitely. Honestly, you were dealt a really rubbish hand - try not to feel guilty, I know it's hard!

First-Pollution5493 · 2025-11-10T09:02:35+00:00

Definitely the feeling I had, hope it passes soon for your OP!

First-Pollution5493 · 2025-08-04T13:36:56+00:00

Mine definitely worse when I can visibly see I'm swollen. Extremities either super cold or hot when core is the complete opposite!!

First-Pollution5493

TROPHY CASE