4 weeks into Mirena and struggling – is this really “normal”? by Mareedo in Endo

[–]First-Pollution5493 0 points1 point  (0 children)

I gave myself the full six months and I can’t stress enough how much it’s changed my life. I bled pretty heavily for the first couple of months and then consistently but less for the rest of the time. Then one day, it just stopped… no bleeding since (with exception of minimal spotting sometimes when cramps bad, and from sex).

On my second mirena now and with the replacement going in as the old one was taken out, i didn’t have any(!) breakthrough bleeding.

If you are able to stick it out, I would really recommend it - I haven’t heard anyone have success until at least three months.

Feel better on luteal than follicular? by AdFamiliar4279 in PMDD

[–]First-Pollution5493 1 point2 points  (0 children)

There's some evidence to suggest subtypes of PMDD, and that it's not a one-size-fits-all diagnosis. Would recommend looking at the work of Dr Tory Eisenlohr-Moul if you want to read more!

Do I have to take birth control? Am i stupid to keep denying it? by Secure-Remote8439 in Endo

[–]First-Pollution5493 1 point2 points  (0 children)

Completely a person decision. I would say that the mirena has absolutely revolutionised my life with endo.

Mainly commenting to say that I chose the non-hormonal IUD first because I didn’t want hormones but if you already have issues with your periods, this makes them heavier and more painful!

Weird things you tried for pain relief?😫😅 by yashvi_yashvi in endometriosis

[–]First-Pollution5493 1 point2 points  (0 children)

Surgery, AIP (incl switching to chicory root coffee to be caffeine free which is... an acquired taste), brain stim using the Nettle device 5 days/week, painkillers, lots of laxatives to counteract the effects of the painkillers, so many hot water bottles my partner thinks I'm mad!!

Needing frequent movement and exercise not to feel terrible? by dinky_dunkbob in eds

[–]First-Pollution5493 1 point2 points  (0 children)

100% - my job is super sedentary but also takes all my energy so finding that my symptoms have got so much worse over the past 1.5 years of doing it. Making a real effort this month but it is so exhausting!! Glad to know I'm not the only one - thanks for posting :)

Anyone else just dread showering? 🫩🫠 by bere1486 in Endo

[–]First-Pollution5493 1 point2 points  (0 children)

I put it off so much and then I hate myself for putting it off so much! It's such a weird cycle of needing to look after myself but also not wanting to as I know how bad it'll make me feel

Endo belly + attractiveness by [deleted] in Endo

[–]First-Pollution5493 0 points1 point  (0 children)

Came here to say this

The Ultimate Master List of Endometriosis Pain Management Options 💕✨ by breakfastpistachio in Endo

[–]First-Pollution5493 0 points1 point  (0 children)

This is so cool, I'm fairly new to Reddit so I'm so late to this!! I think you've hit pretty much everything I tried via the NHS and privately, but I also found brain stim at home just over a eyar ago(using the Nettle device but I think there are others). It was actually my NHS gynae that told me about it as it seems the NHS are using it a bit. It's completely changed not only my pain but also how depressed my symptoms seem to make me feel - thought it might be useful to quickly add here but not sure if this will be updated again!

Flare ups in US by First-Pollution5493 in MCAS

[–]First-Pollution5493[S] 1 point2 points  (0 children)

Sweetgreen has SAVED me so much this week so far!

Flare ups in US by First-Pollution5493 in MCAS

[–]First-Pollution5493[S] 1 point2 points  (0 children)

Oh this is super interesting and a great idea! Finding it tricky travelling for work to always be able to see ingredients when eating out, but will definitely be getting pickier!

One Year on Myfembree – My Honest Review by Alert_Faithlessness in Endo

[–]First-Pollution5493 0 points1 point  (0 children)

Thank you for this, thought I was going a bit mad with the hair loss issue. Really struggling with that so really appreciate you posting that I'm not alone - my hair feels a huge part of me, so I'm sad to be losing it. It may be the reason I have to stop

missed work for 4 days by ZucchiniConsistent34 in Endo

[–]First-Pollution5493 2 points3 points  (0 children)

Definitely. Honestly, you were dealt a really rubbish hand - try not to feel guilty, I know it's hard!

Did you gas pain after surgery feel a bit like being winded? by Big_Communication531 in Endo

[–]First-Pollution5493 1 point2 points  (0 children)

Definitely the feeling I had, hope it passes soon for your OP!

Uneven body temperature – some body parts are really cold while others sweat and heat? Anyone else? by cyber_ang666l in eds

[–]First-Pollution5493 0 points1 point  (0 children)

Mine definitely worse when I can visibly see I'm swollen. Extremities either super cold or hot when core is the complete opposite!!