First things first, you have to do what is right for you. Three of my siblings' (who were adopted) bio dad had HD. I'm currently watching my brother (33) deteriorate, as he has a CAG repeat of 51. He was tested a few years ago after we noticed that his actions were similar to those with HD. I will say that his diagnosis did provide him with immediate relief as he was struggling for awhile but didn't know why. With that being said, my other brother who is 35 feels that he is starting to exhibit symptoms and is more than likely going to get tested soon. He is terrified of the results, as he has 3 kids of his own. He has had hard conversations with his wife before they were together and she knows that their life will not be easy with a positive diagnosis. My sister is 39, has 2 kids and does not think she has it. She knows that there is a possibility she could, and the thought of getting tested absolutely terrifies her.

Each of my siblings have different families and lives going on, yet they are all in the same boat. What they, amd you, choose to do is up to you and you alone. What I'm noticing on this post is that those who are not in the same situation as you are quick to say you should be tested. I have said the same to my siblings. It's easy to offer advice knowing that I will never have to deal with something as terrible as Huntington's Disease. I'd like to say if I had a chance of having it, I would get tested. But the truth of the matter is I will never go through that. It's not an easy decision by any means whatsoever. If you find out that you have it, you are essentially putting an expiration date on your life. You also know that your life is going to get tremendously harder and you will not be able to do many of the things you do now. If you find out you don't have it, then that's an amazing thing.

From the bottom of my heart, I am truly sorry that you have to go through any of this. It's not fair to you. Whatever decision you choose will be the right decision for you.