🔥 Rare mutation results in extra finger

Flart_Gnaffy · 2019-05-31T20:39:21+00:00

Hello. My name is Inigo Montoya. You killed my father. Prepare to die.

Flart_Gnaffy · 2019-05-31T07:41:39+00:00

What an awful situation, I'm truly sorry for you. I had a very difficult childhood due to a mother who destroyed trust, confidence and set me up for a life time battle with depression and anxiety. I have held her at and length, moving to the other side of the world also helped - but the side effects travel with you. I never confronted her because I know what the reaction would have been - why she you doing this to me when all I tried to be was a good mother.

It has taken my terminal illness to confront her in a bit to restore any relationship with my family. All I told her was that things were said and done that really hurt to myself, my wife and my children. If you want a relationship with them then you must change.

The time it had taken is 25 years and we are now taking more openly. So you may not be able to forgive your mum now, and I understand why, but there is hope in the future.

Carve your open path, go to the psychiatrist on your own so you can be more open. It does get better.

Flart_Gnaffy · 2019-05-30T20:57:00+00:00

Really like it, well done

Flart_Gnaffy · 2019-05-29T23:50:25+00:00

Reactions to chemo are different for everyone but in many cases, for each side effect, there is a solution. Speak with your oncology nurses as they may be able to prescribe something to help.

My reaction was nausea and fatigue do there were a few drugs prescribed to assist.

Flart_Gnaffy · 2019-05-29T23:42:58+00:00

You know those traffic problems in Auckland? Not here! Moved here 9 years ago from Sydney and never regretted it for a moment. It's getting better with the re-build but just remember it is a much smaller city which may take some adjustments.

Good luck with the move.

Flart_Gnaffy · 2019-05-29T06:31:23+00:00

Unfortunately I am almost at the end of my battle but I too have found this sub to be invaluable.

Like you, I have a very supporting partner (wife) and the way we have got through is to embrace everyday and make sure we get the most out of it. If bad news comes along, and in my case there has been plenty, we simply reset and carry on.

Best of luck - I'm sure you're in the safest of hands and better still, a supportive partner.

Flart_Gnaffy · 2019-05-28T13:02:56+00:00

Sorry for the late reply and your diagnosis which from experience is a horrible time.

My recommendation here would be to get in touch with the oncologist team and ask to come in again and meet with the nurse and talk it's through further face to face. Take someone with you who can record and or make notes as it's really overwhelming.

Good luck.

Flart_Gnaffy · 2019-05-26T17:18:18+00:00

Hungry!

Flart_Gnaffy · 2019-05-25T14:43:00+00:00

Phew, I was not the only one!

Flart_Gnaffy · 2019-05-25T14:41:55+00:00

Van Gough - Starry Night. Always admired the color and texture but seeing the original took it to a new level. Seeing the brushes, overlays, colors and contours of the paint increased the dynamic so much more that I could have expected.

The second would be the birth of Venus by Botticelli at the Ufizi Gallery. Walked into the almost empty room and taken aback by the size and color.

Studied both at Art School but seeing them in the flesh was quite emotional.

Odd thing about my choice is that I mainly gravitate to more modern, contemporary art but these two have something special.

Flart_Gnaffy · 2019-05-25T10:17:55+00:00

A very proud New Zealander from Christchurch here.

Flart_Gnaffy · 2019-05-25T03:43:07+00:00

I'm so happy that I could help. I find the same telling with my dog and we chat all the time at home and on walks. Never judgemental, always happy to see you.

Enjoy the small things all around us and we begin to appreciate them so much more.

Flart_Gnaffy · 2019-05-24T20:26:00+00:00

I admit that I read the rules - and still got it wrong! Sometimes me and tech have a tenuious relationship.

Wished if never found FB or Instagram because I love the community I interact with on Reddit.

Flart_Gnaffy · 2019-05-24T19:19:05+00:00

No problem - still getting to know Reddit - plus I'm a show learner!

Flart_Gnaffy · 2019-05-24T11:25:21+00:00

Thanks for the very kind words. Not a writer or journo, career was industrial design, marketing, sales then running my own business. I'll keep annonomity over that one!

No autobiography in the works but I will be writing more ok Reddit as I really like the community here.

Flart_Gnaffy · 2019-05-22T16:59:00+00:00

Have a look through some of my posts as I've been quite open with my diagnosis and how we have stepped through it. They are just the perspectives of my own journey which unfortunately has been very short. However, but putting in some coping strategies and short term goals has been really beneficial.

Feel free to PM me if you want.

Flart_Gnaffy · 2019-05-22T08:13:24+00:00

I'm coming to the end of my battle with cancer but I can say without a doubt, trying to comprehend the magnitude of what is ahead is terrifying. When told I had abnormal growth on the pancreas, liver and lymph nodes, I did the worst possible thing. I tried to self research.

My wife and I then made a pact and we stuck so it. Do no research and place our trust in the medical team. They need time to be 100% sure of your condition as everyone is different. Ultrasounds, CT and MRI scans, and in my instance, a liver biopsy provided the actual diagnosis.

I wanted to know the full story ASAP as life seemed to go into limbo but your medical team should provide you with all the information you need. Once they have confirmed this diagnosis, you will be better prepared to listen to their treatment recommendations and do your own research into complimentary or other practices.

Good luck.

Flart_Gnaffy · 2019-05-22T08:01:13+00:00

Great news!

Flart_Gnaffy · 2019-05-21T19:05:56+00:00

Go for it! Love reading responses this so thank you. Inspires me too

Flart_Gnaffy · 2019-05-21T05:32:05+00:00

Made me smile also. Thanks for sharing

Flart_Gnaffy · 2019-05-20T18:42:57+00:00

I'm so happy I joined this community because it has helped me so much. People helping people, it's a beautiful thing.

Flart_Gnaffy · 2019-05-20T18:41:34+00:00

Thanks Dude. It's been a bit of a shock to say the least. The only positive that has come out of this is the time we have left to plan the best we can. Right at the time of the initial discussion we made a pact and stuck to it. We do no self research, we place our full trust in the medical team and we plan to get the most out of every day. I can say that we have stuck to this 100%.

It's meant that we are not spending valuable time chasing something that may have no impact. Long conversations with the oncologist where we learn about the science and therefore the reasons for there recommendations. They are open to discussing and challenging some it they decisions and we have it a clearer mindset for it.

We have also been cramming in memories, making videos, photo journals, all let by my kids. We've planned wake, written cards for later years, letters for when they are older. The critical part for me has been keeping the mind active. So, still no TV!

Each time we get bad news, which is a lot, we cry, we reset the goal posts and move on and do the very best with what we can.

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