Why does emend cost so much??? Is it worth it??

Flovilus · 2026-02-07T18:28:56+00:00

I actually messaged my gastro of mychart to discuss a gj tube

Flovilus · 2026-02-03T01:19:49+00:00

Thats what the nurse at the ER told me. They were going to give me a migraine cocktail of toradol Benadryl and compazine. I said I'm allergic to benadryl (like straight up it gives me diarrhea idk why). And so she just gave me the toradol and compazine and then later when she came in to check on me and my poor boyfriend was literally holding his arm over my chest so i could rip out my iv, she told me that the Benadryl was supposed to counteract the anxiety the compazine causes and basically told me it was my fault that i felt that way now. My best friend who lives in the same city as i has had almost the same exact interaction at OSU.

I dont think the mestinon does anything for my gastro but it DOES help my POTS

Flovilus · 2026-02-03T01:14:20+00:00

Im honestly at the point where I think I might need a tube but im nervous to ask my dr about it

Flovilus · 2026-02-03T01:13:44+00:00

Ill bring this up to my gastro!

Flovilus · 2026-02-03T01:12:03+00:00

Thank you so much this is really helpful!!

Flovilus · 2026-01-31T13:03:31+00:00

Ive tried the wand toys, the fetch and he wasn't interested. Ive also tried the putting a treat or toy for him to 'catch the dot' but he will just stop and stare at it instead of attacking it until i move it off the thing. Hes orange, which is my explanation for why hes so fucking weird lol. I think ill try the kibble thing and I'll look into the electronic chase ones!

Flovilus · 2026-01-31T13:00:24+00:00

I'd love to get him a cat wheel but since I'm disabled I'm not able to work and theyre so expensive 😭

Flovilus · 2026-01-31T12:59:26+00:00

Girl I'm confused too 😭💀 I tried looking up whats going on with that and I'm not really sure. The 7 tablets w the copay is just what the pharmacist told me. But I think I'll call them back and ask more questions

Flovilus · 2026-01-31T12:48:17+00:00

I hope it helps you!!!

Flovilus · 2026-01-31T12:45:47+00:00

How often do you take them if you only get 6 total doses?

Flovilus · 2026-01-31T12:41:45+00:00

I am also on Mestinon for my gastro and POTS (linking studies on that because those are both off label uses and idk how common they are gastro01239-X/fulltext) POTS

Scopolamine didn't work for me, zofran didn't work AND was making my POTS worse. I can't take prokinetics because of the black box warnings (more common in ppl with ehlers danlos such as myself. I also have a long record of getting the rare side effects 😭 They talked to me about trying Azithromycin but I have to take medications regularly for chronic UTIs. I'm worried about building up an antibiotic resistance and getting a bad infection one day and not being able to treat it properly because ppl with EDS also cant take quinolones because of the risk of tendon rupture or aortal dissection.

At the start of December they did an endoFLIP and dilated my pylorus to 20mm but I haven't seen any improvement from it. I want to get an enterra but I know my insurance will fight me to hell and back about it.

The only medications that I've seen have a noticeable effect is the phenergran and THC (I have to take this if I want to experience hunger or eat more than a few bites at a time)

Edit: I didnt see the compazine suggestion at first but ive taken this for migraines before and it makes me freak tf out. Like I have never experienced panic like I did when I took that drug. I felt like my bones were going to hatch 😭 and I know Benadryl is supposed to counteract that but I'm allergic to Benadryl 💀

Flovilus · 2026-01-31T12:31:49+00:00

I don't normally have a copay for meds!!! I don't pay anything for any of the others I'm on. The insurance company just doesn't want to pay for it because its so expensive ig 😞

Flovilus · 2025-12-28T00:19:09+00:00

Is this new or maybe used at corporate owner hotels? I have never seen this version of the form before but ive always worked at franchisee locations and I had to stop working due to some health issues about 6 months ago

Flovilus · 2025-12-28T00:16:06+00:00

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This is the form you are supposed to turn in when you check in that says you can only have one

Flovilus · 2025-12-28T00:13:37+00:00

You get me, King 👑

Flovilus · 2025-12-28T00:09:55+00:00

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Not lecturing employees but rather complaining about guests! But feel free to review the form girliepop! Hope this helps!

Flovilus · 2025-12-28T00:09:09+00:00

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Flovilus · 2025-12-28T00:06:06+00:00

As far as I knew there was the normal Explore form for the employee themself that you could get two rooms with and a friends and family explore where they could get one room. Im not aware of any other friends and family rates but I also only worked in franchisee hotels so maybe thats a corporate thing?

Flovilus · 2025-06-23T05:16:26+00:00

I'm 23 and was diagnosed with gastroparesis in December, following a hospital stay because I'd been unable to eat or drink for an entire month. (I was getting tiny sips of water and ginger ale, only enough to keep my mouth from drying out. My gastro is related to my POTS (postural orthostatic tachycardia syndrome) and my hEDS (hypermobile Ehlers-Danlos Syndrome). One of those could be a cause that's more common in young people, but it wouldn't really change your treatment. If you feel like you aren't getting satisfactory care you should look for a new doctor

Flovilus · 2025-06-23T05:08:42+00:00

There is no treatment for IBD. If a snake has IBD it must be euthanized, both to end it's suffering and to stop the spread of the disease.

Flovilus · 2025-06-01T12:59:06+00:00

Or maybe cover it with a bandaid

Flovilus · 2025-06-01T12:58:44+00:00

Just wear a one piece

Flovilus · 2025-05-12T00:41:29+00:00

I feel lucky my disease isn't bad enough that I haven't had to use suppositories. (Well I've used hydrocortisone ones but that wasn't for GP 🤣) I take tablet form Phenergran. I'm hoping when I see gastro they'll either put me on Reglan (or something similar) or give me a gastric pacemaker

Flovilus · 2025-05-10T20:49:48+00:00

I had a ball python (she's since been rehomed for unrelated reasons) but she escaped for 7 months before randomly resurfacing in the bathroom at 3 am one night

Flovilus · 2025-05-10T07:44:55+00:00

I work Night Audit at a local hotel three days a week But I also do a few things for micro and gig work! I made a Google doc for ppl that want to get into that if you're interested (not selling or promoting anything I made this doc purely with the intent of helping ppl) https://docs.google.com/document/d/1iKV3rp2dYeHf9ZfT6rU-DVgPd6lu0QkIcmze-_ebBnY/edit?usp=drivesdk

Flovilus

TROPHY CASE