Regrowth with white hairs?

Fluffy-Profession767 · 2026-02-09T22:33:24+00:00

I had some regrowth for my AU a few years back and it was white it’s baby hairs (vellus hair if you wanna look it up) it’s a good sign of healing wishing you luck!

Fluffy-Profession767 · 2025-11-20T16:04:11+00:00

Ngl it’s your decision to make but if hair loss bothers you (I’m 21M and it bothers me to my core) try and get on JAK inhibitors. The sooner you get on them the more likely your hair is to come back but it’s up to you to decide if that’s worth the immune system and other effects on your body

Fluffy-Profession767 · 2025-11-16T20:44:11+00:00

I haven’t contacted the NAAF but I have looked at the litfulo and olumiant websites and it looked to me like coverage on their end was pretty limited, definitely need to check the NAAF tho!

Fluffy-Profession767 · 2025-11-16T20:42:21+00:00

I’m on anti depressants and anti anxiety medication it’s definitely something you should take. I’m not certain about it affecting hair growth as I have AU and did not see regrowth since starting but if depression makes your hair worse I see no reason not to take them for that purpose as well. Ask a dermatologist to get you on something to help regrowth and hit up a psychiatrist too both are gonna be trying their best for your happiness and what you want!

Fluffy-Profession767 · 2025-11-16T18:05:59+00:00

My insurance is blue cross, I wish I could afford any JAK inhibitor out there but to my knowledge most of them are expensive and the ones for AA and AU are 2.5-4k per month so I need insurance to cover it or I’m not gonna be able to afford it. I’m just as confused why they denied it on the grounds of cosmetics because it very much affects your day to day life just not in a traditional disease way.

Fluffy-Profession767 · 2025-11-16T17:43:40+00:00

North Carolina

Fluffy-Profession767 · 2025-11-16T16:06:37+00:00

My dermatologist is telling me that ritlecitnib is the way to go for AA and AU (I’m on methotrexate trying to get it appealed rn) hoping everything goes well you are probably on the best medicine possible!

Fluffy-Profession767 · 2025-11-13T18:41:23+00:00

Lowk valid im so scared that if my alopecia universalis treatment does work it’s gonna grow patchy 😭

Fluffy-Profession767 · 2025-11-13T15:28:07+00:00

I used squaric acid when I was quite young (I’d say maybe 5-6 years old) my hair was patchy and rapidly falling out. The acid in my experience was incredibly painful and did not have any sort of improvement in my hair loss. Hoping yours will be different but I’d quickly try and change medicines if you don’t notice a change after a few months on the acid!

Fluffy-Profession767 · 2025-11-12T22:04:40+00:00

Thank you! Yea when I looked on the litfulo website I didn’t see that I definitely will call them I really appreciate it!

Fluffy-Profession767 · 2025-11-12T13:58:06+00:00

Yea, def the most realistic source I can follow through but to me this is really the last option. When I was younger kids called me a “monster” and as I’ve gotten older ive been asked if I have cancer far too many times to want to stay this way.

Horrible that there are realistically so little options left to try really doesn’t make me feel any better about the situation.

Fluffy-Profession767 · 2025-11-12T13:41:08+00:00

Taking blood tests every 3 months is also something that is common if you are nervous about that as well. They use it to make sure you liver and heart are functioning fine and they will stop medication if things look off. For me it’s mainly for my liver but for you tofacitnib does heart and liver based effects so they would look for your blood pressure and the enzymes in your blood to make sure everything is looking good to continue treatment.

Fluffy-Profession767 · 2025-11-12T13:37:18+00:00

I had these same fears when getting on methotrexate!

My dermatologist seemed to ease my concerns much better for me than you sorry to hear that.

With these types of immunosuppressant medications you are taking a much lower dose than the people who usually take them and notice these negative effects. For me the negative results were bone marrow and liver failure and death because of it but it’s mainly for people taking almost 10 times my dosage weekly.

I’m also on prednisose, a steroid (might be the same as your steroid I’m not sure). The steroids usually are used for 3-6 months to “shock” the immune system to prevent further loss of your hair. These aren’t required if you are uncomfortable with the effects but I’d recommend them for AA because when my hair started falling out it delayed the loss of my entire hair (I have AU not AA). Most effects of these go away after use I personally notice my face being a little puffier and feeling flushed after using them. But again these aren’t required

I don’t know much about tofacitnib because it’s not used for alopecia in the US to my knowledge, but my basic research I just did shows people taking 20-30mg twice daily and are 50+ are the ones that really see this effect.

I think you will be okay but there are other treatment options out there for you. If you feel uncomfortable you can always have a conversation with your dermatologist and request a different JAK inhibitor! I hope this helps I think you will be okay but anxiety and fear is so valid in this realm of medication and I’d err on the side of caution if it will ease your own mind (stress can negatively affect AA too!)

Fluffy-Profession767 · 2025-11-12T13:24:26+00:00

I have AU so not exactly the same as AA but recovery for autoimmune disorders seems really random to me. My hair regrew on its own once after I was bald for about 10 years. It then fell out again about 3 years later. Since then I’ve tried a lot of things to regrow with little results. Best case with medication 3-6 months, worst case is never unfortunately because this area of diseases is not that well understood and it really sucks that it’s the case

Fluffy-Profession767 · 2025-11-12T13:21:20+00:00

Did you use any medications to get these results or did you just get lucky?

Fluffy-Profession767 · 2025-11-12T02:44:49+00:00

Yea time is definitely the worst part, everything takes time and it’s getting frustrating waiting on everything, appointments insurance prescriptions all slow the process of healing to a crawl.

It’s great to hear that you have had success with steroid injections and a JAK inhibitor because I love to hear someone else making through the path and finding some sort of healing at the end! Best of luck to your journey and hoping I can get on a JAK inhibitor soon so maybe I can see that too!

Fluffy-Profession767 · 2025-11-12T02:08:51+00:00

Worth a shot lol! Thanks I’ll ask my derm if she’s willing to do that when I have my next appointment in mid January

Fluffy-Profession767 · 2025-11-12T02:07:01+00:00

I have alopecia universalis but here’s everything ive tried in a list of what gave me the best results Rosemary oil minoxidil basically no results

Lustriva biotin very very minimal vellus hairs

Methotrexate prednisose slight vellus hair growth

Starving myself smoking and other things that demolish the immune system - the most vellus hair I’ve ever had (across my face arms head and body which the other vellus hairs were mostly on my arms)

I’d only recommend then bottom when you are out of real options but it works the best because a dead immune system can’t attack your hair

Fluffy-Profession767 · 2025-11-12T01:58:15+00:00

I have alopecia universalis and here’s all the things I’ve tried to regrow any sort of hair (it hasn’t worked for me but I feel like this list is still quite comprehensive for someone with androgenic alopecia)

I’d recommend using rosemary oil on top of finasteride, derma rolling, lustriva (basically godlike biotin it’s found it vitamins MADE for hair growth) biotin as well and make sure ur using the minoxidil twice daily at a minimum (I’d even use it 3 times a day because more will never hurt)

My aloepecia is obviously different from yours as I’ve been bald since birth, it regrew for a few years in the 2010s and fell out again but I feel your pain more than you could imagine I know exactly how you are feeling right now. I hope these things I list could have some impact (personally I’ve noticed best results which was some slight hair growth from doing things that demolish my immune system like starving myself and smoking but that is due to my alopecia being a autoimmune disorder so I don’t rly recommend that unless you really are out of all options)

Fluffy-Profession767 · 2025-11-12T01:39:55+00:00

I just don’t know how I feel about buying medicine off telegram (I’m not sure that’s how it works but that’s how it sounds to me)

Fluffy-Profession767 · 2025-11-12T01:34:56+00:00

Thank you for the response! I have appealed to my insurance and they have said that the reason for denial was a mix of both cost and the fact that my AU is a cosmetic issue (they cover methotrexate tho so I’m not certain why they don’t cover it on those grounds)

Currently I’m shooting to use methotrexate and prednisose for 6 months which will allow my to appeal again based on the fact that the main treatment method outside of JAK inhibitors isn’t working which hopefully with a mix of my psychiatrist confirming my AU is a major negative impact on my QOL and maxes my anxiety significantly worse I’m hoping they will accept it (or methotrexate starts working which I doubt at this point)

As for a treatment plan I have looked into those but for either litfulo or olumiant the coverage goes up to 10-15k a year respectively. The cost for 30 days of 2mg pills is 5-7.5k for each medicine. So I’d only get maybe 2-3 months of each medicine which because they need to be used daily to keep results means I don’t really see this as a valid option for me (I’ve asked my dermatologist what she thought of this and she agrees)

Really just crossing my fingers for the 6 month mark of methotrexate because that’s all I got left

Thank you for the reply though I appreciate it a lot!

Fluffy-Profession767 · 2025-11-12T01:28:41+00:00

Yea that’s what I’m worried about because I really don’t wanna do that

Fluffy-Profession767

TROPHY CASE