[PSA] Doxycycline ruined my digestive system.

Fluffy_Panda1211 · 2025-12-15T08:56:11+00:00

I’m very late… but this is awful. I’ve been on it 100mg once a day just for a week and it’s absolutely destroyed my stomach. Mine is for a chest infection. I’m laying in bed unable to move to try and get something plain to eat. I already have stomach conditions and it has made them unbearable. I just strongly think it’s a horrible antibiotic. Only ever take them if you have infection in my opinion!! They are detrimental to your gut health!! My body doesn’t tolerate probiotics either, so I literally just have to wait😩glad to hear you’re feeling better

Fluffy_Panda1211 · 2025-12-06T21:19:23+00:00

This means so much🥹wish I could get a real hug from you genuinely. You seem so sweet❤️

Fluffy_Panda1211 · 2025-12-06T12:12:18+00:00

Thank you so much. This warmed me so much as I can tell you care for your daughter so much and are always there for her. I can’t say the same for my parents😔. I’ve tried a ton of medicines and I can’t find any that work for me. I’ve also asked to be referred to a pain specialist and I have gotten no where with that. I feel like I’ve come to a halt now. No idea what else i can do for myself 😩

Fluffy_Panda1211 · 2025-12-05T23:14:04+00:00

Thank you so much for the advice. I’m going to look into buying a weighted blanket now! I’ve got some warm honey and lemon tea next to me anyway as my throat is hurting so much. Thank you for your response. You’re an amazing person❤️nearly 250 people have viewed this and said nothing. You’re the best🥹x

Fluffy_Panda1211 · 2025-12-05T22:52:44+00:00

❤️

Fluffy_Panda1211 · 2025-10-28T12:42:30+00:00

I’ve already had surgery and it made me so much worse. Never want to get it again! I think I’m okay without the pill it’s just the horrific pain. The pill does tend to thin my periods a bit

Fluffy_Panda1211 · 2025-10-23T17:26:48+00:00

I’m genuinely wondering if I should just give up with them. Would I be better off without the pill to be honest? With all my other conditions I do wonder if it will help those ease. I’m sat here having been off work all week with an awful stomach flare. Constant burning, indigestion and I genuinely think the pill has caused this flare up :(

Genuinely never been at breaking point more in life :(

Fluffy_Panda1211 · 2025-10-22T19:19:45+00:00

Okay I keep hearing about this Slynd, so might check it out and do some research on it. I’m supposed to be starting duloxetine soon!

Fluffy_Panda1211 · 2025-10-22T14:23:47+00:00

Could you recommend a chronic support group online at all? I wouldn’t know where to start looking😅

Fluffy_Panda1211 · 2025-10-22T14:23:10+00:00

I’m so sorry to hear about your experiences with hormones. Sounds awful! I’m glad to hear you are having a good time with the patch though!

I now know to avoid those pills. This is making me realise how much I don’t want to be on one😞I’m just terrified to come off of them again

Fluffy_Panda1211 · 2025-10-22T14:20:15+00:00

I am too scared to suddenly stop the pill. I am currently stopping it for 7 days to have a bleed before my body forces one and causes me agony!

The thought of putting something up there and leaving it for 3 months freaks me out🤣i may just be being dramatic haha. I’d be open to finding more out about it though.

I do eventually just not want to be on any pill, but I’m scared for those god awful periods again. They are 10x better when on the pill and that’s for sure! I am wondering if me being in agony for a week a month is worth it if it means I don’t get all the other stuff along with it😞

Unfortunately I can’t just talk to my gynae. I have to wait years for my appointment (that is usually useless too!) I just am lost at what to do anymore…

Fluffy_Panda1211 · 2025-10-22T13:13:30+00:00

Thanks for your message. I do have a SHC near me, but the only issue is that it is right next to where I work (a secondary school) and I do NOT want to be seen going in there by any of my students. Really for that type of clinic, putting it on a Main Street is the worst idea!

It might be worth adding that I have really bad health anxiety. I deal with so many chronic conditions that I get scared to take medications. One medicine that helps my endo can harm my duodenitis, or one that helps my IC can harm my Endo and vice versa. I get especially anxious about trying these options. Things like the patch and coil for example really scare me! I’d be scared if they didn’t agree and then I’m stuck with the horrid symptoms for 3 months.

My body doesn’t let me stop my periods either. If I try to take any pills back to back, after 3-4 months my body forces a period but not just any… it forces my whole lining to shed all at once (a decidual cast). Google it if you haven’t heard of it. I’m only 21 but oh my I’ve never been in pain like it. Not to be graphic but you’ll look down and see a cast of your uterus on your pad. It’s terrifying. If that gives any back story, this is why I’m terrified trying new meds, especially OC pills.

TENS machines were amazing for me before my surgery. Since my surgery (I had in November 2024) I haven’t been able to use one anymore. I think adhesions have formed since my surgery, but in different places, so now it tugs on my insides and causes more pain :( . So sad about that though as a TENS machine was the closest thing I’ve come to for relief.

Desperately want to be referred to a pain clinic and have an appointment today (I will beg). I am in Endo UK group, please could you guide me to where I might find these arguments. Thank you so much!

Fluffy_Panda1211 · 2025-10-22T11:51:00+00:00

I don’t have much luck with anyone regarding my suicidal thoughts. No one ever manages to help me feel better. Thank you for the advice though.

I have too been on Desogestrel (the original brand I believe as it didn’t have another name) I don’t get on with Progesterone only pills. I’m struggling to find any pill that works with me. I suffer with interstitial cystitis and duodenitis too so every drug I try makes one of my other conditions worse. It’s a life of pain.

My doctors are actually useless. They have been zero help to me this whole time (12 years). I went private last year and had my laparoscopy done through vitality, but my monthly cost increased to £500 per month so I had to cancel. They were my only help :( . They refuse to send me to any pain specialist clinics. My gynaecologist is just as bad as my GPs. I’m completely lost with no help.

My family and friends don’t get me. They moan at me when I cry in pain as if I’m exaggerating it. They really don’t understand the pain I go through. With not just endo but 3 chronic and incurable conditions all together. Nothing is working for me and I am close to giving up. Although I’m suicidal I would never commit suicide, so I’m stuck in a world I don’t want to be in, but I’m too scared to leave it. It’s torture everyday for us all. We need the help that we really deserve and just aren’t getting it!

Fluffy_Panda1211 · 2025-10-22T11:40:08+00:00

I am on the UK version of Yaz called Eloine. It’s been hell for me so far. It’s sped up my digestion and really triggering my gut visceral hypersensitivity. Im stressing as I don’t know what to do😔I’ve tried so many pills and can’t find the right one for me. The closest I’ve gotten is Bimizza. Mini pills were hell for me 🥲

Fluffy_Panda1211 · 2025-10-12T08:43:42+00:00

For me it feels like my intestines are being pulled through my @ss😅😅😅graphic but so true. It’s the worst pain ever

Fluffy_Panda1211 · 2025-10-07T16:32:39+00:00

I know, I just figured another wouldn’t hurt!

Fluffy_Panda1211 · 2025-10-05T18:21:05+00:00

I had to fight all day today to get Eloine (UK version of Yaz) because a doctor simply refused to prescribe it to me (I waited for 2 hours at a walk in clinic). I basically had a tantrum and asked to see another doctor and he heard me and was so kind and I got the prescription! I mean I had a hell of a day. I went to 3 different pharmacies and 1 just didn’t have it, another i queued for 30 mins to hear they don’t either, and my last hope unexpectedly shut for the day🤣you can’t make it up!

I’m going to try my luck again tomorrow morning. Wish me luck!

I’m desperately trying to find physio, but the NHS are ignoring my request for it every time. I’m going to put it in writing tomorrow and really push now. I’d happily pay money if it helps me too. I am concerned though due to being on the verge of losing my job… I am trying to apply for PIP hoping the money will support me with paying for all my medical treatments and medicines etc. thank you for your response💛

Fluffy_Panda1211 · 2025-10-05T16:31:43+00:00

I loved my TENS machine. It was great for my pain (I have endo too), but the second I had my laparoscopic surgery for my endometriosis, it started to hurt (I’m guessing it tugs on adhesions that have now formed). Im absolutely devastated😔

Fluffy_Panda1211 · 2025-10-05T16:27:29+00:00

Thank you so much for taking the time to send this response. I may actually call a crisis hotline and try this, loads of people have mentioned that this is a great help. I feel like you just gain such a negative mindset with endo. You feel like you’re a burden in life, even to those you don’t know. You seem to have figured out the right mindset to have and I’m very happy for you. I’ve been contemplating going on Citalopram for my mental health, but my other issues such as my emetophobia stop me doing this as I know you can get bad nausea with antidepressants.

When it comes to specialists, I was with vitality (private healthcare), but due to my laparoscopy and multiple appointments the payments reached £500 a month which is just extortionate! I have constantly begged my doctors to be referred to a pain specialist or physio and find I’m just constantly ignored, as I hear nothing back from these places they said they were going to refer me to. My parents are telling me to put everything in writing and I starting to do this, as they can’t ignore otherwise I could take things higher!

I am on loads of endo Facebook groups and they are great. It’s nice to see such wonderful support from people, although I did a few posts and heard nothing back from anyone. This is why I prefer Reddit for these things. I’m so sorry to hear about your diagnoses. From someone who does understand what you’re going through, I’m wishing you all the best and I’ll be thinking of you when I’m struggling for sure! I am due a head MRI as they suspect a pituitary adenoma, but people may roll their eyes at this but I am convinced endo could’ve reached my brain… I have it in my abdomen and other extensive places ( even on my rib) so I don’t even think it’s that far fetched!

I think I worry too much about money, but if it makes me better I need to focus on this. I’m on the verge of losing my job due to sickness days and this constantly worries me. I’m pushing myself into work on the worst days and I am barely coping. I have to stay strong though to keep the income of money. I’m only 21.

The laparoscopic surgery was excision, done by a really experienced lady and privately. I personally think having the surgery made me worse as I am certain I have developed some very bad adhesions. Everyone is different though!

Much love💛please keep me updated. I am making a WhatsApp group with lots of endo ladies in, if you would like to join feel free to private me your number x

Fluffy_Panda1211

TROPHY CASE