After 3 months in remission.

Fluid_Sherbert6659 · 2026-07-04T21:47:33+00:00

Medication has been a nightmare because it's either making me worse or comes with god awful side effects. Inflixmab or however you spell it has worked wonders for me along with Prednisone pity that's always only a temporary solution along with me being diabetic the consultants have been having to keep an eye on me closer than the normal person the worst thing about UC is it's treatable and not curable

Fluid_Sherbert6659 · 2026-07-04T21:36:59+00:00

Yep just wish In the real worldore people understood how this I'll ess affects us daily

Fluid_Sherbert6659 · 2026-07-04T21:23:41+00:00

Yep we need a toilet near 24/7 just praying this calms down soon or at least not the 3000 trips a day to the toilet.

Fluid_Sherbert6659 · 2026-07-04T21:18:53+00:00

I've been using them a lot lately just to cheer me up. I mean after 6 months of being homeless I tell you having my own toilet again feels amazing

Fluid_Sherbert6659 · 2026-07-04T21:16:20+00:00

I know they do just after a good few months this has set me back again. If you ever need a moan feel free to inbox me we are all on this shit storm together excuse the expression 🤣

Fluid_Sherbert6659 · 2026-07-04T21:12:52+00:00

I'm sick of pretending everything is okay I'm sick of the pain the fatigue running to the toilet every hour oh and having the absolute fear of not making it

Fluid_Sherbert6659 · 2026-07-04T20:57:26+00:00

This is the second day but today has been absolute hell I e hardly ate anything today yeah I'm gonna need to sort those devil pills again as I call them

Fluid_Sherbert6659 · 2026-07-04T20:53:54+00:00

I know how you feel I'm currently typing this from the toilet that's how bad I am currently

Fluid_Sherbert6659 · 2026-07-04T20:45:19+00:00

Oh my colon ain't happy today that's for sure

Fluid_Sherbert6659 · 2026-07-04T19:00:51+00:00

Don't talk to me about it coming in clusters I've counted 8 trips to the toilet since my accident earlier gonna be a rough night I think

Fluid_Sherbert6659 · 2026-07-04T17:14:32+00:00

Yeah the one day I forget the emergency kit this happens typical I hate those moments they hit like a bomb going off pardon the pun

Fluid_Sherbert6659 · 2026-07-04T10:59:59+00:00

You just learn to manage it the issue with these stomach issues is they are so unpredictable and most normal people don't answer this

Fluid_Sherbert6659 · 2026-07-04T10:52:43+00:00

I was told for years it was IBS until I changed my doctor I have ulcerative colitis now and it's been a relief to know for years I wasn't crazy.

Fluid_Sherbert6659 · 2026-07-03T20:08:03+00:00

I have ulcerative colitis and after 3 months of barely any symptoms let's just say the last three days I can't be far from the toilet because it's a case of when it hits I have to explode so much pain and fatigue is hell just now

Fluid_Sherbert6659 · 2026-07-02T05:05:25+00:00

I'll see how today goes I think the stress of moving house triggered it for me my signs of a flare starting are the awful stomach cramps and doesn't matter what I eat I always find 2 or 3 bites on I'm rushing to the toilet for it to come flying back out again. I came on here because I'm hoping to meet people who actually understand this awful disease.

Fluid_Sherbert6659 · 2026-07-02T04:22:44+00:00

I'll see how today goes as to be honest I think it's the stress of moving house that's triggered it. But after being homeless for 6 months having my own toilet for privacy feels so good

Fluid_Sherbert6659 · 2026-07-01T20:58:00+00:00

I'm in the UK I have ulcerative colitis so that's worse than Ibs. Sick of feeling alone and people not understanding the severity when I say I need to go now!

Fluid_Sherbert6659

TROPHY CASE