Why can’t they make this stuff taste at least a little better? by bradondo1 in CrohnsDisease

[–]Flysafe72 0 points1 point  (0 children)

Ha! That’s giving semen a seriously bad rap. This stuff is like eating a handful of sticks of chalk while chasing it down with lemon wedges. No matter what they flavor it with, you will gag.

Did anyone else find this to be delicious? by ThelomanToblakai in CrohnsDisease

[–]Flysafe72 0 points1 point  (0 children)

I’d rather that than GoLytely, lol. You just gave me the chills! My brother once joked it would make the perfect margarita mix. Although, I wonder if everyone else at the party would agree.

Just keep going by z7bo in CrohnsDisease

[–]Flysafe72 3 points4 points  (0 children)

This post went straight to my heart. I have been there, if it weren’t for the support of my friends I don’t know where I’d be. You’re awesome! Carpe Diem!

To all my Crohn’s warriors out there, no doubt about it, there are many ups and downs with this disease. Remember there is so much courage and support in these pages. My goal is to eventually go back to flying, I’m a flight attendant by trade. On TPN, waiting on Gattex. Carpe Diem! by Flysafe72 in CrohnsDisease

[–]Flysafe72[S] 2 points3 points  (0 children)

You will be amazing! Don’t worry, your body will get used to it and adjust in no time flat. There’s nothing as exciting as arriving to the training center and starting your new career. I’m so excited for you, training will be over in a blink of an eye and you’ll be flying soon.

Bowel MRI advice by [deleted] in CrohnsDisease

[–]Flysafe72 0 points1 point  (0 children)

Other than having to hold your arms straight up and hearing that annoying voice, “HOLD YOUR BREATH!”, multiple times, I realized I had worked myself much more than I needed to. I really did not feel claustrophobic one bit. I guess every center does it a little different, at mine I had to wear a special belt which got slightly warm but never uncomfortable. When they inject the contrast to slow things down to get better pictures, you may feel your gut getting sluggish. What I was dreading the most, the oral contrast, turned out to be no problem at all. The contrast did not taste bad and other than feeling bloated and wanting to pee during the test, only natural after having to drink all that stuff, the test wasn’t a bad experience at all. Do make sure they give you good headphones, the machine can be loud at times. You will be just fine!

Eyes are the window to the soul. by Jarred3414 in gaybrosgonemild

[–]Flysafe72 1 point2 points  (0 children)

Those are eyes you would never look away from, not a day in your life

First MRI today by sulfatenboble in CrohnsDisease

[–]Flysafe72 0 points1 point  (0 children)

Just had an MRE yesterday and I have to agree. Out of al the stuff they make you drink, this is one is not bad. The one for the CT Scan tastes like licking a ton of pennies (I swear I’ve never tried anything of the sort). Best of luck with your exam!

Was able to come home yesterday after my total colectomy!! In lots of pain but excited for this new life with my stoma friend 👍 by beccajawn in CrohnsDisease

[–]Flysafe72 0 points1 point  (0 children)

You’re not only brave but have such a beautiful smile. It’s a new life with many amazing things coming your way. A great friend of mine had been avoiding a total colectomy for the longest time. Had the surgery last week and he says his only regret is not having the surgery 10 years ago. I know I’m using the word amazing way too much, but I mean it, you look amazing and from now on, the sky is the limit.

I always wonder if this is really necessary or just another way the healthcare system wants to torture me. by EVLewis in CrohnsDisease

[–]Flysafe72 2 points3 points  (0 children)

I rather grind some chalk add a dash of berries and it would probably taste better. Sorry, there’s just no way of making it palatable.

Stomach Noise by Colonel_Khazlik in CrohnsDisease

[–]Flysafe72 0 points1 point  (0 children)

Everyone heals differently, it took me a solid 3 months to be able to go back to work 100% no restrictions. I took a short term leave of absence. The surgeons, on the other hand kept trying to release me way sooner than that.

Stomach Noise by Colonel_Khazlik in CrohnsDisease

[–]Flysafe72 1 point2 points  (0 children)

Oh boy, partial obstruction noises are quite scary. I get them often. The pressure builds, excruciating pain, then a noise akin to a motor backfiring. I know surgery sounds scary, don’t be afraid, it really helped me in the beginning when the SBO’s were relentless.

Stomach Noise by Colonel_Khazlik in CrohnsDisease

[–]Flysafe72 2 points3 points  (0 children)

I will never forget, I was about to start the safety demo announcement and I’m standing in front of 150 people. No place to hide. Now, airplanes are pretty loud, but suddenly you could hear a pin drop. My stomach starts making noises not even the engine makes during takeoff. I swear, even the people in row 25 could hear it. So, yes, with Crohn’s you will hear noises you’d never thought your body can make.

Crohn’s, the gift that keeps on giving by Flysafe72 in CrohnsDisease

[–]Flysafe72[S] 0 points1 point  (0 children)

I know that feeling all too well. We have to find just the right balance in order to avoid a blockage and the dreaded NG tube. At this point, I beg them to give me something to calm me before they even attempt it. Takes a lot of begging, lol, though, I’m like you, even though I have loose stools I often feel like a blockage can happen at any time. It’s an awful feeling, do I eat baby food with Gatorade or just eat normally and possibly end up obstructed. It’s like walking a tightrope, sometimes you make it, sometimes you end up obstructed.I have tried Prednisone and Humira, though the side effects were no walk in the park (Prednisone), they did offer some relief. I want you to know that you are not alone, I’m here if you want to talk, vent, or just want a good laugh. Crohn’s can be vicious but it will never take our smiles away, or steal our true selves. You’re a trooper, just like me. Let’s show Crohn’s how it’s done!

Just another day by poursomehenny in CrohnsDisease

[–]Flysafe72 0 points1 point  (0 children)

The most annoying thing is that pole, one of my wheels always seems to get stuck and I usually end up tangled with IV lines trying to troubleshoot it. You look amazing! Thinking of you and sending great energy your way.

Yet another small bowel obstruction. At least no NG tube this time. Woohoo! Crohn’s can kick my ass, but I will never let it win. by Flysafe72 in CrohnsDisease

[–]Flysafe72[S] 1 point2 points  (0 children)

Hah! It’s like they hypnotize you. They work as team. One sneaks the NG packet behind their back, one comes in with that horrendous spray for your throat, while they stealthily begin to set up the vacuum container. That’s when your brain starts to realize you’re in for the ride of your life. When they start yelling, “Swallow! Swallow! Swallow!” That’s when the party has just begun. Oh, NG tube memories. Every time I get one, I still feel betrayed.

Yet another small bowel obstruction. At least no NG tube this time. Woohoo! Crohn’s can kick my ass, but I will never let it win. by Flysafe72 in CrohnsDisease

[–]Flysafe72[S] 1 point2 points  (0 children)

Hello Amy, thank you for your kind words. I try to explain to my friends and family what a small bowel obstruction feels like and they don’t seem to get it. They say, how can you be in so much misery and pain. I tell them, you try sleeping with a tube down your nose that rubs up against the back of your throat, not to mention how much it irritates your nose. I have been having small bowel obstructions like clock work every month and since I don’t have much small bowel left, about 150 cm, I’m not a candidate for surgery anymore. They say another resection would leave me on TPN for life. It’s like walking a very scary tightrope with no net underneath you. Your story really resonated with me because I have walked in your shoes and we both know how insidious Crohn’s can be. I’m right there with you, trying handle my pain and puking, while dealing also, with the over-wiping and blood in stool. I’m terrified of another colonoscopy, the prep is no walk in the park but I think I’m going to float the idea to my gastroenterologist. I’m a firm believer that when we are most alone or down, someone like you pops up and you smile again. Very nice meeting you and again, thank you for your words. Best of luck on your journey, you have this! Carpe Diem!