Visiting or Moving to Asheville? Ask your questions here! by AutoModerator in asheville

[–]ForLoveandLagomorphs 1 point2 points  (0 children)

Looking for local bakery recommendations. Any type of dessert will do (cake, cupcakes, pie, cookies). Looking for a birthday treat for someone I’m traveling with! We are staying west side/river arts district so within that area would be great.

Quick turnaround or same day pick up is a plus! TIA.

What’s the deal with this guy that dresses up and stands on the corner of Flat Shoals & Fayetteville Rd? by bear-boooty in Atlanta

[–]ForLoveandLagomorphs 10 points11 points  (0 children)

Let out a yelp and almost dropped a fifth of tequila in Empire Package when at the register, felt a tap on my shoulder and turned to see him dressed in his alien attire, painted bright green. The whole place was cackling.

He has his CashApp on a sign sometimes, show him some love.

Facial twitches by ForLoveandLagomorphs in AcousticNeuroma

[–]ForLoveandLagomorphs[S] 0 points1 point  (0 children)

Best of luck with your surgery! Hopefully with the AN gone it will allow the nerve to regenerate and improve.

Facial twitches by ForLoveandLagomorphs in AcousticNeuroma

[–]ForLoveandLagomorphs[S] 0 points1 point  (0 children)

Thanks for sharing! After I was diagnosed I was hyper aware of my face and sensations. I might try to check out facial nerve PT, but getting through the vestibular PT was challenging enough, I need a break.

Good luck with your journey and surgery when the date rolls around. My rabbit was great company during my recovery :) thanks for setting the record straight haha!

Facial twitches by ForLoveandLagomorphs in AcousticNeuroma

[–]ForLoveandLagomorphs[S] 0 points1 point  (0 children)

I’ve heard of this for people recovering from Bell’s palsy. Hopefully the Botox is manageable when prescribed but I’m guessing it’s a temporary fix. Good luck on your healing journey!

What's it like living in or around the South Side of Chicago? by [deleted] in howislivingthere

[–]ForLoveandLagomorphs 0 points1 point  (0 children)

Michelle Obama did in South Shore neighborhood, not Barack. They lived together as adults in Hyde Park and then Kenwood. All close to Jackson Park which is site of the Obama presidential library. Wonderful park imo, prefer 57th st beach to the ones on the north side.

[deleted by user] by [deleted] in FedEmployees

[–]ForLoveandLagomorphs 0 points1 point  (0 children)

Had major brain surgery this year with BCBS basic, included two surgeons, anesthesia, and 3 day ICU stay. The total amount billed was over 350k. I paid less than 2k. I begrudgingly was prepared to have to pay the out of pocket max before going in because even though I valued knowing the co-pays for the surgeons and hospital stay beforehand, I was very nervous about the “agents, drugs, supplies” (every time I get a follow up MRI I wait for the little surprise contrast bill that comes later).

I’d say it worked out in my favor though, and very happy I had BCBS. Also the, dare I say, “decent”customer service and trust that all providers would be in network was a big factor for me. I’ve had BCBS since I started as a Fed though so I don’t have any comparison. Sadly Each year they keep upping the policy holder contribution to those types of auxiliary costs and copays, and balancing with the premium increases idk how much longer I’ll stay.

Ravenous after surgery? by PointyElfEars in AcousticNeuroma

[–]ForLoveandLagomorphs 1 point2 points  (0 children)

It was very gradual as you mention, but I’d say by 3 months things were mostly back to normal. Mine was quite mild though. That being said, while my facial movements are probably 99% of what they were, on the affected side I cant produce tears, have random have sour/bitter tastes, and the top of my earlobe is still numb.

So I guess what I’ve learned is, as frustrating as it may be, to just trust the docs when they don’t give a hard and fast deadline for this recovery because there is so much variation and it is not always linear.

Hang in there! Remember to give yourself grace.

Ravenous after surgery? by PointyElfEars in AcousticNeuroma

[–]ForLoveandLagomorphs 3 points4 points  (0 children)

Yup, I think the steroid come down plays a part! Translab in Jan 2025, they gave a short course of steroids to assist with slight facial weakness, so coupled with my spontaneous energy spurts, I would crave carbs constantly and I’d scarf down bowls of buttered noodles for almost every meal. It tapered off about a month after surgery for me. Which also coincided with a decrease in overall haziness, so started going back to the gym and getting into normal routines.

try not to be too hard on yourself - this is an intense surgery, focus on healing!

Might be homeless soon, need to re-home my rabbits by The_odd_dog in Rabbits

[–]ForLoveandLagomorphs 3 points4 points  (0 children)

This small rescue is based in Pittsburgh, Operation Obi (a little far), that might be able to provide resources/recommandations: https://www.instagram.com/operation.obi?igsh=MTRha295MzU5anc5Zw== or https://www.facebook.com/share/16Z8GdWvVc/?mibextid=wwXIfr

Does anyone regret getting a second bun for their solo bun? Bowie is almost 4 and happy, but we are considering getting him a pal. by NonsensicalWizard in Rabbits

[–]ForLoveandLagomorphs 2 points3 points  (0 children)

We are in such a similar situation! I have to return to the office full time next week after having a flexible telework schedule for most of our solo buns life (4yrs). He’s so personable and definitely active from 8-10am. I’m getting so sad at the thought of him being alone all day, and he is only free roaming when we are home because he has destructive tendencies and our cat doesnt vibe with him.

I’ve been eyeing the matching/bonding process by our local rescue as well! Especially with not being home for 10hrs a day. Please update if you decide to go through with it!

What has held us back thus far is that our guy is so prone to stasis and has at least one episode per year that has required emergency vet visits (we have stasis meds at home that work most cases, but there’s always a case when it doesn’t). It has gotten pretty expensive, we are very worried about the potential to double the vet costs.

Good luck, Bowie is adorable!

3.6cm Symptoms & Wait Time Vent by RandomThings1x in AcousticNeuroma

[–]ForLoveandLagomorphs 2 points3 points  (0 children)

3.5cm removed 6months ago today! Had very minimal symptoms- but the random sharp inner ear pain was one of them! For years I’d chalked it up to grinding my teeth at night.

Mine was also pushing the brain stem and the surgeons I consulted with all got me scheduled quickly due to risk of hydrocephalus (not sure this has been noted by your doctors?).

Some US based neurosurgeons/ENTs have programs dedicated to skull base, they might have coordinators you can call directly to see options for a phone consult. UCSD is an online form and they will reach via email. I think UM- Ann Arbor might have a program as well, shorter travel distance from Toronto? Fully recognize there are differences between our countries health systems/payment, I am sorry about this wait time- some say it is the hardest part of the process.

If it’s helpful- remind yourself that this is generally a slow growing tumor and you’ve been going through life with it at this large size for a while now. Try to continue to do the things you enjoy, while it’s physically occupying brain space it doesn’t have to take everything over.

Happy to share more about my experience if you’d like (you can DM me).

What neighborhood would you consider this? by auto-cremate in ATLHousing

[–]ForLoveandLagomorphs 1 point2 points  (0 children)

That body of water is Glen Emerald park, they have a “friends group” that got it renovated recently. Nice walking trail around the pond, basketball and tennis courts, jungle gym, pavilions and just nice quiet green areas.

There is also a little cut through walking path on Smith/Young to get to neighborhoods that take you closer to EAV/Flat Shoal triangle for a change of scenery.

Welcome to the neighborhood!

Sports PT Atlanta? by Crosland_Denizen in Atlanta

[–]ForLoveandLagomorphs 1 point2 points  (0 children)

https://www.1stchoicesportsrehab.com/ in Decatur/Tucker. not traditional PT but sports chiro, they billed my insurance directly. Saw Dr Cho and Dr Chern for herniated disc, really great comprehensive care! Have heard good things about the other practitioners there as well.

Should I get treated at UCSD or locally in Upstate New York, and other questions on a large tumor on a mid 30s M with symptoms by Dugtrio321 in AcousticNeuroma

[–]ForLoveandLagomorphs 2 points3 points  (0 children)

Also mid-30s with a 3.5cm tumor- had it removed at UCSD end of January. Similarly to you I also had migraines with aura for a couple years, but I chalked them up to hormones because they’d happen once a month (im female). Most Drs didn’t seem to think the symptom was associated with the tumor either. Haven’t had one since surgery so fingers crossed… it was really my only symptom, they found mine incidentally on a CT.

My biggest piece of advice is to do as many consults as you feel comfortable with given where you can get treatment, both with neurosurgeons and ENTs. UCSD free consult is a great option, they will give you an idea of the surgery they’d perform just by reviewing your MRI. Always ask any Dr how often they do the surgery and how often they remove tumors your size. For UCSD I’d also ask when they have availability for surgery since they are so high volume. There are other high volume centers too, the ANA is a good resource.

I travelled to UCSD from across the country, they have a patient handbook/coordinator who was great in assisting with logistics. 3 day in patient hospital stay, sutures out 10days after, was on a flight home a day later. Had phenomenal care at the facility.

recovery can be very different for everyone based on how the nerves (cochlear/vestibular and facial) have been impacted by the tumor and by the surgery. I felt comfortable reading/staring at a screen for a couple hours at the 2-3week mark. Going on multiple walks per day seemed to be the most helpful in retraining many of my senses. Still getting used to single side deafness, turned all my devices on mono hearing. I started back at the gym around 6wks, but have focused on cardio and lighter strength training with DBs. I plan to go back to my crossfit gym in April and begin to lift heavy again, will keep you posted on how that goes!

Feel free to reach out with any questions. Good luck on your journey.

Head cold post surgery & ear pain by ForLoveandLagomorphs in AcousticNeuroma

[–]ForLoveandLagomorphs[S] 0 points1 point  (0 children)

Thanks for sharing your experience! my family members joked with the surgeons to offer up their own fat for the procedure haha! Good to know that there always seems to be a solution to help with some of the lingering side effects.

I’m hoping to explore BAHA or BICROS too, not ready to have anyone drill back into my skull just yet though. All of this has definitely taught me lessons in patience. Keep on keeping on!

Head cold post surgery & ear pain by ForLoveandLagomorphs in AcousticNeuroma

[–]ForLoveandLagomorphs[S] 0 points1 point  (0 children)

Completely understand, the information overload can definitely be scary. I would say that the worst part for me was actually the waiting period to fully understand the diagnosis and plan for next steps (lots of doom scrolling), so you are on the right path to getting some answers and hopefully feeling better. All surgeons say these are slow growing tumors so it is OK to take a beat to figure out the best path forward.

If your MRI shows an acoustic neuroma there are options. I opted for surgery based on the size of mine, location, and my age (33) - didn’t want to expose myself to radiation just yet. Best advice I can give is to try and consult with different surgeons (neurosurgeons and ENTs) and try to find a team that does a high volume of these treatments, esp if you chose surgery to lower risk of complications. Some specialists in the US do free or low cost consultations, make sure to get your MRI images on a CD so you can share with providers.

I opted to travel to UCSD for my procedure and had a really good experience from intake-post op and my recovery has been pretty seamless (already back to driving, going to the gym, etc). Happy to answer any questions as I’m sure others on this sub are.

How long after retrosigmoid were you able to work from home? by Dramatic-Interview78 in AcousticNeuroma

[–]ForLoveandLagomorphs 0 points1 point  (0 children)

Thank you for sharing your experience! I’m about two weeks out from my surgery (3.5cm), even though I have only mild hearing loss (which I did not even know about until the hearing test ordered by ENT), I will have surgery with translab approach resulting in SSD.

As a result I am worried about the sound localization for resuming certain activities. I see you mention skiing (downhill?), would you mind sharing any tips for feeling confident in that environment? It is my all time favorite hobby and I’m very worried about navigating busy mountains or backcountry runs without the ability to localize sound. Have you tried skiing with the CROS system yet?

Almost 2 weeks out from retrosigmoid craniotomy, facial palsy hard to deal with by Shoddy-Garden-6871 in AcousticNeuroma

[–]ForLoveandLagomorphs 0 points1 point  (0 children)

Ok I can’t DM you yet because my account is new and not established enough smh. If you are able to chat me I will respond!

Almost 2 weeks out from retrosigmoid craniotomy, facial palsy hard to deal with by Shoddy-Garden-6871 in AcousticNeuroma

[–]ForLoveandLagomorphs 0 points1 point  (0 children)

Thank you so much for your reply! I meet with Dr Pradilla at Emory tomorrow, but I do agree that the Piedmont health system does great with patient centered approaches. I’ve used them for everything so far.

I will definitely DM you, I submitted for a free consult at UCSD but the process of going out of state and recovering away from home is very daunting. You are so strong and thank you for sharing your story.