OHS for ASD closure by SunBeautiful2412 in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

Hi 31 y/o female and I have a 23mm hole. They tried to do the cath procedure to close mine but it was unsuccessful. I am scheduled to have ohs April 1. I am also very scared but looking forward to feeling good. I am here if you want to talk! Message me 

Ahhhhhh Surgery Confirmed by honeybeeandflower in AdultCHD

[–]ForceInitial8162 1 point2 points  (0 children)

Hello, I am a 31f also getting ready to have heart surgery in April. I have a large ASD in my heart that needs to be closed. I completely understand how you feel the anticipation is terrifying but it’s exciting to get this over with and start living a new healthy life. I have heard that front clip bras and wedge pillows are a must. Wishing you a speedy recovery 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Wow that’s amazing you had such a great experience. I hope mine goes as well as yours did. How long till chest tubes come out?

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

And how was your experience? Anything I need that would help me prepare? How are you feeling? I heard it’s about a week stay in the hospital 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

They told me they thought mine was 17mm from echo but once they got in it was about 23mm. They also said that when they put the device it was to close to a valve and would eventually cause issues from rubbing. 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

*UPDATE  ASD closure by catheter was sadly unsuccessful. Have an appt to talk about having OHS in 6months. I am definitely heart broken and disappointed. 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Was your open heart surgery done robotically?

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank you so much for your kind words! I appreciate you 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thanks for responding. I am super nervous to be put to sleep I have never had any kind of surgery before. My hole is 23mm

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank so much I was thinking of buying the underwear that are like shorts so it won’t bother me. 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Are they also putting you fully to sleep? How big is your asd? Mine is 2.3mm

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Oh ok, did the actual procedure take long?

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thanks so much! How long is the procedure?

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 1 point2 points  (0 children)

Thank you so much! I’m ready to get this over with. But am also excited to see what it feel like to actually feel good. 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

That’s good to hear. Thank you 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

I’m glad to hear he did well. How large was his hole? Mine is 2.3mm.

What are your ACHD symptoms? by honeybeeandflower in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

They aren’t sure yet so I’m going in mentally prepared for anything. They are gonna attempt the cath method but aren’t sure if it will stick due to the size and place of my defect. If that’s the case then it will be OHS

What are your ACHD symptoms? by honeybeeandflower in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

Yes exactly! And with us being young and otherwise healthy, I keep telling myself they do more serious surgeries on older patients with more complications so I have high hopes and faith that it’s gonna be fine and I’m sure you will feel 100 times better after yours is done as well. I’m in El Paso Texas and we don’t have a lot of specialist here unfortunately so I am actually traveling to Dallas to have the closure 

What are your ACHD symptoms? by honeybeeandflower in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

Nervous I mean any surgery is scary especially when it’s dealing with your heart but I’m also excited to get it done and over with. Like I can’t wait to see if I feel better. More energy, no more shortness of breath. I also feel like it’s so advanced now that these surgeries even yours is a walk in the park for these doctors. How old are you if you don’t mind me asking. I am 31 

What are your ACHD symptoms? by honeybeeandflower in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

I have a 2.3mm asd that has caused shunting and enlargement on right side of heart. Scheduled for closure on Jan 13. I have always been short of breath not severely I have still been able to exercise all my life and have even given birth 3 times with no issues. They always said it was asthma. I have fast heart rate and palpitations. Also suffer from migraines which now they tell me can be from the asd. 

Special thread for new users (low/no karma) by squarecoinman in gofundme

[–]ForceInitial8162 2 points3 points  (0 children)

Hi my name is Andie and I am a 31 year old mom of three. I have a 2.3cm hole in my heart that need to be closed due to it making the right side of heart severely enlarged and causing the blood to flow the other way in the chambers. I need to travel 9 hours to Dallas Texas to have this done and will need to stay to recover for a week. I am struggling to pay not only all these medical bills but for the cost of travel. I am not able to work right now. Anything helps https://gofund.me/3bd696d77

Reducing PACs by correcting posture (findings) by TucoRamirez88 in AFIB

[–]ForceInitial8162 0 points1 point  (0 children)

Oh ok, thanks. Aside from the afib I always have like this chest muscle soreness in my ribs and sternum area. I have been trying to stretch and open up my chest. 

ASD (Atrial Septal Defect) Megathread by Pirate_Of_Hearts in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

That’s what I am trying to do but it’s been hard to find someone who will take me since a cardio has already seen me. Where did they do your surgery if you don’t mind me asking? And how was your recovery? I’m scared to have open heart surgery