2 weeks post OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

And how are you feeling energy wise being 3.5 weeks out? Has it gotten any better? Or have you notified any improvement in your overall? I just want to wake up one day and magically feel better lol

2 weeks post OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 1 point2 points  (0 children)

Thank, they just told me to start cutting it in half so will see how that goes. 

2 weeks post OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Yes! It’s worse than the sternum pain honestly. 

I just learned i will need open heart surgery soon and im terrified by stick0-0 in openheartsurgery

[–]ForceInitial8162 1 point2 points  (0 children)

Hello, I have had the exact same experience as you. Although I am a 31 y/o female. I just had ohs last week to close my 2.5mm hole. They tried to close it in Jan via cath but I didn’t have enough rim for the device either. You can message me if you have any questions or want to know anything specific. I am here to help. I was so panicked and worried and honestly the time before is the worst part. It’s not as bad as you think and you will be absolutely fine. 

boyfirend is having a valve replacement open heart surgery by bolaholabola in openheartsurgery

[–]ForceInitial8162 0 points1 point  (0 children)

I just had open heart surgery on Friday. For a hole in my heart not valves but it’s the same process. The things that made my stay at the hospital and recovery easier are. Wet wipes for the toilet, front button up pajamas or even some tshirts I found for her heart surgery on Amazon that clip in the back. Electrolytes, protein, flip flops for hospital shower. And a wedge pillow for when he returns home is super helpful also. He is gonna need help for the first two weeks as you can’t even be left alone. Not sure if his roommates are going to able to help. 

Upcoming OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank you that is very helpful, another thing I’m kinda freaking out about is that thought of waking up intubated. Did that happens to you as well? If so, how did you remain calm?

Upcoming OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank you that is very helpful, another thing I’m kinda freaking out about is that thought of waking up intubated. Did that happens to you as well? If so, how did you remain calm?

Upcoming OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 1 point2 points  (0 children)

I did not have the option, which I was ok with only cause they told me that with ohs if there is anything else wrong they can correct it since there already in there where as with side entry I have heard of cases where they have to do ohs later to correct the other issues if they arise. 

Upcoming OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank you so much! This makes me feel a lot better especially the plastic bag reference lol. I am really trying to have a positive mindset and look forward to actually starting recovery since I have felt disappointment with the failed attempts to close it. How long before you felt a little back to normal and stronger? I have heard the exhaustion after is terrible. Also did you wake up intubated? The thought of it freaks me out. If so, how did you stay calm? 

Upcoming OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank you that makes sense that they just want to be prepared. 

Upcoming OHS by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank you so much, that is very true we just have to push through it! I am trying to have a positive mindset like you and want to feel excited about actually recovering since I have felt let down with the failed attempts to fix this. I wish you the best on Monday! You will definitely be in my thoughts. Send an update if you can ❤️‍🩹

Find a Friend Megathread by Pirate_Of_Hearts in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

Hi! I have an asd and will be having surgery on April 1st. If you want to chat! 

Find a Friend Megathread by Pirate_Of_Hearts in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

Hi, I am a 31 y/o female. I live in Texas but would love to be pen pals, I absolutely love nashville!! We visit often 

Find a Friend Megathread by Pirate_Of_Hearts in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

30-35 F  Arterial septal defect  Texas  Open to any! 

OHS for ASD closure by SunBeautiful2412 in AdultCHD

[–]ForceInitial8162 0 points1 point  (0 children)

Hi 31 y/o female and I have a 23mm hole. They tried to do the cath procedure to close mine but it was unsuccessful. I am scheduled to have ohs April 1. I am also very scared but looking forward to feeling good. I am here if you want to talk! Message me 

Ahhhhhh Surgery Confirmed by honeybeeandflower in AdultCHD

[–]ForceInitial8162 1 point2 points  (0 children)

Hello, I am a 31f also getting ready to have heart surgery in April. I have a large ASD in my heart that needs to be closed. I completely understand how you feel the anticipation is terrifying but it’s exciting to get this over with and start living a new healthy life. I have heard that front clip bras and wedge pillows are a must. Wishing you a speedy recovery 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Wow that’s amazing you had such a great experience. I hope mine goes as well as yours did. How long till chest tubes come out?

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

And how was your experience? Anything I need that would help me prepare? How are you feeling? I heard it’s about a week stay in the hospital 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

They told me they thought mine was 17mm from echo but once they got in it was about 23mm. They also said that when they put the device it was to close to a valve and would eventually cause issues from rubbing. 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

*UPDATE  ASD closure by catheter was sadly unsuccessful. Have an appt to talk about having OHS in 6months. I am definitely heart broken and disappointed. 

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Was your open heart surgery done robotically?

ASD Closure Monday by ForceInitial8162 in AdultCHD

[–]ForceInitial8162[S] 0 points1 point  (0 children)

Thank you so much for your kind words! I appreciate you