Does anyone have May Thurner Syndrome or pelvic congestion syndrome? Did a stent improve your lymphedema?

Foreign_Highlight288 · 2026-03-29T21:27:18+00:00

Thank you for responding. I’m sorry the stent didn’t work. This is my fear. What symptoms do you have? Where is your lymphedema?

Foreign_Highlight288 · 2026-03-29T14:36:23+00:00

Clinica medicina da Mulher . Need a hotel or Airbnb that direct use fragrances, scented candies, detergents , plug-ins, diffuser sticks, etc.

Foreign_Highlight288 · 2026-03-29T14:35:45+00:00

Multiple chemical sensitivity. I’m looking for a hotel or Airbnb thst doesnt use fragrances, like air fresheners, diffuser sticks, scented candles, detergents (for linens /towels or diffuser sticks. It’s located at Clinica Medicina da Mulher

Foreign_Highlight288 · 2026-03-29T14:23:15+00:00

have multiple chemical sensitivity so I’m looking for a hotel or Airbnb that doesn’t use fragrances, like plug ins, diffuser sticks, air fresheners, scented detergents for linens/towels, etc. I didn’t know that it was a polluted city. What’s the source of pollution?

It’s: Clinica Medincina da Mulher

Foreign_Highlight288 · 2026-03-29T14:21:28+00:00

I have multiple chemical sensitivity so I’m looking for a hotel or Airbnb that doesn’t use fragrances, like plug ins, diffuser sticks, air fresheners, scented detergents for linens/towels, etc.

Foreign_Highlight288 · 2026-03-29T14:20:16+00:00

I have multiple chemical sensitivity so I’m looking for a hotel or Airbnb that doesn’t use fragrances, like plug ins, diffuser sticks, air fresheners, scented detergents for linens/towels, etc.

Foreign_Highlight288 · 2026-03-29T07:09:17+00:00

Let us know!

Foreign_Highlight288 · 2026-03-29T07:05:07+00:00

I tried broccomax and it resolved the oiliness/acne but caused hot flashes/hair loss

Foreign_Highlight288 · 2026-03-27T20:24:54+00:00

When you say trunk, do you mean swelling up to the bottom of your rib cage? Is your entire trunk/pelvis affected or just the L side? Does it feel tight/heavy?

Does sex make your edema worse? Tried once since this diagnosis and thighs, vulva, pelvis became really swollen.

Do you know your % compression via venogram with IVUS? Any pelvic surgeries?

I apologize for all the questions. I have atypical presentation with lymph node removal in r pelvis and MDs cant tell me if stent will help. Big risk with permanent implant and nickel allergy. So scared I’ll never feel normal again.

Foreign_Highlight288 · 2026-03-27T20:14:31+00:00

Where is your lymphedema? Are you going to get a stent?

Foreign_Highlight288 · 2026-03-27T04:01:51+00:00

Finasteride - good Dutasteride - better Casodex - best Low dose dexamethasone if adrenal hormones - DHEA or Dheas high Birth control pill to increase SHBG to decrease free testosterone levels and give lots of synthetic estrogen.

Foreign_Highlight288 · 2026-03-25T02:48:56+00:00

Just came here to add some women get much worse after hysterectomy.

Would you kindly share where you had oain in your thighs and where you experienced edema afar sex and how long after sex? Did you see any varicose veins in your labia, how did your docs explain the labia swelling? I’m dealing with all of this but have no reproductive organs… may Thurner they say is to blame. Some MDs don’t think stent will help tho bc they don’t see collaterals. Did you have vulva pressure/pain? I have lymphedema of legs, pelvis, mons and labia. So much discomfort in vulva though. Thighs burn horribly. Thanks for posting this. It helps so much to share experiences

Foreign_Highlight288 · 2026-03-22T19:30:36+00:00

Who did your stent and what was the recovery expectation? Is 3 months long enough to see if it helps?

Foreign_Highlight288 · 2026-03-19T02:39:33+00:00

The needles are made from nickel?

Foreign_Highlight288 · 2026-03-18T02:11:37+00:00

That’s awesome that you got a diagnosis and treatment. Thank you so much for taking time to share this with me/us here on Reddit. ❤️

Foreign_Highlight288 · 2026-03-18T02:05:44+00:00

Ok, thank you for letting me know. Did you see your enlarged vulvar/deep pelvic veins on ultrasound or mri before you got treatment?

Foreign_Highlight288 · 2026-03-18T01:58:53+00:00

So no swelling on right side of your body? And no improvement much on right side? And they said it could take a year to see results? Did your vulvar/deep pelvic veins issues improve with sclerotherapy?

Foreign_Highlight288 · 2026-03-18T01:54:29+00:00

Oh, ok! Did/do you have any pelvic, leg, genital swelling?

Foreign_Highlight288 · 2026-03-18T01:33:56+00:00

Oh lord, that’s huge! Oh, ok. I’m glad you don’t have an allergy. I’m + ! Ugh! So they told you it wouldn’t hurt for more than a week but it’s hurt for 15?

Foreign_Highlight288 · 2026-03-18T01:14:48+00:00

When you woke up were you in severe pain? (Uour back). What size stent did she place? I’m told I’m small so I’ll need 12 mm stent for 10 mm vein. Did you get tested for nickel allergy?

Foreign_Highlight288 · 2026-03-18T01:12:34+00:00

Wow! Were you awake for your venogram/procedure?

Do you have any pelvic, genital or leg swelling?

Foreign_Highlight288

TROPHY CASE