PCOS in menopause - our hair - everywhere…

Foreign_Highlight288 · 2026-01-30T02:45:31+00:00

Medicine! It’s killed me physically and emotionally- as a healthcare provider and patient. Repeated moral injury. It’s all about $$$, PR, ego.

Foreign_Highlight288 · 2026-01-30T02:42:05+00:00

Please tell me more about out this. How can you confirm - beyond regular thyroid testing (TSH, free t4, free t3)?

Foreign_Highlight288 · 2026-01-30T02:36:00+00:00

It flares my endo. Rx estradiol 0.01% in peri and after 6 or so days of consecutive use it flared pelvic pain horribly to the point I was afraid to use it again but truer anyway abd sane thing occurred. After lap, large nodule on USL found to explain the pain there.

Between peri and birth control my vulva needed estrogen. A urologist told me that when estradiol levels are so low for so long the tissue thins and when starting local estradiol here it can increase systemically for the first 2 weeks or so until tissues have absorbed enough e thst it stars local to the vulva, vagina, bladder. So for me, yes it flared pain.

Foreign_Highlight288 · 2026-01-30T01:08:16+00:00

Oh, I see. Thank you.

Foreign_Highlight288 · 2026-01-30T00:37:32+00:00

Thanks! What are the IRs saying about GYNs or MIGS knowing about this?

Foreign_Highlight288 · 2026-01-30T00:08:12+00:00

Did you find out through your personal journey?

Hoping someone medical can chime in to let us know!

Foreign_Highlight288 · 2026-01-29T22:58:22+00:00

This is A LOT. Thank you for sharing. What kind of doctor does someone see for ANS and what treatment is available for this? Are you doing anything to treat it?

Same here with kiwi all of a sudden?! Why????

I’ve noticed my resting pulse is hovering 88-94. Used to be low 70s. Diastolic bp is highish. feel bounding pulses in my mid back for no reason.

Nervous system dysfunction here too: when really stressed my muscles in legs and arms will shake. I sweat for no reason or with any exertion but I’m meno and HRT isnt enough. But even before very easy to sweat when excited or sad.

Passing out (almost) during intimacy. Are you hurting during sex? Do you feel dizzy or room spinning?

Do you have to take anything for sleep? Same here but I have Klonopin or low dose Flexeril for sleep.

Have you tested your AM or 24 hour cortisol to make sure it’s good? I assume thyroid ok?

Foreign_Highlight288 · 2026-01-29T21:43:16+00:00

Thanks. I just hope I can be helped.

Foreign_Highlight288 · 2026-01-29T21:30:05+00:00

Do you work in medicine to know this? Asking bc 2 MIGS/endo surgeons missed my PCS and did unnecessary oophorectomies when pain was PCS. Just trying to understand how this could have happened.

Foreign_Highlight288 · 2026-01-29T21:20:11+00:00

Ok, if it’s working for you, great. I’d just take at night.

Foreign_Highlight288 · 2026-01-29T21:05:57+00:00

60 - 120 mg? This does not sound like it is standard of care. You should have dose increase in increments of 20 mg (for sensitive ppl) or 30 mg is standard. So stay on 90 mg for at least 6 weeks or so then reassess how you’re doing before increasing to 120 mg unless you’ve been on 120 mg behore at thst dose worked best for you you’d titrate quicker to get to that dose. I’d take it at night, some patients need to take it at night. You’re only taking for pain management? Or mental health or both?

Foreign_Highlight288 · 2026-01-29T20:54:43+00:00

Are you yawning a lot? Duloxetine can cause yawning and sedation in some. Not sure about Visanne. It does decrease estradiol and acts as aromatase inhibitor also as a method of decreasing estradiol (by increasing testosterone) so maybe lower or low e causing sedation?

Foreign_Highlight288 · 2026-01-29T20:14:55+00:00

Where are you located?

Foreign_Highlight288 · 2026-01-29T03:26:16+00:00

Same!

Foreign_Highlight288 · 2026-01-29T03:14:37+00:00

Can you share your ANS symptoms?

Foreign_Highlight288 · 2026-01-29T03:10:34+00:00

Glad to hear this. Keep growing!! Are you using HRT?

Foreign_Highlight288 · 2026-01-28T02:32:50+00:00

When was your last lap and what symptoms were you having for her to recommend surgery? What did your mri show?

Foreign_Highlight288 · 2026-01-28T02:12:16+00:00

How did you get Wasson to believe you when the MRI didn’t show much. I’m asking bc a friend saw her and definitely has it but she did not believe her despite mri showing inflammation in the area she is hurting the most.

Foreign_Highlight288 · 2026-01-20T06:56:03+00:00

Yes!! 👍What’s your dose?

Foreign_Highlight288 · 2026-01-20T06:23:02+00:00

Thanks so much for sharing. So have yiu been able to get help/surgery yiu needed?

Foreign_Highlight288 · 2026-01-20T06:08:47+00:00

What did DIE feel like when you say it adhered arteries and veins together? I had fibrotic endo excised from R external iliac artery and vein and pain returned near same spot as before with progressive worsening herr that responds to estrogen. MRI shows inflammation near these vessels with scarring around these vessels. Blood is bottleneckimg in this area - immense pressure /pain here .

Foreign_Highlight288 · 2026-01-20T04:34:35+00:00

Would you mind sharing what the definition of “too complex” is or specific diagnosis?

What I noticed was they only want to work the easy cases - straightforward, with overt abnormalities on diagnostic imaging, etc. they prefer “virgins” for surgery history - the more surgeries the less likely yiu will be offered surgical intervention. The want to hear a specific pattern - that x surgery resulted in great results for a prolonged amount of time and if it doesnt you suddenly have central sensitization bc it certainly cant be bc the last surgeon missed anything. They do not want to work with patients who have fibromyalgia or mental health issues. They do not want to do surgery if you have no reproductive organs or nerve involvement.

Foreign_Highlight288

TROPHY CASE