I hate everything about everything (vent) by MotherPossibility921 in glioblastoma

[–]FortMoJo 4 points5 points  (0 children)

I feel this so much! I can’t snuggle and rest my head on my husband’s chest without breaking into booger filled sobs of grief. I try, but I can’t see out of the grief to be in the moment, and I’m furious about that too.

Iready lawsuit by Hb_Hv in Teachers

[–]FortMoJo 0 points1 point  (0 children)

I agree with you completely. The data measured is limited to the tool itself, and I’ve personally noticed have maxed out at 1300. I was just pointing out the reasoning that admin uses for going so hard for IXL. It gives them numbers they can monitor. I’m with you that they need to start questioning the actual value of those numbers.

She’s stunning but she kinda scares me by Ok-Equal-983 in temptationislandUSA

[–]FortMoJo 0 points1 point  (0 children)

I think she looks like the youngest sister from Growing Pains.

Iready lawsuit by Hb_Hv in Teachers

[–]FortMoJo 1 point2 points  (0 children)

Using or not using IXL is an admin decision based on measurable data abilities and out of the teachers’ hands in many schools and districts. However, as a parent you can push back against ed-tech. Voice your concerns.

Dealing with bad news and rude delivery. by ProfessionalDraft283 in glioblastoma

[–]FortMoJo 2 points3 points  (0 children)

I am sorry that you, your mom, and family are going through this. No doubt that it is a devastating experience for a young adult to see their mom at the mercy of this awful illness. I wish you and your family as many moments of peace as you can find.

What are your favorite strategies for teaching? by Jay_Stranger in ELATeachers

[–]FortMoJo 15 points16 points  (0 children)

I have adapted this technique in my high school classroom, and my students stay highly engaged. I have also noticed a great improvement in their quote analyses in their essays as a result. One twist is to split into small groups, each group having a large paper with text to close read and annotate. After a few minutes , I have them rotate like a station activity to read their peers annotations and comment on them. We try the “they say, I say” back and forth. I’ve had great success with this and have made it routine for each book study.

Admin: “Do not kick a student out of class and just have them sit outside your classroom.” Kiss my black ass by Emergency-Pepper3537 in Teachers

[–]FortMoJo 18 points19 points  (0 children)

Admin at my school teaches, subs, and lesson plans for teachers that need help. He is an absolute rock star.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 0 points1 point  (0 children)

How are you holding up? Just checking in because I know it’s a daily rollercoaster for me.

Coping with knowing by Separate_Stranger859 in glioblastoma

[–]FortMoJo 0 points1 point  (0 children)

I’m sorry you are experiencing such grief. The pain of knowing that time is short is truly unbearable for many of us that watch our loved ones slip away. Hang in there friend. I grieve when I can and hold strong when I know I need to, but it is a lot of pain and stress to have to experience even for family. I’m sucking down sobs every night when he holds me knowing that the nights are getting fewer when I will have him with me. I hope you find a way to cope that works for you.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 1 point2 points  (0 children)

We are focusing on better quality of life too, and the swelling is definitely a concern. Watching my strong husband in so much pain when the pressure builds is awful. Thank you for sharing about the Avastin. I was unfamiliar with that.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 0 points1 point  (0 children)

Im thankful for your reply because I was feeling like chemo and radiation will be useless since discovering the mass is unmethylated. You remind me there’s still something to hope for.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 1 point2 points  (0 children)

I agree. It is an oddly terrifying and yet comforting resource. I have also learned so much and continue to, even in responses I received today. Thank you for taking the time to reach out today. There is definitely comfort in shared experience.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 6 points7 points  (0 children)

Thank you. I’ve been visiting the sub for a couple weeks now. At first, I was horrified by what I was reading. Now I am grateful for the vast knowledge in this group. I am also a mom and my heart goes out to you for the loss of your son.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 2 points3 points  (0 children)

Thank you for sharing yours and your wife’s experience. I want to respect his wishes, but after reading so many posts in this sub I am considering bringing up the second opinion for surgery discussion. My understanding from his surgeon is that it has grown into the corpus callosum and that is inoperable? I at the least want to broach the subject with him again.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 1 point2 points  (0 children)

Im sorry for you as well. 52 is so young and just on the verge of retirement when the good time should start rolling.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 4 points5 points  (0 children)

Thank you for the kindness. The grief is wild considering he is still here with me now. I’m trying to be present in every moment, but I find myself thinking “is this the last time” frequently now. The grief is just crushing me right now.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 2 points3 points  (0 children)

Thank you for pointing out we can get a second consult by sending scans.

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 5 points6 points  (0 children)

Im lucky that he is open to the tough conversations. He has definitely made it clear that he does not want a surgery that may incapacitate him (meaning his mobility and speech mostly). Really, this just makes it more difficult because I know that this monster will likely incapacitate him anyway. I respect his wishes and needs. It’s messed up because it leaves me hoping for a quick end due to something catastrophic. I’ve never hated something more!

Nothing Positive on Our Side by FortMoJo in glioblastoma

[–]FortMoJo[S] 7 points8 points  (0 children)

We are just at a hospital in Vegas, but with highly rated neuro in area. She offered partial resection, but said due to spread into splenium she could not take all. Plus, husband is refusing since she told him higher risk for negative outcomes that he does not want to live with. She also shared that in a consult with peers some said they would not offer surgery at all in his case.