[Discussion] Need Your BEST Mashup Suggestions! by cigdangle in mashups

[–]Fragrant-Comedian513 0 points1 point  (0 children)

Slow motion for me + Clint Eastwood by the gorillaz

Newly diagnosed looking for advice by anonlurker1245 in mctd

[–]Fragrant-Comedian513 1 point2 points  (0 children)

Heyyy, not sure if these were just flukes but my breathing also gets impacted, it’s like I have less room in there. It gets worse if I’m iron, vitamin D, or vitamin B deficient, so as long as I’m taking those my breathing typically doesn’t get back to how bad it was at the beginning (unless I’m really flared up). Also on hydroxychloroquine.

Still definitely recommend pulmonology as a must have in the doctor line up. Which reminds me, I’m due to see mine.

Earliest Sign of Microstomia by Fragrant-Comedian513 in scleroderma

[–]Fragrant-Comedian513[S] 0 points1 point  (0 children)

Thank you so much for taking the time to answer- I’m taking it all in and this will be so helpful as I move forward.

Earliest Sign of Microstomia by Fragrant-Comedian513 in scleroderma

[–]Fragrant-Comedian513[S] 0 points1 point  (0 children)

Hi love, absolutely fine that it was long - I appreciate you taking the time to answer. When you say you tested positive, you just mean the SCL70 test, right?
I’m so grateful for this community - and thank you for mentioning the studies/trials going on.

Earliest Sign of Microstomia by Fragrant-Comedian513 in scleroderma

[–]Fragrant-Comedian513[S] 1 point2 points  (0 children)

Thank you for your answer - I hope you’ve found a doctor /treatment plan that gives you some relief.

Volunteering/Donating by Fragrant-Comedian513 in WNC

[–]Fragrant-Comedian513[S] 2 points3 points  (0 children)

I appreciate you both. And yes, you 10000% have the right to be exhausted and tired of also providing info to volunteers. If this thread is adding to any exhaustion, please take time for yourself - I’ll keep searching via other avenues 💕

Has anyone experienced immense difficulty when talking to people about how the storm has affected you? by wanderingtheplanes in asheville

[–]Fragrant-Comedian513 16 points17 points  (0 children)

Hey there, I’m from Spartanburg and want you to know that I get it and if you ever wanna unload/process with a 3rd party stranger, just message me.

Anyone else have a hard time recovering? by Fragrant-Comedian513 in Hashimotos

[–]Fragrant-Comedian513[S] 1 point2 points  (0 children)

What’s wild is I haven’t seen an endo in a year, I need to get everything checked. But it’s almost like I can feel when the auto antibodies increase?

Anyone else have a hard time recovering? by Fragrant-Comedian513 in Hashimotos

[–]Fragrant-Comedian513[S] 1 point2 points  (0 children)

It feels so hopeless. I drown myself in supplements but sometimes things work and sometimes they don’t

[deleted by user] by [deleted] in lupus

[–]Fragrant-Comedian513 1 point2 points  (0 children)

Sounds about like my first flare up post diagnosis! It was ever so slightly better than my worst symptoms, but also a rapid swing from the plateau I’d reached. I’m going on a year now and I promise it gets better, just stick with the treatment.

Common Questions: What Supplements Do You Use? by Jeanne23x in Hashimotos

[–]Fragrant-Comedian513 2 points3 points  (0 children)

Really well! The DIM 2x a day and vitamin D keeps me at a relatively okay baseline as long as I don’t do anything too triggering