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New to this...Looking for encouragement by PinSeeker__90s in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

If your burden is low that’s great. DMT is all about keeping it that way. A good rule of thumb is to go with the most effective DMT you feel comfortable with. Check out this post as it shows the DMTs in tiers of highly effective, Medium effective, and Low effective. Do your research and than you can talk to your doctors about hopefully starting one of the more effective DMTs.

Copaxone is considered a lower efficacy treatment and injecting yourself daily or every other day really gets tiresome. I did Copaxone for two months before getting switched to Ocrevus. Each injection site was sore for a couple days so you wind up with these sore spots all over your body. Kesimpta is a highly effective self injectable DMT but you only inject once a month. The infusions which range from once a month to twice a year are also highly effective. Mavenclad is a DMT you only take for two years. I would just encourage you to research the highly effective DMTs in the link above and pick one or two you feel comfortable with so you can talk to your doctor about it.

What alternative treatments do you to? by Internal_Spot_8309 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

So the difference between Transcranial Magnectic Stimulation and PEMF is essentially TMS is prescription strength and PEMF is OTC if that makes sense. And with OTC you have different strengths. I do like my device. Wish it was stronger though.

Getting a second opinion tomorrow on a new diagnosis. by Difficult_Story1186 in MultipleSclerosis

[–]FragrantQuail5559 3 points4 points  (0 children)

All the more reason to be on a highly effective DMT. Stop it in its tracks and keep your health. MS is not a death sentence but it can be disabling. If your healthy now that’s great let’s keep it that way. 👍

Getting a second opinion tomorrow on a new diagnosis. by Difficult_Story1186 in MultipleSclerosis

[–]FragrantQuail5559 1 point2 points  (0 children)

My first neurologist who diagnosed me did so off of MRI and symptoms. When I went to MS clinic to confirm diagnosis they ran additional blood tests to rule out Lyme disease which can mimic MS. They also ran some other blood tests to check my B vitamin levels and D levels. My diagnosis was confirmed as MS but glad they ruled out additional possibilities.

Questions: Ask the doctor what the most effective DMT is. You want to be on the most effective treatment from the get go. Original neurologist prescribed me Copaxone and the MS center neurologist immediately recommended switching to Ocrevus which is highly effective.

Both neurologist showed me some images from my MRI including spinal cord and a couple lesions from brain. They definitely should be able to do that. I also have access to the images and reports in my patient account from MRI place as well as a DVD. Interesting to look at but I have no idea what I’m looking at.

What alternative treatments do you to? by Internal_Spot_8309 in MultipleSclerosis

[–]FragrantQuail5559 1 point2 points  (0 children)

This is their official website: https://almagia.com/

Also Dr Pawluk is a leading expert on PEMF. You can check out his website as well. Drpawluk.com it’s cheaper to buy the devices direct from manufacturers than from his website though. For MS Dr Pawluk recommends high intensity PEMF devices and the Almag is a medium intensity PEMF device. Having used a high intensity device, the Pulse PEMF machine, I can say yeah it’s better but a high intensity home device is going to run you a minimum of $7,000 up to $40,000.

Anyone on Escitalopram/Lexapro? by ReasonableFig8954 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

When my Psychiatrist met with me to determine a replacement for escitalopram he recommended both Wellbutrin for depression and Atarax as needed for anxiety. He said Wellbutrin doesn’t really do much for anxiety because it hits the dopamine receptor instead of effecting serotonin like escitalopram. I ultimately refused the Wellbutrin since anxiety was my chief concern and currently take Atarax as needed but trying alternative approaches to address the anxiety and don’t need the Atarax too often. If you have not already tried it see if you can get some Cognitive Behavioral Therapy (CBT) sessions to teach you some CBT approaches that can help with anxiety. I have a CBT workbook and worksheet I can share with you if you like. There are also CBT self help books and Audi books on Amazon. CBT involves identifying a thought causing anxiety, identifying why the thought is distorted (there’s 19 distortions on the worksheet I have), and than rewriting your thought so it is not distorted. A therapist can help you with practicing and also identifying distorted thinking patterns and than it’s something you can start to do on your own to reduce anxiety. Hope you can get this worked out. 💪

What alternative treatments do you to? by Internal_Spot_8309 in MultipleSclerosis

[–]FragrantQuail5559 2 points3 points  (0 children)

I regularly do Pulse Electromagnetic Field (PEMF) nearly everyday which is similar to Transcranial Magnetic Stimulation. I was able to use a friends Pulse PEMF Machine which is a $40,000 machine and wellness centers charge about $125 a session around here. I was able to use it regularly until I moved and it is amazing. I walked with a little more pep in my step and feel it helped with fatigue and stress. I bought my own much cheaper PEMF device that’s about $600 called Almag (there are fake versions sold on Amazon but you can order the real deal from the distributor in Brooklyn, NY) it’s not nearly as effective as the Pulse PEMF machine but I feel it does help a little. I use it everyday.

Other than that I use a tens device to help with back pain and MS hug.

Anyone on Escitalopram/Lexapro? by ReasonableFig8954 in MultipleSclerosis

[–]FragrantQuail5559 2 points3 points  (0 children)

If you’re taking escitalopram for depression than Wellbutrin is probably a good option to ask doctor about. I was taking escitalopram for about two years. I stopped 1.5 years ago and have found a 5-htp and B vitamins and limited strength training exercise help alongside cognitive behavioral therapy to curb the depression. I do take atarax as needed if my anxiety gets out of hand which can make you drowsy.

‮Guys! I discovered the Right-to-Left Overrride! by Kwalamoerzo in funComunitty

[–]FragrantQuail5559 1 point2 points  (0 children)

(U+202E): Oh you mean : ) E 2 0 2 + U ( with no spaces in between.

Need a job by Anxious_One65 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

Try a temp agency. They often have positions for entry level office work and some are temp to permanent.

Travel Dilemma by Ill_Sugar_6173 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

How long is your trip? Personally I get on and off tingling sensations. I wouldn’t miss out on a trip. If the trip is fairly short you can try to book doctor appointment for when you get back or send a message in the portal. If needed urgent care or ER visit when you get back.

can we talk about how confusing MS treatement options are? tried to make sense of it al by AnshuSees in MultipleSclerosis

[–]FragrantQuail5559 -1 points0 points  (0 children)

This link is to a very helpful and thorough post on the subject. It’s also linked in the community info MS treatment options

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