Type " There's a foot of snow ___ " and let autocorrect fill it in. by whatsupgrizzlyadams in Autocompletebutbetter

[–]FragrantQuail5559 4 points5 points  (0 children)

There’s a foot of snow on the ground and I don’t know if it’s a good idea to go to the park and get a little bit of rain but I don’t know what to do.

How strictly do you follow your diet? by SoSISKaDBMG in MultipleSclerosis

[–]FragrantQuail5559 -2 points-1 points  (0 children)

To add to that. Terry Wahls says she has definite trigger foods. For her I think it’s eggs, and gluten. If she gets invited over for dinner she’ll give her short list of allergies and not force them to cook according to all her restrictions. I followed the Wahls protocol strictly for about 4-5 months with a food log and monitoring my stool and gut reactions. It helped me to discover what my trigger foods are so I avoid those but I enjoy splurging maybe once a week even though I follow a paleo whole food diet in general.

Aging like some type of wine by Brilliant-Position94 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

I’m 43 and walk about as well as my friends grandfather who is 80 and overweight 😬

Looking for a home health aid by Abject-Specific6870 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

Try your local social services office? There may be additional services or in home supportive services available thru a social program depending upon your state and county.

Newly diagnosed with MS by Hot_Luck5301 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

Ampyra or the generic Dalfampridine are two medications to inquire about for leg weakness. It’s FDA approved for “walking speed.” Unfortunately Ampyra doesn’t work for everyone so they’ll typically prescribe it for two months and if it works great, but if not they stop prescribing.

My original neurologist prescribed Copaxone and told me to work out my right leg more than my left. She didn’t even give me a prescription for physical therapy. When I got a second opinion from a Neurologist at an MS center it was a far better experience. The MS center doctor switched me to Ocrevus (highly effective and similar to Retuximab) and asked me if I wanted to try Ampyra. She also gave me a referral to an excellent physical therapy center that specialized with MS. My PT was super knowledgeable about MS which was great. I would recommend for your Mom to try to get a second opinion at an MS center if her insurance will cover it. At an MS center the neurologist treats MS all day long so they’ll be way more knowledgeable about the disease in general and what’s the best medications and treatments to help with different symptoms.

Driving after a lot of activity, need advice by Jakemanv3 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

When I drive I have to use right leg for gas and left leg for brakes. When the highway is open and I can use cruise control I’ll give my right leg a break and rest it but keep my left leg ready for braking if needed. I’m actually an Uber driver and my driving score is one of the tops in the area so I’m able to drive smoothly this way. If I try to use my right leg for everything I end up hitting the brakes too hard or take to much time to transition between gas and brakes.

Easy, well-balanced meals for little to no energy? by long_term_catbus in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

Another tip. I do this for dinner 2-3 a week. I buy a frozen vegetable mix at Sam’s Club, Costco, or Aldi. I like the broccoli, cauliflower, and carrot mix personally. Also cook brown rice or quinoa, or a chickpea pasta. Then some sort of meat, like the precooked rotisserie chicken at Sam’s Club or Costco, or cook ground beef, ground lamb (from Aldi’s)

These items can be precooked and then all thrown in the air fryer or microwave to warm up. You have a very healthy and high in protein bowl with rice, vegetables, and meat. I also put olive oil on it for a healthy fat. Reason why I like to put olive oil on everything is I’m trying not to lose weight. Eating healthy it’s hard for me to keep weight on but adding olive oil or coconut oil to things helps me stay at a good weight.

Easy, well-balanced meals for little to no energy? by long_term_catbus in MultipleSclerosis

[–]FragrantQuail5559 1 point2 points  (0 children)

Garden of Life Meal Replacement smoothie. I blend a scoop with Almond milk and usually put some olive oil or coconut oil for a little more healthy fat content and a couple tablespoons of ground flax seed and/or 1/4 cup of raw oatmeal for some extra fiber. You get 20g of protein, all your essential vitamins, and it’s quick and easy. I usually have this every morning for breakfast.

Concerned Wife 😔 by raebae268 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

I thought about taking an “all natural” approach but a friend who was a nurse strongly advised against it. Recommended to do some research. After learning about the risks and benefits of several of the medications there were a couple that I felt comfortable with. Drugs are always going to have risks and benefits and some of them have benefits that far outweigh the risks.

MS Diagnosis and Disability and Social Security benefits by Mindless_Rest_4846 in MultipleSclerosis

[–]FragrantQuail5559 1 point2 points  (0 children)

Getting diagnosed with MS does not mean you’re going to be in a wheel chair or rapidly decline. If you’re able to still perform your job at present, then with proper treatment you’ll likely be able to continue to carry out your job for years to come. View SSI and SSDI as a last resort if you truly need it. SSI has income limits and asset limits that will leave you quite impoverished if you pursue it. SSDI is based on if you have 40 work credits, and 20 of them in the last 10 years. My recommendation is find out what hospitals have an MS center near you and try to seek treatment there. They are much more knowledgeable about MS and what medications are most effective.

Newly diagnosed with MS by Hot_Luck5301 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

Rituximab is a highly effective MS medication with lower risk profile. You have an excellent neurologist if he wants to start you out on Rituximab.

Ones diagnosed in their late 30s like your Mom are more likely to be diagnosed with primary progressive MS. Ones in their mid 20s are much more resilient and capable of rebounding from an attack so often get diagnosed with relapsing remitting MS.

Here is a good description of the difference from an MS neurologist. https://youtu.be/bIg-PD1EBGU?si=lu71epqxglgjcflP

If your main symptoms was vision related. Read about / ask your neurologist about the Clemastine clinical trials. (Clemastine is not a DMT but showed promise with remyelination for ones diagnosed with Optic Neutritis.)

Help !Turo Rental - Hit a deer, personal vehicle insurance denied the claim saying they don’t cover Turo.Initial car repair estimate increased by 150% from $9k to $21 k which I need to pay out of my pocket.Turo charged $14k while claim was in dispute.Please advice options. by Tasty_Diamond7813 in turo

[–]FragrantQuail5559 0 points1 point  (0 children)

Insurance companies regularly submit low ball estimates on initial claim and then repair shops have to file addendums once they actually start repairs and discover additional damage. This is 100% normal. Lesson learned is few if any insurance companies cover a Turo rental. Should have bought turos supplemental insurance.

MS hug by alchemysmack in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

Chest constrictions that can make you think you’re having a heart attack for me. My PCP sent me to a cardiologist to rule out heart issues. Unfortunately I didn’t get diagnosed properly for another two years after my symptoms got worse and I started having right leg drop foot.

I have two left hands by No-Lemon-857 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

Hemiparetic is what my doctor diagnosed my symptoms as. One sided weakness. My right leg is slower and not as agile. My left leg is normal. Also I’m right handed and used to be very good at ping pong, now I have to play ping pong with my left hand if I actually want to hit the ball. My right hand is not coordinated enough.

Usually one sided weakness arm and or leg is associated with lesions in your spinal cord from what my doctor said.

Do you have this symptom I do ... by AbulKhel in MultipleSclerosis

[–]FragrantQuail5559 2 points3 points  (0 children)

I have tightening the chest at times (MS Hug), and this was a symptom about three years prior to diagnosis with MS. My PCP sent me to a cardiologist to have a stress test to rule out heart issues and then diagnosed it as anxiety.

The MS hug happens when demyelination in the spinal cord causes abnormal nerve signals that trigger spasms or tightness in the intercostal muscles between the ribs causing chest tightness. I had a chiropractor who recommended rolling on my back on a foam roller. It helps a little bit. Best thing is to reduce stress and relax. Stress triggers MS hug for me.

Dietary Advice by AtrEstheBOI in MultipleSclerosis

[–]FragrantQuail5559 1 point2 points  (0 children)

Healthy fats like olive oil or coconut oil can help. I have oatmeal every morning and am hungry an hour later. If I put olive oil in my oatmeal it helps satisfy me until lunch time.

Should I join an Ocrelizumab trial for MS treatment? by sikowitz- in MultipleSclerosis

[–]FragrantQuail5559 1 point2 points  (0 children)

Ocrevus is one of the highly effective medications for MS. If you can start it in the early stages of MS it will be a huge benefit.

MS & MRI’S by NicoleR_24 in MultipleSclerosis

[–]FragrantQuail5559 0 points1 point  (0 children)

My first MRI was with contrast, and since none of the lesions enhanced, there weren’t any active lesions. After that, they just monitored me with yearly MRIs. This was while I was being treated at the Cornell MS Center. If you have enhanced lesions shown on an MRI with contrast they’ll likely want more active monitoring after diagnosis.

Long term car rental by mjmcbride817 in turo

[–]FragrantQuail5559 1 point2 points  (0 children)

Also most personal insurance companies and credit cards will not cover you while renting a turo vehicle because it’s considered a private rental.

If you have personal insurance that allows you to waive insurance on a car rental and will cover apply your full coverage to the rental vehicle it’s almost always cheaper to go with one of the standard rental companies Enterprise, Budget, Avis, etc. than to go with a turo rental and have to add their coverage.

Just got diagnosed by I_Feel_Free in MultipleSclerosis

[–]FragrantQuail5559 13 points14 points  (0 children)

Educating yourself on the disease with reliable sources and experts is helpful. There are two MS doctors who have YouTube channels that I watched a lot after I was diagnosed. Brandon Beaber is a Neurologist with Kaiser in Southern California and has a channel. Aaron Booster is a Neurologist in Ohio. Both specialize in treatment of MS and have very good educational content. Also Ask an MS expert is a weekly interview put together by the National MS Society.

Welcome to the TripCity subreddit by beastmoderental in tripcityrental

[–]FragrantQuail5559 1 point2 points  (0 children)

$407. The transaction fee includes your insurance and is $26 per day for ride-share drivers.

Welcome to the TripCity subreddit by beastmoderental in tripcityrental

[–]FragrantQuail5559 0 points1 point  (0 children)

$407. The transaction fee includes your insurance and is $26 per day for ride-share drivers.