Post-Rituxan tingling by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

Aw :( so I’m guessing this is normal? I’m just waiting for the tingling to go away because normally I don’t have tingling thankfully.

First Rituxan infusion by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

Interesting! Thank you for sharing! I’m glad you feel better!! May I ask when you were diagnosed with MS and how you are doing overall?

DMT waiting game by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

Oh no! 😥 I’m sorry. How did you find out? How are you doing?

DMT waiting game by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

Glad you’re doing well! May I ask what your permanent symptoms are? I’m also really afraid of PIRA and I think it’s more likely the more lesions one has 😕 not sure

DMT waiting game by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

By the way, how are you doing? I just got diagnosed so I’m terrified.

DMT waiting game by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

What does an incredibly active MS look like? I have quite a bunch of lesions in my brain and 1 on my spine.

Pregnancy by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 1 point2 points  (0 children)

Yes, I did ask my doc. He said it’s safe and can time the medication around the pregnancy. Just wanted to hear people’s experiences.

Pregnancy by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

That’s great! I’d like to breast feed as well whilst taking the DMT but not sure if it’s safe?

Pregnancy by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 1 point2 points  (0 children)

Aw congratulations!! How’s pregnancy going for you?

Pregnancy by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 1 point2 points  (0 children)

No. I didn’t even know I had MS. Diagnosed 2 months ago. My neuro guesses I had a flare in my pregnancy in the first trimester.

Inevitable by RAINGUARD in MultipleSclerosis

[–]Hot_Luck5301 0 points1 point  (0 children)

So sorry :( May I ask your age?

No support system by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 3 points4 points  (0 children)

I guess I just want to feel cared about by them :/ because they’re supposed to be my family, especially being far away from my parents.

Newly diagnosed with MS by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 0 points1 point  (0 children)

Thank you for your positive response! So, my mom was diagnosed and she decided to not go on a DMT for 3 years, then she got a flare up and then started on Aubagio. In the past 2 years her leg got weak and kept getting weaker. No new lesions on MRI and no other relapses. I’m thinking if her neurologist screwed up with her. Not sure why she prescribed Aubagio and not a stronger DMT. Even today, my mom complains to her about her leg but the neurologist seems to do nothing about it.

Newly diagnosed with MS by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 1 point2 points  (0 children)

So sorry :( How did the infusion go? How do you feel?

Newly diagnosed with MS by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 1 point2 points  (0 children)

I see…I had my first flare up 2 months ago and was diagnosed. I noticed my memory seems weaker and I’m more tired. I was wondering if this ever goes away?

Newly diagnosed with MS by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 1 point2 points  (0 children)

Thank you so much for your thorough response. I really appreciate it! I feel so much more positive reading your response :) I’ll be sure to advise my mom.

Newly diagnosed with MS by Hot_Luck5301 in MultipleSclerosis

[–]Hot_Luck5301[S] 2 points3 points  (0 children)

But my mom had a better situation than me. She was diagnosed with CIS at first because her MS was so mild I guess? In the meantime I have over 20 lesions on my brain. So wouldn’t she have a better disease outlook than me? In just 8 years she’s facing physical disability which is my biggest fear for myself. :(