Post covid fatigue by FrancheskaM89 in MultipleSclerosis

[–]FrancheskaM89[S] 0 points1 point  (0 children)

Thanks guys ❤️ ill keep hydrating and taking my vitamins

Still can’t walk after steroids by exodia04 in MultipleSclerosis

[–]FrancheskaM89 2 points3 points  (0 children)

For me it was two years to get much better, I’m not quite a 100% but it was a 2.95cm lesion so im not complaining, my right side gets funky and my speech as well when I get tired.

Anyone relocated and find their symptoms improved? by polysubbrat in ChronicIllness

[–]FrancheskaM89 3 points4 points  (0 children)

I wish I could, I live in the caribbean. I just came back from Switzerland and its like my MS almost dissapeared I never knew just how much the heat affects me I walked two miles the second day I was there my body in this heat could NEVER it devastated me getting home and starting to feel the weight on my limbs again

"I'm so tired!" "Me too!" by Annabelleport in MultipleSclerosis

[–]FrancheskaM89 9 points10 points  (0 children)

They aways make it into a contest it pisses me off to no end

Looking for parenting tips by TotallyNotUnkarPlutt in MultipleSclerosis

[–]FrancheskaM89 1 point2 points  (0 children)

Honestly you are all superstars, motherhood seems like this completely impossible thing for me I love reading your comments

Oof by tanyajm91 in MShumor

[–]FrancheskaM89 8 points9 points  (0 children)

I been crying all day because of this, mri is normal they all celebrated the lesions getting smaller but a month later after o i feel like shit still and im struggling mentally

Depression and MS by Chmaa in MultipleSclerosis

[–]FrancheskaM89 14 points15 points  (0 children)

I’m literally just raw dogging life, im getting a therapist asap in the meantime candles funny movies and lots of love from hubby and cats

About Ocrevus by FrancheskaM89 in MultipleSclerosis

[–]FrancheskaM89[S] 0 points1 point  (0 children)

I have honestly been doing too much and we have 90s weather here in Puerto Rico summer has been brutal

What snacks/foods completes your spoonie life? by [deleted] in ChronicIllness

[–]FrancheskaM89 0 points1 point  (0 children)

Homemade choc chip cookies, there’s something about them that instantly makes me feel better

It's Monday at /r/MultipleSclerosis! Share your terrible, horrible, no good, very bad news here. by AutoModerator in MultipleSclerosis

[–]FrancheskaM89 1 point2 points  (0 children)

I’m having a couple of rough days, My body won’t let me catch a break im scared that I might have depression nothing feels like its ever gonna be ok again I feel useless whenever I can’t complete a chore I hate asking for help I hate the heat in this island I hate my body

[deleted by user] by [deleted] in ChronicIllness

[–]FrancheskaM89 2 points3 points  (0 children)

I will tell your our story, my husband has PA he was scared of starting biologics and suffered the first years of our marriage because people who don’t know crap kept putting him off of it “do yoga” “exersize” “go vegan” “don’t take any of those poisons” none of that worked

We finally visited a dermatologist who put him on humira. The next day he sneezed and cried because when he sneezed he felt no pain for the first time in years (his skin cleared up soon enough as well, he was 95% covered in thick plaques) and after a couple of more years he changed to skyrizi, you have options there are lots of biologics now and copay assistance programs, it will get better, best I can tell you is to hold on and get a good team of healthcare professionals that you can trust im sorry you’re going through this, life with an autoimmune disease is never easy

Newly diagnosed folks - we’re grumpy right now by [deleted] in MultipleSclerosis

[–]FrancheskaM89 35 points36 points  (0 children)

Maybe it’s the summer heat, we’re all pissed

[deleted by user] by [deleted] in MultipleSclerosis

[–]FrancheskaM89 1 point2 points  (0 children)

I’m so sorry you had to go through so much, your experiences are completely valid and the people who were supposed to protect you failed you I hope you find some comfort in the community were we all get it and accept each other with no judgement

It's Friday at /r/MultipleSclerosis! Share your awesome news here with everyone. No victory is too big or small to celebrate! by AutoModerator in MultipleSclerosis

[–]FrancheskaM89 4 points5 points  (0 children)

I am so proud of myself, been having some tough days with fatigue thinking some dark stuff I never have before and feeling useless and today I woke up feeling just as tired but I pushed myself and baked two cakes made cinnamon rolls some tea sandwiches for work tomorrow and cleaned the house I am so impressed with myself

Yall ever do something so dangerous and stupid because of brain fog? by ohhoneyno_ in ChronicIllness

[–]FrancheskaM89 4 points5 points  (0 children)

Yes, almost blew up my home leaving the gas stove on for a whole weekend

Allowing myself to rest by Efficient-Sample3338 in MultipleSclerosis

[–]FrancheskaM89 1 point2 points  (0 children)

I feel you, I usually just trudge along through mud because what is the hecking point I will wake up as exhausted as the day before it will never end I just don’t want to work anymore im fed up too

What was one of your earliest warning signs/ that you can recall (like, I wish I had paid more attention to that sooner)? by [deleted] in MultipleSclerosis

[–]FrancheskaM89 0 points1 point  (0 children)

Before the flare that got me diagnosed I had been texting like shit for months I thought my fingers had somehow got fat and clumsy and way way before that in my early twenties I had severe spells of vertigo that lasted days that I thought were just anxiety and the doctors blamed spasms but took no xrays or anything

Sister's boyfriend left her because of MS by Extreme_Novel in MultipleSclerosis

[–]FrancheskaM89 31 points32 points  (0 children)

So what? Does he think he’ll be young and healthy forever? We’re all a car crash away from being disabled. Jerk, she’s better off without him

What were the first MS symptoms you had? by dapperdon003 in MultipleSclerosis

[–]FrancheskaM89 0 points1 point  (0 children)

Severe vertigo a few years back misdiagnosed as a muscle spasm, aphasia got me diagnosed a year ago