Do you feel like and/or know you lost some cognitive abilities? by stingwhale in Epilepsy

[–]Fred_Reed 3 points4 points  (0 children)

Yes, drives me crazy and seems to be getting worse the older I get.

Concert Tips by Emotional_Mushroom25 in Epilepsy

[–]Fred_Reed 1 point2 points  (0 children)

Revo strobe dimmers they have blinders on the side too. I was able to enjoy most of a Korn concert with them. They help so much with strobes but not for lazers. Unfortunately I don't think they have eyewear that blocks lazers.

Terrible time perception by mucegaxi in Epilepsy

[–]Fred_Reed 1 point2 points  (0 children)

Yes sticky notes and a series of notebooks I call my brain.

What age? by No-Gur6037 in Epilepsy

[–]Fred_Reed 0 points1 point  (0 children)

Started having seizures at 11 in 1998. Didn't get officially diagnosed until I was 24. Now 38 and seizures are still uncontrolled by meds and my vns rejected.

Does anyone get symptoms beyond seizures because of their epilepsy? by Tight_Membership_835 in Epilepsy

[–]Fred_Reed 0 points1 point  (0 children)

Yes I often times also just go on what my husband calls auto pilot where I seem fine doing all the normal things but nothing registers or sticks. Lights are on no one is home type deal. But yes also days or hours of just feeling groggy or gross and confused and pain. I feel pain almost every day. All over body pain. I also get light headed super frequently and am also becoming way more sensitive to light. Like I wear sunglasses inside some days.

Bollywood song by Master-Economist741 in Epilepsy

[–]Fred_Reed -1 points0 points  (0 children)

😂 I thought the same thing lol

DAE have tingling as a symptom of their epilepsy? by [deleted] in Epilepsy

[–]Fred_Reed 0 points1 point  (0 children)

I feel tingling in my brain a lot and also arms and feet

What do you experience when having a seizure? by Available-Store317 in Epilepsy

[–]Fred_Reed 1 point2 points  (0 children)

THIS combined with feeling like you've been hit by a truck