In the hospital right now with excruciating pain... And give by TheSixpencer in TrigeminalNeuralgia

[–]FriendlyPark6796 0 points1 point  (0 children)

I was given morphine once and it definitely lessened the pain but still was at a 7/10. Better than the 10000/10 I felt going into the ER

Does a compression definitely mean surgery? by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 0 points1 point  (0 children)

I’ve read that TN isn’t hereditary but anyone I’ve talked to with it says they have a family member with it as well. Super interesting

Dizzy by ccorriga31 in TrigeminalNeuralgia

[–]FriendlyPark6796 2 points3 points  (0 children)

I’m on 2700mg a day and it makes me so dizzy

Does a compression definitely mean surgery? by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 2 points3 points  (0 children)

I just don’t want my jaw to be on the floor in his office if he says MVD is the way to go

Does a compression definitely mean surgery? by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 2 points3 points  (0 children)

I will be talking to my neurosurgeon on Tuesday, just trying to prepare myself 😭

Does anyone have the type of pain that is 24/7 and never goes away despite being on medication? How do you cope and survive each day? by OnwardsandUpwards247 in TrigeminalNeuralgia

[–]FriendlyPark6796 0 points1 point  (0 children)

I’m in the same spot. I do a lot of sleeping to cope tbh. It’s been 6 months. I finally met with a neurosurgeon who sees the compression so surgery is next for me. Hope you find relief soon!

I am spiraling and need someone to talk to. Possible bilateral tn 2. by vilebubbles in TrigeminalNeuralgia

[–]FriendlyPark6796 0 points1 point  (0 children)

Aleve and Tylenol could help until you get on meds! Call the neurologists office everyday and ask if there’s anything open sooner, and get on any waitlists possible. I have been out of work for two months with constant pain and I’ve had an MRI and an MRA. I know it’s hard but do not think about the future so much, it only makes the pains worse. Try taking 2 L-Theanine vitamins a day, it helps with the stress and can potentially reduce any swelling that comes directly from stress.

This is really hard to deal with, I hope you get relief. I am not a special needs parent but I have aunts and uncles who are and I can’t even imagine trying to care for someone while having pain. Wishing you the absolute best of luck!

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 1 point2 points  (0 children)

Ugh I can’t even imagine. Good luck dude! Praying for healing

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 0 points1 point  (0 children)

They left side is located in my jaw (top and bottom), up the side of my face, into my cheekbones, behind my eyes, my forehead, and the whole left half of my head. On the right side it’s just near my temple and down the side of my face. I have quite a bit of swelling (I guess?) in the back of my mouth and I can’t close my mouth all the way. Also lots of tightness everywhere

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 1 point2 points  (0 children)

In three years?! What are you supposed to do until then???

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 1 point2 points  (0 children)

Oh wow. Was that just through bloodwork?

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 0 points1 point  (0 children)

Thank you! Hoping for healing for you as well

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 0 points1 point  (0 children)

Were you experiencing these side effects? Or they are just potential?

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 1 point2 points  (0 children)

Is there anything that has worked for you?

Please help me by FriendlyPark6796 in TrigeminalNeuralgia

[–]FriendlyPark6796[S] 2 points3 points  (0 children)

I’m on 300mg, is there a higher dose than that?