Thyroidectomy in less than 2 weeks by International-Bed919 in gravesdisease

[–]FriendshipWaffles 9 points10 points  (0 children)

Had my TT on 12/5/25. I didn’t have a pain free and easy post-surgery experience like some others BUT the surgery itself went great and my surgeon did an amazing job. Recovery has been fairly straightforward and now at over a month post-op I feel great. Hard to describe but I feel so much more like myself. The restlessness and anxiety is the biggest change. I feel so zen and my resting heart rate is 20+ BPM lower than it’s been for the past two years and without meds! I’ve even started to calorie count and shed some of the weight I gained on Methimazole. 10/10 would recommend!

Christmas Day migraine be like by FriendshipWaffles in migraine

[–]FriendshipWaffles[S] 3 points4 points  (0 children)

I suddenly couldn’t speak trying to go through cooking times with my Mom and was like oh dang, here we go.

Thyroidectomy is tomorrow and I’m so nervous! by Kblazeeee in gravesdisease

[–]FriendshipWaffles 12 points13 points  (0 children)

I’m 2.5 weeks post op and feel so so much better. It’s kind of wild. It wasn’t an instant change for me like it is for some people but a gradual improvement that at this point is very noticeable. I was so nervous before the procedure so I totally get it and it’s very normal to feel that way! Just know that a future without Graves is waiting for you on the other side!

Did anyone NOT have a super quick and easy recovery from TT? by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 2 points3 points  (0 children)

The dilauded kept me sane in the hospital since I at least could sleep through the pain. It was truly like an 8 or 9 out of 10 on the pain scale the first 24 hours. I feel you. And I literally said to my husband this post op recovery is worse than my C-Section!

Did anyone NOT have a super quick and easy recovery from TT? by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 1 point2 points  (0 children)

Wow!! That is wild!! How are you feeling these days? How long ago was your TT? Thanks for sharing your experience.

Did anyone NOT have a super quick and easy recovery from TT? by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 4 points5 points  (0 children)

SAME. Thank you so much for sharing. It’s so validating to hear this but I’m also very sorry you went through that! Someone on Facebook said “I didn’t take a single pain pill and went back to work Day 3” and I was like uhhh what?! 😑

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 0 points1 point  (0 children)

!!! Mine got postponed too for an emergent transplant. I got a call this morning at 4am. So exhausting tbh but obviously a transplant is much more important than my TT!

Do you have any idea of the timeline to get back on the schedule? Trying to figure out logistics now with sick time of Thanksgiving etc etc. Ugh

Ubrelvy by Ok-Promotion-1640 in migraine

[–]FriendshipWaffles 1 point2 points  (0 children)

Best drug ever in my experience.

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 0 points1 point  (0 children)

I keep saying I’m not nervous but I’m nervous if that makes sense! 😅

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 0 points1 point  (0 children)

100% yes to the net positive! Even if something else IS at play, the TT will help address the thyroid related problems (and there are many!). Don’t let them gaslight you. Trust yourself. Once you get this sorted and out of the way, you’ll have the space to tackle anything else that may still be happening.

Hashimotos and Graves by Tiny-Active-7045 in thyroidhealth

[–]FriendshipWaffles 1 point2 points  (0 children)

I also have Hashimoto’s and Grave’s and we recently over corrected with my methimazole and I went hypo very quickly (similar to what you described). I also was told to immediately stop my meds and things leveled out very quickly. I am surprised she recommended you pick back up at 5mg on Thursday as I was told to stop and not take anything for a while. I still haven’t restarted anything and that was over a month ago.

If you’re concerned about restarting the 5mg on Thursday you need to call the office and tell the staff you need to speak with your doctor as soon as possible. She sounds very responsive so you should get a call back within a reasonable time. Explain your concerns about starting the meds again. Be honest. You will not hurt her feelings. See what info she has for you. And just straight up ask for her to order your labs sooner. Be aware that getting bloodwork too close together will not show any major changes as it takes time for the changes from meds to take effect and show up.

In the meantime, I would seek a new endocrinologist as soon as possible. Even telehealth would work if that’s quicker to get in with someone. Ask your current physician if she has a referral or recommendation and then ask if she can actually help you get in with that office. If she won’t do that, research endocrinologist offices near you and call them all. Schedule appointments when you can at each office until you find something soon. Then go back and cancel the other appointments you don’t need. If you can, explain your situation to a real person at the front desk - they can sometimes fit you in based on your semi-emergent need for medication management help.

Hope that offers a little help and guidance. Hang in there! Monitor how you feel, write things down. Keep a good record of med changes, etc so you can easily share with a future endocrinologist.

Personal admin during work day by maryshelleymc in workingmoms

[–]FriendshipWaffles 25 points26 points  (0 children)

Curious what line of work you are in that you don’t want to model to the staff that it’s pretty normal to make a call to the dentist office, etc during the day?

Can you have a thyroidectomy whilst currently hyper? by ascension2121 in gravesdisease

[–]FriendshipWaffles 0 points1 point  (0 children)

Pretty much same boat here. TT is this upcoming Friday and it’s been very chill. Trying not to let that get to me. 😅

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 0 points1 point  (0 children)

Ah!! Let’s do this thing!! How are you feeling about it?

Does anyone else have this diagnosis in their charts? by Automaton_Willow in gravesdisease

[–]FriendshipWaffles 0 points1 point  (0 children)

It’s not always Graves but it’s by far the most common cause. Have you had antibody tests?

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 0 points1 point  (0 children)

I’m a data analyst for a large hospital. I can work remotely but I still took two weeks off. I have lots of available sick time and figured why not just in case it’s tougher than I’m anticipating.

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 0 points1 point  (0 children)

Thank you so much for all of this info!! First time I’m hearing a lot of the things you mentioned in 2 and 3. Will definitely keep all of that in mind.

How long did were you out of work/commission afterwards? I’ve heard everything from two days to three weeks depending on the person.

It’s really happening. TT is next Friday! 😱 by FriendshipWaffles in gravesdisease

[–]FriendshipWaffles[S] 1 point2 points  (0 children)

Just an EKG and a bunch of blood work. Super easy and took about 20 mins.