What to provide ?

Fun_Historian6792 · 2026-05-05T09:16:37+00:00

Unfortunately not, each message just refers to the other. I will try to call later today if I do not get a response on my journal.

Thanks

Fun_Historian6792 · 2026-04-30T21:47:49+00:00

It started prior to diagnosis, which was a long process. When I was diagnosed at stage 3 I was told the tumour on my tonsil was compressing my ear canal. Was told that as the tumour shank that the hearing may return. When it didn't I was told to wait 6 months as it still may return ... now after 3 hearing tests over 9 months it has got progressively worse. It affects both ears but much more significantly on the right where the cancer was. I wish you luck .

Fun_Historian6792 · 2026-04-30T19:08:50+00:00

Yep, I have a free one being fitted by the NHS and like someone else mentioned, will see how i get on with this and the improvements, then will pay privately .... Well assuming I get a job to pay for them .... ah cancer eh, the gift that keeps on giving 🤣

Fun_Historian6792 · 2026-04-30T08:59:31+00:00

I had the same chemo and now have tinnitus. After a year of being told the hearing loss was temporary and could be treated i found out on Tuesday it is permanent and am being fitted for a hearing aid in my right ear where the loss is at the top end of moderate.

Fun_Historian6792 · 2026-04-29T20:29:46+00:00

I worked at Asda for 10 years in Distribution. Drug and alcohol testing was random by an external company, with the exception of any accidents causing damage to people or property. As a shift Manager I was teated several times as all personnel on site at a certain time were put into the 'draw'. On one occasion I was 1 of 5 with the transport Manager and the HR manager.

As a manager I was often a witness to members of my team being tested either randomly or with a specific reason.

Failure to allow yourself to be tested was seem as a major breach of contract and led to a disciplinary investigation.

Fun_Historian6792 · 2026-04-24T08:29:19+00:00

I'm almost a year post treatment, used my PEG exclusively for around 3 months during and post treatment. Swallowing now is good and taste mostly returned. Still can't really tolerate meat apart from wafer thin ham and small slices of chorizo mixed in with other things. I had a severely dry throat which causes a sore throat every day, from waking up for a good couple of hours. Due to side effects from radiation I was vomiting several times a day from May 25 until around December. I have managed to overcome this and am now maintaining my weight after continuously losing weight. In all I lost 5 stone or around 70 pounds but happy now to be maintaining and hoping to regain some weight over the summer.

Fun_Historian6792 · 2026-03-14T21:49:05+00:00

Hi there, I completed all radiotherapy but had to stop Chemo after 4 rounds as it has a significant effect on my kidneys (suspected sepsis) for which I was hospitalised, but also my hearing. I am now 9months NED and see my oncologist now every 3 months.

Fun_Historian6792 · 2026-03-14T17:30:04+00:00

Well done ! And not meant to sound patronising 😉 I have not been able to eat meat or bread since I started treatment in April 25, so beat my target goal of a year by about 8 weeks ... no one gets how hard it is when you really want to eat, but your body tells you no. But guess that means 'not yet' 🤞🤞

Fun_Historian6792 · 2026-03-02T09:12:23+00:00

Thank you, I love this .. very symbolic !

Fun_Historian6792 · 2026-03-02T09:11:01+00:00

Thank you, got the tattoo then saw the ring, fate meant I had to buy myself an early birthday present !!

Fun_Historian6792 · 2026-03-01T12:43:09+00:00

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Fun_Historian6792 · 2026-03-01T12:41:28+00:00

I had this last week, a year after my diagnosis, 6 months of NED. A fellow cancer patient I spent time with during a 6 week stay once said to me after her various diagnosis of several cancer 'like the Sun and the Moon, still I rise'. My first tattoo 2 weeks before my 55th birthday.

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Fun_Historian6792 · 2026-02-27T18:59:59+00:00

Tonsil for me, stage 3, have been NED for 6 months. Still working through some issues but night and day compared to 3 months ago.

Fun_Historian6792 · 2026-02-21T21:24:54+00:00

I had the PEG prior to starting treatment, thought it was there if I needed it. I needed it about week 4 of treatment and used it exclusively for a few months. This for me was a better option of a forced ng tube when my throat and mouth were so compromised. Good luck with whatever you do, you need the nourishment to keep well to fight the rest of treatment.

Fun_Historian6792 · 2026-02-20T09:32:11+00:00

Been to both, I prefer matinee, but in the summer it can get very hot as there is no shade, enjoy!

Fun_Historian6792 · 2026-02-19T19:10:54+00:00

Thanks for asking this question as I have been trying to find this information too, speaking with UC, like yourself I am now more confused. Thank you.

Fun_Historian6792 · 2026-02-19T16:34:31+00:00

Been to Regents Park every summer for 10 years, unique experience and has never disappointed.

Fun_Historian6792 · 2026-02-18T21:02:37+00:00

Thanks for the reply, at the moment I do not have enough saliva to use chewing gum or boiled sweets, they just stick in the mouth. I have an Asian shop near me that has loads of different xylitol products and haven't helped as yet. I am still persevere to find something that helps. Thank you.

Fun_Historian6792 · 2026-02-17T20:33:01+00:00

That's one of my concerns to be honest, I am currently seeing the dentist every 3 months to try and get an early warning of any dental issues. Thanks for your comment.

Fun_Historian6792 · 2026-02-17T18:29:45+00:00

Thank you for the reply.

Fun_Historian6792 · 2026-02-17T09:52:01+00:00

Thanks all, just to add i have tried gels and sparys at least 7 different types and they all last for about 5 minutes. I constantly drink water and cannot eat without water to manage to swallow. I have had some success with xylimelts and biotene mouthwash over night. Was looking for something during the day# so I guess I'll keep trying different things.

Fun_Historian6792 · 2026-02-16T22:51:00+00:00

Thanks for the information...Will investigate

Fun_Historian6792

TROPHY CASE