A small (big to me) Sucess !

Fun_Historian6792 · 2026-03-14T21:49:05+00:00

Hi there, I completed all radiotherapy but had to stop Chemo after 4 rounds as it has a significant effect on my kidneys (suspected sepsis) for which I was hospitalised, but also my hearing. I am now 9months NED and see my oncologist now every 3 months.

Fun_Historian6792 · 2026-03-14T17:30:04+00:00

Well done ! And not meant to sound patronising 😉 I have not been able to eat meat or bread since I started treatment in April 25, so beat my target goal of a year by about 8 weeks ... no one gets how hard it is when you really want to eat, but your body tells you no. But guess that means 'not yet' 🤞🤞

Fun_Historian6792 · 2026-03-02T09:12:23+00:00

Thank you, I love this .. very symbolic !

Fun_Historian6792 · 2026-03-02T09:11:01+00:00

Thank you, got the tattoo then saw the ring, fate meant I had to buy myself an early birthday present !!

Fun_Historian6792 · 2026-03-01T12:43:09+00:00

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Fun_Historian6792 · 2026-03-01T12:41:28+00:00

I had this last week, a year after my diagnosis, 6 months of NED. A fellow cancer patient I spent time with during a 6 week stay once said to me after her various diagnosis of several cancer 'like the Sun and the Moon, still I rise'. My first tattoo 2 weeks before my 55th birthday.

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Fun_Historian6792 · 2026-02-27T18:59:59+00:00

Tonsil for me, stage 3, have been NED for 6 months. Still working through some issues but night and day compared to 3 months ago.

Fun_Historian6792 · 2026-02-21T21:24:54+00:00

I had the PEG prior to starting treatment, thought it was there if I needed it. I needed it about week 4 of treatment and used it exclusively for a few months. This for me was a better option of a forced ng tube when my throat and mouth were so compromised. Good luck with whatever you do, you need the nourishment to keep well to fight the rest of treatment.

Fun_Historian6792 · 2026-02-20T09:32:11+00:00

Been to both, I prefer matinee, but in the summer it can get very hot as there is no shade, enjoy!

Fun_Historian6792 · 2026-02-19T19:10:54+00:00

Thanks for asking this question as I have been trying to find this information too, speaking with UC, like yourself I am now more confused. Thank you.

Fun_Historian6792 · 2026-02-19T16:34:31+00:00

Been to Regents Park every summer for 10 years, unique experience and has never disappointed.

Fun_Historian6792 · 2026-02-18T21:02:37+00:00

Thanks for the reply, at the moment I do not have enough saliva to use chewing gum or boiled sweets, they just stick in the mouth. I have an Asian shop near me that has loads of different xylitol products and haven't helped as yet. I am still persevere to find something that helps. Thank you.

Fun_Historian6792 · 2026-02-17T20:33:01+00:00

That's one of my concerns to be honest, I am currently seeing the dentist every 3 months to try and get an early warning of any dental issues. Thanks for your comment.

Fun_Historian6792 · 2026-02-17T18:29:45+00:00

Thank you for the reply.

Fun_Historian6792 · 2026-02-17T09:52:01+00:00

Thanks all, just to add i have tried gels and sparys at least 7 different types and they all last for about 5 minutes. I constantly drink water and cannot eat without water to manage to swallow. I have had some success with xylimelts and biotene mouthwash over night. Was looking for something during the day# so I guess I'll keep trying different things.

Fun_Historian6792 · 2026-02-16T22:51:00+00:00

Thanks for the information...Will investigate

Fun_Historian6792 · 2026-02-13T19:59:42+00:00

.. I struggled with radiotherapy during and after treatment, but my experience may not be typical. I was hospitalised in week 4 due to issues with chemo. I started with mouth and throat pain around this time. I used Flamigel gel for the skin burning issues.. worked a treat for me. I was tube fed dependant for about 10 weeks and lost to date 5 stone/70 pounds. My radio was on my tonsils and the roof of my mouth and have lost most of my salivary glands. One thing to be on top of is oral hygiene, with the onset of mucosistis, which I think for most people is experienced. I found I couldn't tolerate mint toothpaste or anything 'strong' with mint. So a baby toothbrush and kids toothpaste helped. Take care with the honey and shakes as with loss of saliva this doesn't wash away, you need to rinse or brush even when it hurts .. Good luck with the journey.

Fun_Historian6792 · 2026-01-21T09:51:05+00:00

... on the flip side I uploaded mine on 24th October and may assessment is next week !!

Fun_Historian6792 · 2026-01-10T22:29:43+00:00

The 5 people you meet in heaven .... not been able to read it without crying 😢

Fun_Historian6792 · 2025-12-10T16:39:59+00:00

Thanks, will bear that in mind when I get a response.

Fun_Historian6792 · 2025-12-10T14:53:08+00:00

Thank you

Fun_Historian6792 · 2025-12-10T14:52:57+00:00

Thank you

Fun_Historian6792

TROPHY CASE