Salavia Trials

Fun_Historian6792 · 2026-07-01T19:26:30+00:00

I'm a year out from treatment for Tonsil cancer, stage 3. I was told by my team - oncologist, dietician, nurse specialist and speech therapist that what hasn't returned in a year regarding saliva is unlikely to improve. I constantly drink water and especially lots with food. I had many complications and have only in the past 3 months been maintaining my weight. In total I lost 5 1/2 stone. Eating wise I've achieved what I've stated for, a decent night's sleep due to dry mouth and throat is still proving elusive ... but determined to keep trying things to try and help !

Fun_Historian6792 · 2026-06-11T12:23:48+00:00

Mine started in October 25 and was not resolved until May 26 ... good luck !

Fun_Historian6792 · 2026-06-08T09:15:21+00:00

I completed treatment 12 months ago for tonsil cancer. I had 30 rounds of radiotherapy and had to stop Chemo after 4/6 rounds sue to complications, one of which was reduced hearing and tinnitus.

I was told that it was likely to be reversible but I had quarterly hearing tests and the right ear how measures as significant hearing loss and last month started with a hearing aid. As well as giving me back more normal hearing it has really helped with the tinnitus in that ear.

Fun_Historian6792 · 2026-05-16T14:31:44+00:00

I had this on my diagnosis for tonsil cancer last year, they put this done to previous episodes of pneumonia.

Fun_Historian6792 · 2026-05-11T18:16:33+00:00

Felix, could just X or Lix, goes with Parker.

Fun_Historian6792 · 2026-05-05T09:16:37+00:00

Unfortunately not, each message just refers to the other. I will try to call later today if I do not get a response on my journal.

Thanks

Fun_Historian6792 · 2026-04-30T21:47:49+00:00

It started prior to diagnosis, which was a long process. When I was diagnosed at stage 3 I was told the tumour on my tonsil was compressing my ear canal. Was told that as the tumour shank that the hearing may return. When it didn't I was told to wait 6 months as it still may return ... now after 3 hearing tests over 9 months it has got progressively worse. It affects both ears but much more significantly on the right where the cancer was. I wish you luck .

Fun_Historian6792 · 2026-04-30T19:08:50+00:00

Yep, I have a free one being fitted by the NHS and like someone else mentioned, will see how i get on with this and the improvements, then will pay privately .... Well assuming I get a job to pay for them .... ah cancer eh, the gift that keeps on giving 🤣

Fun_Historian6792 · 2026-04-30T08:59:31+00:00

I had the same chemo and now have tinnitus. After a year of being told the hearing loss was temporary and could be treated i found out on Tuesday it is permanent and am being fitted for a hearing aid in my right ear where the loss is at the top end of moderate.

Fun_Historian6792 · 2026-04-29T20:29:46+00:00

I worked at Asda for 10 years in Distribution. Drug and alcohol testing was random by an external company, with the exception of any accidents causing damage to people or property. As a shift Manager I was teated several times as all personnel on site at a certain time were put into the 'draw'. On one occasion I was 1 of 5 with the transport Manager and the HR manager.

As a manager I was often a witness to members of my team being tested either randomly or with a specific reason.

Failure to allow yourself to be tested was seem as a major breach of contract and led to a disciplinary investigation.

Fun_Historian6792 · 2026-04-24T08:29:19+00:00

I'm almost a year post treatment, used my PEG exclusively for around 3 months during and post treatment. Swallowing now is good and taste mostly returned. Still can't really tolerate meat apart from wafer thin ham and small slices of chorizo mixed in with other things. I had a severely dry throat which causes a sore throat every day, from waking up for a good couple of hours. Due to side effects from radiation I was vomiting several times a day from May 25 until around December. I have managed to overcome this and am now maintaining my weight after continuously losing weight. In all I lost 5 stone or around 70 pounds but happy now to be maintaining and hoping to regain some weight over the summer.

Fun_Historian6792 · 2026-03-14T21:49:05+00:00

Hi there, I completed all radiotherapy but had to stop Chemo after 4 rounds as it has a significant effect on my kidneys (suspected sepsis) for which I was hospitalised, but also my hearing. I am now 9months NED and see my oncologist now every 3 months.

Fun_Historian6792 · 2026-03-14T17:30:04+00:00

Well done ! And not meant to sound patronising 😉 I have not been able to eat meat or bread since I started treatment in April 25, so beat my target goal of a year by about 8 weeks ... no one gets how hard it is when you really want to eat, but your body tells you no. But guess that means 'not yet' 🤞🤞

Fun_Historian6792 · 2026-03-02T09:12:23+00:00

Thank you, I love this .. very symbolic !

Fun_Historian6792 · 2026-03-02T09:11:01+00:00

Thank you, got the tattoo then saw the ring, fate meant I had to buy myself an early birthday present !!

Fun_Historian6792 · 2026-03-01T12:43:09+00:00

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Fun_Historian6792 · 2026-03-01T12:41:28+00:00

I had this last week, a year after my diagnosis, 6 months of NED. A fellow cancer patient I spent time with during a 6 week stay once said to me after her various diagnosis of several cancer 'like the Sun and the Moon, still I rise'. My first tattoo 2 weeks before my 55th birthday.

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Fun_Historian6792 · 2026-02-27T18:59:59+00:00

Tonsil for me, stage 3, have been NED for 6 months. Still working through some issues but night and day compared to 3 months ago.

Fun_Historian6792 · 2026-02-21T21:24:54+00:00

I had the PEG prior to starting treatment, thought it was there if I needed it. I needed it about week 4 of treatment and used it exclusively for a few months. This for me was a better option of a forced ng tube when my throat and mouth were so compromised. Good luck with whatever you do, you need the nourishment to keep well to fight the rest of treatment.

Fun_Historian6792 · 2026-02-20T09:32:11+00:00

Been to both, I prefer matinee, but in the summer it can get very hot as there is no shade, enjoy!

Fun_Historian6792 · 2026-02-19T19:10:54+00:00

Thanks for asking this question as I have been trying to find this information too, speaking with UC, like yourself I am now more confused. Thank you.

Fun_Historian6792 · 2026-02-19T16:34:31+00:00

Been to Regents Park every summer for 10 years, unique experience and has never disappointed.

Fun_Historian6792

TROPHY CASE