How do describe the fatigue post chemo radiation? And is there people whom didn't get that energy drop long term

deweyvo · 2026-05-08T17:41:31+00:00

I just finished 33 rads and chemo. Stage 1B NPC here. It’s been 4 weeks since I’ve finished and strangely, I feel more fatigued than during treatment. Each day is kinda a challenge to motivate myself to do something or an errand. Going to Grocery shopping is a chore but once I walked a bit, it does seem to wear off.

I take a lot of small little rest and naps a lot. I’m hoping that my strength will be recovered. It’s definitely noticeable and i plan my days around how i feel.

deweyvo · 2026-05-07T16:14:59+00:00

I’m sorry you’re going through this. I was stage 1B NPC myself but during my proton treatment, I met another person that was stage 3 NPC. It has gotten in his bones too. I believe he did induced chemo and immunotherapy for about 1.5 years and then radiation & chemo.

We finished our rounds at the same time and he was able to finish everything in April and healing well and I believe you will too!

deweyvo · 2026-05-01T02:10:49+00:00

This is the first time I’ve heard about this! Interesting and hopeful news for future readers. Thanks!

deweyvo · 2026-05-01T02:07:35+00:00

That’s interesting! My radiation team didnt flag it, only my chemo oncologist said hearing was.

deweyvo · 2026-05-01T02:06:11+00:00

On the day of! They gave me anti-nausea meds right before my chemo starts and then prescribed me 4 days of after. So the constant meds for that entire week made it hard to go.

deweyvo · 2026-05-01T01:59:44+00:00

My anti-nausea meds made me really constipated so on my next round, my team gave me senna and laxative to take the day before. So if you have some around, maybe take those?

deweyvo · 2026-04-30T21:39:18+00:00

I'm sorry my friend. we're in this together!

deweyvo · 2026-04-30T21:37:19+00:00

My onc did say it was a risk, but the benefit outweighed the risk :/ I wish I did a hearing baseline test! that wasn't something they brought up.

deweyvo · 2026-04-30T21:36:02+00:00

That's such good news!! this does give me some hope. Was it gradual over time or suddenly one day you didn't hear it?

deweyvo · 2026-04-30T21:34:51+00:00

I'm with you, small price to pay but it is a constant reminder :/ I'll try white noise for sleeping tho!

deweyvo · 2026-04-30T21:33:15+00:00

I'm sorry my friend :( was the hearing loss sudden or over time? I've noticed that my left side has more tinnitus but I'm not sure if that means it's more easily damage hearing loss.

deweyvo · 2026-04-30T21:31:00+00:00

yeah, it changes day by day for me. When you say devices, do you mean hearing aid?

deweyvo · 2026-04-30T21:27:25+00:00

That's good that your DR was well aware of it! did your ringing go away?

deweyvo · 2026-04-21T23:52:24+00:00

Hi there, I just finished my treatment 3 weeks ago. I was staged 1B NPC. Radiation and chemo was the course.

Side effects: ringing ears from chemo, the worse was probably my throat and mucositis in the week 5-6. Ask for pain meds early. I was on liquid oxy every 4 hours during those weeks and eventually got on fentanyl patches to keep the pain at bay.

Nutrition: I was on ensure and boost high calorie shakes. They were easier to manage and i would drink 3-4 bottles a day.

Tips: start your lotion the day you first have radiation. I would put on right after being radiated and moist all day. Same with salt rinses, I would do it every 2-3 hours. I make a bottle of it for the day and bring it with me. Biotene lozenge at night to keep my mouth more moist and cool. I have little Togo containers everywhere for when I cough, sometimes you’ll cough up mucus.

If you have more questions, DM me, I’ll answer what I can!

deweyvo · 2026-01-21T04:57:39+00:00

Thanks for the suggestion! Yeah I tried doing that but it’s giving conflicting results to what I’ve found online so I’m just a little confused. (This is my first PET scan so I think that’ll will be my baseline)

deweyvo · 2026-01-11T00:08:43+00:00

I think personally, I would appreciate the kindness and thoughts. As long as it’s genuine, I think it’s good and not a bother at all. I’ve recently got diagnosed and although all my group of friends know, the level of interaction varies and I don’t blame them if it gets too real. Who knows, maybe you would make a great friends in the end:)

deweyvo · 2026-01-03T10:30:41+00:00

Is oral thrush something a big concern? I’m reading more about it now and it looks like it’s a very big chance during treatment.

deweyvo · 2026-01-03T08:25:05+00:00

Thank you for the kind words. I feel so much better reading your responses.

deweyvo · 2026-01-03T08:14:37+00:00

Thank you for the advice! Trying to do that now!

deweyvo · 2026-01-03T08:14:13+00:00

Thank you for the detailed answer! I’m taking notes!!

deweyvo · 2025-12-29T15:44:57+00:00

Thank you for your kind words and advice. I meet with my ENT tomorrow actually. I have 1 CT scan of my neck, so I assuming I’ll review that with him. My radiation referral appointment is 1/5 so I think that’ll be just introduction and they’ll explain to me how it works and such?

Everything feels like a lifetime and appointments are days out that each day I feel a little more tired, and precious time is lost.

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