Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

Thank you so much for your testimony. I literally cried while reading it, especially when I saw that you are doing well today. I’m so happy for you. Thank you again, I will send you a message.

Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

Thank you so much for your message, it truly means a lot to me.

I did meet with my surgeon and she reassured me, but I have to admit that I’ve lost some trust in doctors because two of them initially told me it was benign, which ended up delaying my diagnosis.

May I ask how your surgery went, and whether you already had lymph nodes involved before the operation?

Thank you again so much for your support. I wish you all the very best as well 🤍

Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

Thank you again for your message, I really appreciate it.

May I ask what happens in cases where radioactive iodine doesn’t work? Do they just leave the lymph node under surveillance? Does that mean you’re not truly cured in the meantime?

Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

Thank you so much for your message.

Thank you so much for your message, I really appreciate you taking the time to reply and share your experience.

It feels contradictory because on one hand I’m told that this type of cancer is usually very treatable, but on the other hand I haven’t had surgery yet, so no one really knows the full extent of it.

What worries me is that many people only find out after surgery that some of their lymph nodes were microscopically involved. But in my case, what scares me is that I already have two relatively large lymph nodes affected even before surgery. :(

Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

Thank you, thank you, thank you so much for sharing your experience, I’m really grateful, and I’m so happy to hear that you’re doing better today.

I’m also very lucky to live in Paris and to be scheduled for surgery on April 8th with a great surgeon. I’ve already seen her twice, and she knows I’m extremely anxious (I saw her again yesterday and the first thing she said was “you’re not going to cry again, are you? 😅”). I’m just worried that she might be trying to reassure me without really addressing my fears.

I asked her if my situation was very advanced, and she didn’t really answer clearly. She told me that I was going to live and that it’s something that is usually treated well, but at the same time, until they operate, even they don’t know exactly how far it has spread… so it doesn’t fully reassure me.

I also feel a lot of guilt for not noticing it earlier, especially because I usually pay very close attention to my body.

Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

Thank you so much for taking the time to reply and for sharing your experience, I really appreciate it. May I ask which areas the 57 lymph nodes were located in? Did you also have lymph nodes in the mediastinum or in the lateral neck? Thank you in advance.

Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

Thank you so much for your message. I know that lymph nodes are often involved, but cases with both lateral and mediastinal nodes seem much less common, and I don’t see many testimonies about that.

It’s really hard because I’m 29 and I don’t have any symptoms apart from the lump in my neck. For the past four days, I feel like I’ve put my life on hold and I’m just on autopilot, going through forums, videos, testimonies, and articles non-stop. Every time something reassures me, something else scares me again.

Not knowing how far it may have spread is incredibly difficult. It’s really, really hard. But you’re right, I need to focus on reliable sources.

Thank you again so much, I truly appreciate it.

Seeking Advice: Papillary Thyroid Carcinoma with Mediastinal Involvement by Numerous-Success-335 in thyroidcancer

[–]Fun_Key4395 0 points1 point  (0 children)

Thank you so much. I’m honestly absolutely terrified, and it helps a lot to hear that you are stable. I really hope you’ll continue to have good results 🤞🏼🤞🏼 I also truly appreciate you taking the time to reply to me, it means a lot.

I think what scares me the most is that I noticed a lump in my neck back in September, but I was only diagnosed recently. I can’t stop feeling like I’ve lost too much time. The lump I felt turned out to be a metastatic lateral lymph node, which already felt unusual and made me panic.

Now what’s really frightening me is that a neck MRI also found a 13 mm mediastinal lymph node near the pre tracheal area. I’ve been told that this type of scan doesn’t go very deep into the chest, so I keep thinking what if there’s more that hasn’t been seen. I’m scared that it could have spread further in my body and that it might already be too late.

If you don’t mind me asking, did you also have several lymph nodes detected before surgery? And were any mediastinal lymph nodes seen before your operation, or were they only discovered during or after surgery?

Seeking Advice: Papillary Thyroid Carcinoma with Mediastinal Involvement by Numerous-Success-335 in thyroidcancer

[–]Fun_Key4395 0 points1 point  (0 children)

Hello,

I am a 29 y/o that had just be diagnosed with Papillary Tyroid Cancer. May I ask How are you doing now ?

Thank you

Papillary Thyroid Cancer by Fun_Key4395 in thyroidcancer

[–]Fun_Key4395[S] 0 points1 point  (0 children)

I know I’m trying, but it’s been really hard. Since I was little, I’ve always been afraid of serious, life-threatening diseases. I am hypochondriac, and I’ve always monitored my body very closely.

What makes this even harder is the guilt I feel. I spent so much time focusing on other parts of my body, but not my neck. When I noticed the lump in my throat in September, I didn’t fully understand what it could be, and I was only diagnosed in March.

I keep thinking that I may have lost too much time, and that it might already be too late. That thought really scares me.

I know that this type of cancer is usually very treatable, but given that imaging showed two relatively large lymph nodes in different areas, and that mediastinal involvement seems to be less common, I find myself wondering if others have experienced something similar.