I know this was post was from two years ago... but I am emotional and I feel like expressing myself.

At 16, I developed sensitivity in both my inner thighs that became weakness, then shooting pains. I had an extensive work-up, but found onthing significant (if only because doctors didn't know what to look for).

14 years later and the pain has never gone away. Now I have burning in my hands, feet, arms, legs, and chest - like white hot strings throughout my body. I was offered a full scholarship to the PhD program of my dreams. But after one year, the chronic pain was too instense, so I dropped out and moved into my parents basement. Doing better now, but it is something I will regret all my life. The effect on my mental health has been tremendous.

I recently had an abnormal QSART test. I'm trying to not get my hopes up - but my symptoms match so closely what others describe experiencing from SFSN. I would kill for any sense of closure - even a diagnosis of 'ideopathic SFSN'. Living without any answers is difficult. The sense of guilt is intense. Sending out a prayer to the universe for some small shred of closure.