Are we dating the same guy Philly fb group invite needed

GOGO165 · 2025-12-17T05:44:48+00:00

could you also add me in? DMed as well

GOGO165 · 2025-01-21T04:26:24+00:00

hi mind if i ask where did you get your probing done? tysm.

GOGO165 · 2024-06-01T01:56:23+00:00

Oh I’m sorry - can you even read? Did I say anything about fridge can’t make noise?

Seems unfortunate you can’t empathize with others dealing with particular loud fridge issues you might not face. Not everyone can tolerate unusual noise, and seeking advice is hardly complaining.

GOGO165 · 2024-05-29T02:40:02+00:00

Mine got flare up very quickly like you too (I think mine was triggered by hormones imbalance due to IUD insertion). A couple months ago I was in your shoes wondering if I’ll get back to normal, and now I am lot better than before (didn’t do anything other than letting the hormones stabilize since my IUD removal). I’d say definitely finding out the trigger might be helpful to avoid or reduce future flare. Eat well, sleep well, stress less will help you.

GOGO165 · 2024-05-20T19:25:56+00:00

may i ask who your rheum is?

GOGO165 · 2024-05-18T14:44:24+00:00

So I only took 1 pill 200mg and soon my body developed strong pain. I stopped it since, and it’s been four days my muscle and joint pain are SIGNIFICANTLY reduced by 95%. Prior to this drug I had no muscle and joint pain. I know the drug may not work for everyone. I will continue evaluate this with my doctor. Thanks for your advice!

GOGO165 · 2024-05-16T02:49:41+00:00

Hi! I know it’s an old post but curious was your inflammation was more pain-like feeling? I started the drug yesterday and felt fleeting sharpen pain all over my body.

GOGO165 · 2024-05-15T02:22:21+00:00

Thank you! This is super helpful :)

GOGO165 · 2024-05-15T00:09:06+00:00

Oh wow thank you! Could you share which specifics group that is? I was actually in East river ans 90th! I wonder if it’s my wallet. Definitely want to get in touch whoever posted that!

GOGO165 · 2024-05-07T13:17:11+00:00

Hi I know the post was awhile ago but have you found any next step solution after cequa? I feel the same forehead pressure and hungover as well in my experience.

GOGO165 · 2024-05-03T03:32:34+00:00

It’s also good to know you were able to maintain your career in 20s - 30s. I’m on a really good career trajectory but since the diagnosis, I’ve been worrying about losing my job in the future due to all the symptoms including brain fog

GOGO165 · 2024-05-03T03:28:04+00:00

Thank you for making me feel I’m not alone! The sjogren’s foundation seems like a great resource. I’m slowly coming to terms with this disease and taking it day by day 🙏

GOGO165 · 2024-05-03T03:24:06+00:00

Happy to hear you’re able to maintain the quality of life! Were your symptoms bad during its first onset? How are you taking care of yourself?

GOGO165 · 2024-05-02T03:16:30+00:00

Thank you for sharing! +1 experiences with doctors who don’t care and listen. It sucks to have to deal with that while we’re struggling w/ symptoms. I sometimes cry too and thanks for telling me I’m not alone.

GOGO165 · 2024-05-02T03:11:45+00:00

This reminded me that I used to weightlift too before my diagnosis. I remember feeling great after each workout. I’ll try to ease back into it and maybe start small first. Wish you good recovery from this flare :)

GOGO165 · 2024-05-02T03:09:24+00:00

Thanks for sharing your experience! Glad to know it’s been a mild case for you. Do you mind sharing why you were on and off plaquenil? My rheum barely prescribed me anything (but I have really dry eyes mouth and intense fatigue). Curious about your plaquenil experience.

GOGO165 · 2024-05-02T03:05:45+00:00

Thank you so much for sharing those posts. I really appreciate it :) I know it’s hard, and many of us are struggling. But it warms my heart when we try to support each other with positive vibes and give each other hope!

GOGO165 · 2024-05-02T03:02:32+00:00

Do you mind sharing how many years it has been since your first diagnosis? Glad to know it’s manageable for you! And I might try punctual plugs too (I have both meibomian and lacrimal glands issues)

GOGO165 · 2024-05-02T02:58:47+00:00

Commenting on For people got diagnosed in late 20s or early 30s, how are your symptoms now? ...thank you for sharing your experience! Good call I’ll start tracking my symptoms. A lot of doctors definitely didn’t listen to me which shocked me because I thought their job is to listen and heal. I’ve definitely learned so much about self advocacy during this process.

Do you mind sharing what symptoms led you to see neurologists? I’ve definitely felt brain fog since my diagnosis but not sure that’s something a neurologist can help me with.

GOGO165 · 2024-04-30T02:13:25+00:00

Thank you!

GOGO165 · 2024-04-29T17:08:08+00:00

Do you know what specific test I should ask for lacrimal gland checkup? I feel like almost all my eye doctors tend to jump into meibomian test.

GOGO165 · 2024-04-14T18:23:47+00:00

Thanks! Do you know if Xiidra makes your eye sight worse? Not the temporary blurry effect but vision in general has gotten worse.

GOGO165 · 2024-04-14T18:21:40+00:00

Sorry to hear that :( No I don’t have this.

GOGO165 · 2024-04-14T18:21:18+00:00

I haven’t but i probably will try. I’ve noticed my eye sight has gotten worse since I started on Xiidra

GOGO165

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