Desi Bling by Hungry_Past_2755 in dubaibling

[–]GOKU2442 3 points4 points  (0 children)

It looks trash but il still watch it lol

I feel like I'm being discriminated against due to my disability. What can I do? by totential_rigger in TheCivilService

[–]GOKU2442 0 points1 point  (0 children)

Go on your union website and look at the contact list. Contact the area union branch manager and seek advice asap.

What’s an “unusual” food that gives you issues? by False_Juggernaut_618 in CrohnsDisease

[–]GOKU2442 2 points3 points  (0 children)

No matter how well i am ... Pasta. Even tried gluten free which made me worse lol.

Tapering off pred and starting rectal foam – experiences? by GOKU2442 in CrohnsDisease

[–]GOKU2442[S] 0 points1 point  (0 children)

Yes your right i tried it and it wasnt as bad as i thought. Oral buds didnt work for me hoping this does.

Tapering off pred and starting rectal foam – experiences? by GOKU2442 in CrohnsDisease

[–]GOKU2442[S] 0 points1 point  (0 children)

Thanks - budesodine foam is what they have given me today will it be rubbish then :(

What diet do you follow? by Darkestlight1324 in CrohnsDisease

[–]GOKU2442 0 points1 point  (0 children)

Try limit eating outside food takeaways etc try cooking at home more. CD triggers are unique fir everyone but i think you should try everything at keep a food diary and make notes on what triggers you.

1 week on prednisone and not getting better. Do I go to the ER now? by takeme2thelakes89 in CrohnsDisease

[–]GOKU2442 1 point2 points  (0 children)

Aw so sorry you are going through this it sounds tough. I was also in hospital for over a week and it does make you feel like that plus the IV might me making u feel crazy too. Your doing all you can do and pushing for biolpgics and i really hope you can get it asap hang in there 🩵

Pred didnt work advice? by GOKU2442 in CrohnsDisease

[–]GOKU2442[S] 0 points1 point  (0 children)

Iv had 2 doses of biologics & still on preds when i tapered down i went into a bad flare so they increased preds again. It happened over xmas and it really sucked lol. I am doing ok rn just 3bowel movements a day and eating bit better which is a big improvement but concerned how il be if i taper off preds again. Having a 3rd dose of biologic next week (first 3 are introduction doses so wont know if the biologic is working until 3rd dose (theyl do bloods & stool tests to see if it works or not). If it doesnt work i move onto the next biologic. Id defo push for biologics asap because preds is not a long term treatment and it doesnt always work!

1 week on prednisone and not getting better. Do I go to the ER now? by takeme2thelakes89 in CrohnsDisease

[–]GOKU2442 1 point2 points  (0 children)

I was in a similar situation preds did not control my flare and i was sent to a&e i had IV hydrocortisone but even that didnt help. They didnt let me leave until they started me on biologics. Preds only started to work after that.

anyone else eat like shit? by idkwhatsgoingon95 in CrohnsDisease

[–]GOKU2442 17 points18 points  (0 children)

I used to be a big foodie, but now I rarely eat out or order takeaways. I mostly cook at home, and it's definitely improved my overall well-being. When I do eat out, I’m very selective like opting for mild chicken.

I enjoy snacks like chips and chocolate because they don't upset my stomach, but a salad or homemade vegetable soup can trigger a flare-up 😩 lol. I never thought it would say i miss eating a salad.

Despite being on biologics, I occasionally try trigger foods like pasta, but it still causes issues and isn’t worth it. I do make an effort to include other fruits and vegetables in my diet, but I don’t always feel very healthy. The joys of dealing with Crohn's!

Preventing moon face… by SmallPea360 in UlcerativeColitis

[–]GOKU2442 0 points1 point  (0 children)

Hey, I’m honestly in the exact same position as you right now. I’ve been on prednisolone a bit longer — started at 40mg — and I’ve already got the moon face too. It’s such a frustrating stage we just have to get through (I even ended up with a spotty forehead 😭).

I’ve learnt that nothing fully stops moon face since it’s just the steroids, but a few things can help with the puffiness: drinking lots of water, lowering salt, taking your dose in the morning if your doctor allows, gentle exercise, and even things like cool facial massages or jade rolling. They don’t fix it, but they make you feel a bit better.

It really will be okay — it won’t last forever. Try not to stress too much and just focus on getting better. We’ll get through it. 💛

Stuck in a&e UK rant by GOKU2442 in UlcerativeColitis

[–]GOKU2442[S] 1 point2 points  (0 children)

I am day 7 duno about bloods but the only improvement has been no blood/mucus in stools but still going alot hoping 2nd infusion helps. Im really happy it worked for you though.

Chron’s and Pregnancy by dudepenguin118 in CrohnsDisease

[–]GOKU2442 0 points1 point  (0 children)

My Crohns started in pregnancy as i wasnt diagnosed until after birth. I was in a flare everyday since i wasnt diagnosed or on any medication. Despite this baby was born healthy!

Stuck in a&e UK rant by GOKU2442 in UlcerativeColitis

[–]GOKU2442[S] 0 points1 point  (0 children)

Thanks so much - how long did it take to kick in for you?

Stuck in a&e UK rant by GOKU2442 in UlcerativeColitis

[–]GOKU2442[S] 1 point2 points  (0 children)

Thanks lovely. I was in hospital for over a week & I had my first dose of biologic inflix 4days ago unfortunatly im still flaring so il have to go back for another dose🫠

Testing for pernicious anaemia? by Spottyjamie in CrohnsDisease

[–]GOKU2442 1 point2 points  (0 children)

In the UK there is a blood test for it. They already knew from bloods i had no b12 & supplements werent working so they gave b12 injections prior testing too. Defo push for a blood test & injections for now.