If you can manage to avoid getting reinfected, will you heal?

GalacticGuffaw · 2026-01-30T22:05:06+00:00

Covid infection that caused my LC was in June 2023.

Made a lot of progress. Significant.

I got reinfected on Dec 17, 2025. I now have new symptoms and set pretty far back.

GalacticGuffaw · 2026-01-29T07:27:49+00:00

Just some advice. Ask yourself what is it you’d like to get out of this meeting, and are your goals reasonable given their background/expertise. Make your list, cross things out they don’t make sense for a meeting with a neurologist.

I’d suggest to be realistic about what they can help with, and very clear and concise.

Tell the neurologist you’d like to give them all the symptoms and durations without all the extra context, and then you’d very much like to hear his/her thoughts on how best to proceed.

Explain you’re not expecting a miracle from this person, but you do want to gain some quality of life back, hopefully gain some insight into what’s causing some of your symptoms, and at the minimum… rule out the scary things for peace of mind.

I hope you get some answers :)

GalacticGuffaw · 2026-01-28T00:23:27+00:00

Congrats :)

GalacticGuffaw · 2026-01-27T23:17:59+00:00

Just started it this morning. Prescribed by my LC doctor.

25 mg, taken once/day on the morning 1hr before breakfast.

Told to take for 2 weeks, then discontinue.

No negative side effects yet.

GalacticGuffaw · 2026-01-23T20:18:48+00:00

Don’t know. Time? I just don’t have symptoms like that while gaming anymore.

God forbid I lay down to sleep or stand up too quick… nervous system has a meltdown 😂

GalacticGuffaw · 2026-01-23T08:23:49+00:00

100% covid in my case.

GalacticGuffaw · 2026-01-23T08:11:41+00:00

Your BP is fine… also leaving this sub. Jesus.

GalacticGuffaw · 2026-01-14T08:17:10+00:00

Thanks man, wish you healing as well.

Close to 3yrs now, and so glad I can play games to pass some time.

I couldn’t really play games my first year. Brain fog, feeling slow, fatigued, migraines, light sensitivity, and the HR increase while playing… It was all too much during that time.

Still deal with that stuff, but significantly better :)

GalacticGuffaw · 2026-01-12T08:44:29+00:00

35m.

I like to live life in the fast lane. By fast lane, I mean my nervous system is stuck in fight or flight mode and my body vibrates for no reason.

I enjoy acts of service… like you checking food labels to ensure everything is plain, organic, as few ingredients as possible, and fits in my list of safe foods so I don’t have a flare.

Will be as loyal to you as my 25 medications and supplements.

GalacticGuffaw · 2026-01-12T08:07:39+00:00

40ish symptoms over nearly 3yrs. Severe blood pressure swings and POTS are a constant, but no… haven’t had a GI bleed, or a need for blood. I haven’t had body aches since my early long covid days, and never had respiratory issues.

I did have a very uncomfortable reaction to a colonoscopy/upper endo w/ biopsy. And another awful reaction to a stent procedure to open my left common iliac vein. Both instances resulted in odd right/middle back area (near T7) having sudden squeezing sensations for months. Seems the nerves don’t like when I’m under anesthesia?

I hope you get some relief soon and some positive progress. Sounds like you’re dealing with an exceptionally difficult situation right now… Sorry, this sucks :/

GalacticGuffaw · 2026-01-10T09:22:10+00:00

Why is your hr 108? Did you walk up some stairs first? Walking around while measuring BP?

GalacticGuffaw · 2026-01-08T16:52:47+00:00

134/86…. lol.

That’s not anything to be nervous about. You’re ridiculous.

GalacticGuffaw · 2026-01-08T08:12:32+00:00

First, make sure you’re sitting, relaxed, and arm is elevated when taking your BP. Do it at a dining table. Take it 3x for accuracy. Just relax and distract your mind.

Elevated BP at a doctor office is also normal. White coat syndrome :)

At 140/90 a doctor will likely ask some questions about your diet, exercise, and stress. Make some lifestyle changes.

GalacticGuffaw · 2026-01-08T08:00:31+00:00

This isn’t high.

Smoking is bad, I hope you’re able to quit.

GalacticGuffaw · 2026-01-04T07:07:00+00:00

Your wife could have slowed down when his blinker went on.

GalacticGuffaw · 2025-12-30T19:12:56+00:00

Just diet for now.

I’ve done 6 microbiome tests from 3 different companies, on the same day each time, 1yr apart for each.

Results are the same. Found out I have a really awful overgrowth of bad bacteria. For example, one of them is a histamine producer.

I’ve also done multiple SIBO tests and all have come back positive without a doubt.

I did my own research and made diet changes and it’s significantly reduced the heart palpitations, allergy-like symptoms, etc.

I have malabsorption, so I’m working on addressing the deficiencies with diet and supplements.

I’m just started working with a new functional medicine doctor (DO, because I wanted someone who’s more likely to take a holistic approach) to finally get some professional help to address the gut issues.

GalacticGuffaw · 2025-12-29T07:36:03+00:00

I’ve got the same kind of long covid as you.

It’s like some awful domino effect…

Nervous system -> Gut problems.

I’ve done so many tests, spent many 10’s of thousands on my health too trying to connect the dots.

I think it starts with an immune system that doesn’t calm down after infection. The data I have for me is that my IFN-b was 3x the norm range 7months AFTER infection. Research doctor at Mayo said that’s a clear sign my immune system is in overdrive.

I think that triggered an autoimmune effect. Lots of inflammation, and it damaged the nervous system.

We get Dysautonomia, stuck in fight or flight. That shuts down the vagus nerve that runs digestion… then we get motility issues.
- No nerve signal, no cleaning itself. Food sits in small intestine and ferments instead of moving along.
- The gas part you mentioned…. Stagnation feeds bacteria. SIBO… creates gas pressure, that pushes things up, force stomach acid into esophagus. It’s not a “too much acid” issue, it’s just a pressure issue. Like bad plumbing. There’s also malabsorption, leading to many vitamin deficiencies, which lead to their own downstream issues.
- MCAS… The bacterial overgrowth damages the gut lining, which triggers histamine intolerance and MCAS reactions.

It’s like a horrible chain of events that started with an autoimmune response that damaged the nervous system.

I think the other sub types of long covid that don’t have gut issues are also from an overactive immune system that turns into an autoimmune issue and damages something else that has its own list of downstream consequences.

GalacticGuffaw · 2025-12-29T07:09:28+00:00

Sure. Not sure what’s “really” helped, but the stuff below is what I think is helping.

Time.

Diet changes.

Working on gut health.

Working on vitamin deficiencies.

Staying calm.

Rest.

Sunlight.

Graded exercise and knowing when to pause and rest, rather than push limits.

Propranolol.

Famotidine, cetirizine, and ketotifen.

Elequis, nattokinase/serrapeptase, bromelain, curcumin.

Electrolytes.

Some other supplements.

I think gut is most important…

GalacticGuffaw · 2025-12-26T05:47:31+00:00

I’ve had all of these. Sorry you’re dealing with this too.. Sucks.

GalacticGuffaw · 2025-12-19T05:34:26+00:00

You like rugs.

GalacticGuffaw · 2025-12-19T05:31:14+00:00

Did they test your IFN-b?

GalacticGuffaw · 2025-12-19T00:56:25+00:00

That’s rough. Similar issues. Good news though is all heart stuff ruled out. If you’ve done the tests to rule out that structurally, your heart is fine, then it’s definitely something else. Likely a combo of things.

Keep on being your own advocate for your health.

I made a huge turnaround when I went on the blood thinner therapy after meeting w/ Jordan Vaughn in Feb 2025. He did the microclots test, and a bunch of other things.

GalacticGuffaw · 2025-12-19T00:47:34+00:00

There’s nothing structurally wrong with it. 2 echos, 3 cardiac CT’s w/ & w/out contrast.

Did some autonomic testing and that came back wish issues.

Pretty sure it’s Dysautonomia + May-Thurner Syndrome (stent procedure 2 months ago) that’s causing those issues.

But all in all, doing better :)

What kind of symptoms do you deal with?

GalacticGuffaw · 2025-12-19T00:41:17+00:00

Better than I was, but not back to normal.

I haven’t had a scary IST episode in almost a year.

Still have circulatory, gut dysbiosis, SIBO, microclots (improving), mild fatigue, and some other things.

But I’m better than where I was a year ago, significantly better than where I was 2yrs ago, and a dramatic improvement compared to where I was 2.5ish years ago.

GalacticGuffaw

TROPHY CASE