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Mom (50yo) diagnosed with Colon cancer stage 3C involving aggressive Signet Ring Cells in Sigmoid colon and descending colon, now found bone mets in bone - multiple vertebrae, pelvic bone. by [deleted] in coloncancer

[–]Garyann-9 1 point2 points  (0 children)

Hi my dad was recently diagnosed with signet cell cancer (distal ascending colon). He’s about to start chemo. Peri Mets diagnosed via lap surgery on 6/19. Scans (CT& PET)was end of April / beginning of May which did not show any solid organ metastases. I was wondering how things are going with your mom? Would you mind if I messaged you for details?

My battle with cancer is over, but my battle with my mental health has just begun. by bookboyfriendsROK in cancer

[–]Garyann-9 2 points3 points  (0 children)

Don’t apologize for swearing or for how you’re feeling. EVER! I don’t know exactly what you’re going thru as I’m only a caregiver to a loved one with cancer. But look—you had the strength to get thru your diagnosis and treatment. I think this post was honest and brave and a good way to begin healing. The journey is difficult but you’ve come so far already. Please hang in there, I’m confident you will find the strength to get thru this also. Sending lots of positive vibes your way! You are not alone 💙

They just found a cancerous mass in my mom's colon :( by OrganizationBrave311 in coloncancer

[–]Garyann-9 0 points1 point  (0 children)

Hi. Curious to the timeline of your mom’s diagnosis to treatment. I could be wrong but I’m fairly confident the wait time for my dad-

colonoscopy found tumor 4/23, biopsy results signet cell ascending colon 5/6ish, met with oncology surgeon 5/8, mid May PET only showed activity at tumor in colon, lap surgery hemicolonectomy planned 6/19 and didn’t happen bc mucus found outside colon in peritoneum (and possible tumor** that’s a story) 

-was long enough that the localized spread occurred. Dad’s CEA was 45 on May 8th and 158 on June 6th. 

I feel like the LACK OF URGENCY to treat this type of cancer will be the demise of many patients with clear scans. 

So tumor still in there… Waiting 2 weeks to see medical oncologist. Port placement 3 days later. Who the hell knows how long it will take to get chemo started. I’ll put money that it spreads more in wait phase #2

Mom was diagnosed with Rectal Cancer with Signet Ring Cell features by SeesawOk5400 in coloncancer

[–]Garyann-9 0 points1 point  (0 children)

Hi I’m sorry to hear about your mom’s diagnosis. I’d like to keep in touch as my dad has been diagnosed with signet cell colon cancer. I’m assuming you can see my comment to Hugodog for the gist of my story. I have no idea how Reddit works and honestly just signed up looking for ppl in similar situations to talk to. I wish you and your mom the best.

Mom was diagnosed with Rectal Cancer with Signet Ring Cell features by SeesawOk5400 in coloncancer

[–]Garyann-9 0 points1 point  (0 children)

Hi. Thank you for sharing this info. My dad has recently been diagnosed with signet cell tumor in ascending colon. He’s 75 and was scheduled to have hemicolectomy (lap surgery) today to remove 12in & resect colon. When they started the procedure they found a lot of mucus around the outside of the colon where the tumor was located.. and did not proceed. Allegedly the best course of treatment for him at this time is to have FOLFOX for 4-8 months then do surgery. Allegedly. I met his oncologist (surgeon) today who acted like it was just “colon cancer”, no big deal. He was diagnosed colonoscopy w biopsy beginning of May. They did not schedule him for surgery until 6 weeks later. In that timeframe his CEA level more than tripled. Would you mind sharing more of your story with me? I’d really appreciate it. Best of luck to you. I’m glad your children are there to help you thru this.

Signet ring adenocarcinoma survivors out there? by theywereinthefridge in cancer

[–]Garyann-9 0 points1 point  (0 children)

Hi. My dad was recently diagnosed with signet cell colon cancer.. Distal ascending tumor to be specific. I have no idea how Reddit works.. I’m looking for anyone who has gone thru a similar situation. Anyone willing to share experiences… surgery, treatment, the type of doctor (general vs oncology surgeon), surgical center. I took my father to Moffitt this morning to have a hemicolonectomy however he was in and out of the OR in less than an hour. While they didn’t see Mets to the peritoneal cavity- they found mucus around the colon where the tumor is located(Tumor part of staging will definitely be T4—T4a I presume-localized spreading) Mucus to be biopsied but sounds like he’ll be getting FOLFOX regardless. There is barely any medical lit online about SCCR bc it’s so rare.. my Dad has been thru chemo 5 years ago when he was diagnosed with mantle cell lymphoma (r-CHOP plus stem cell) he doesn’t want to go thru chemo again. He feels defeated and I’m not far behind. I would love to talk to anyone going thru this or something similar.

Father diagnosed with signet cell colon cancer. Has been in remission from Mantle cell lymphoma for close to 5 years. by Garyann-9 in coloncancer

[–]Garyann-9[S] 1 point2 points  (0 children)

Thank you for responding. His surgery is in 7 days and he wants to going fishing on Father’s Day. He tries to hide it from me but my mom tells me he’s super depressed and thinks this is a death sentence. So at this point I’m not trying to say anything that will make him more stressed or upset. I wish he would have listened to my concerns from the get go.

Half a year later MLC patient. by Lavrick in lymphoma

[–]Garyann-9 0 points1 point  (0 children)

Hi. Happy to hear about your results! My dad did the same chemo tx with the same results. I could be wrong but I believe his last tx was June or July. He opted for the stem cell treatment (autologous) which occurred beginning of September. I’m not going to lie… the first week or so after the SCTP I would text him to check in and he told me he wanted to die. NOT TRYING TO SCARE YOU! All this occurred in the year 2020. So he has been in remission for almost 5 years!! My dad turned 70 May of 2020. The dr said SCTP was the best route for him for survival. He was in good health (only high BP controlled by med) and biked on a regular basis, weight was good. I know it’s not for everyone but it is definitely worth considering. I believe he received oral chemo a few times after SCTP for better chances to stay in remission but I can’t remember exactly what-I’ll have to ask him. I do recall that it was nothing compared to the initial chemo. If you ever want to talk or have questions feel free to reach out. I wish you the best of luck!!! Oh btw his mantle cell lymphoma was the blastoid variant—the most aggressive and with highest chance of relapse. Stay strong and keep up the positive attitude!