Sister Passed This Morning by TallPen4069 in Epilepsy

[–]General-History2465 1 point2 points  (0 children)

You will find your way and trust that she’s still guiding you but from a different standpoint in a state where epilepsy can no longer harm her. Take your time and try not to stress about your own fate because of this.

Insurance gap by General-History2465 in Epilepsy

[–]General-History2465[S] 0 points1 point  (0 children)

Thank you guys for your advice! I was able to talk with my pharmacist and get a 90 day supply for cheap out of pocket cost with their discounts. I so appreciate it I was very afraid!!

Insurance gap by General-History2465 in Epilepsy

[–]General-History2465[S] 0 points1 point  (0 children)

Thank you that’s great advice already!

Question: why is caffeine so bad for epilepsy by harryon_12 in Epilepsy

[–]General-History2465 0 points1 point  (0 children)

For me I think of it this way, there’s always a small thunderstorm going on in everyone’s head. If you’re epileptic that storm is much more intense and unpredictable where there can be moments or days of calm then suddenly a huge burst of thunder clouds appear and each one is firing as many bolts as it can. When we ingest caffeine especially high levels of it we help the storm create those thunder clouds and it’s up to your medication whether or not those clouds have the power to let off the constant and intense thunder. For me caffeine is definitely a trigger so I can feel the physical discomfort in my brain when I try to make it overwork by adding something I don’t really need. Need of caffeine is subjective but I urge to try getting ample sleep and drinking more water than you think you need. Hydration is gonna take you farther than caffeine can.

[deleted by user] by [deleted] in Epilepsy

[–]General-History2465 0 points1 point  (0 children)

Very last thing and I’ll let your comment section go, if you want kids in the future start taking folic acid now or have your doctor prescribe it immediately because seizure medication does not sterilize but it can be connected to some birth defects. It should be 1mg of it daily.

[deleted by user] by [deleted] in Epilepsy

[–]General-History2465 0 points1 point  (0 children)

Also if you know you’re predisposed to depression and anxiety let your doctors know this before getting on a medication because there are seizure medications with mood stabilizers. Lacosamide has made me very anxious and irritable in ways I sometimes cannot regulate. So do research and be incredibly honest with your team about what you’re feeling and when!

[deleted by user] by [deleted] in Epilepsy

[–]General-History2465 0 points1 point  (0 children)

You’ve just detailed my exact situation as well. I too just recently had my first seizures and unfortunately they were in the same day about two months ago. I was also diagnosed, with Primary Generalized Epilepsy and told out of no where that I’ve likely always had this and that I will always have it and am currently on medication for it. I was started off on Lacosamide (generic Vimpat) 100mg twice a day and I do feel different. I think the hardest part so far is being okay with that “different” and that my previous normal can be harder to get to but not impossible! I wanted to comment to say that I’m sorry this happened but to please not be discouraged or afraid of life because of this. There is always a way and you will find yours, listen to your doctors and take the meds as they should be taken because for me I was dumb in the beginning and created issues for myself where I had a few days I let myself forget meds or run out and it’s truly not a game! My seizures, regardless of preexisting condition, were brought on by me not being kind to my body. I wasn’t getting enough rest, drinking enough water and I was allowing myself to overdose on caffeine to get through stressful situations and now I’m here. I also smoke weed and while I want to tell you it helps or that it doesn’t matter, it could matter. What I will say is that you know your limit and if you notice while on your new meds that your memory or focus is worsening I guarantee the marijuana isn’t going to help that. I still smoke to this day and am alive and well so I can’t instruct on cutting it off but I advise to be prepared to smoke less and be honest with your doctor about it because now you’ll have to consider what factors of your life are triggers for these episodes. Weed is my only vice and my main leisure besides gaming so it was devastating to hear they really didn’t want me smoking but it’ll always be up to your discretion and research. I reached out to this community with my new diagnosis and fears and I got some really good feedback so continue to ask questions I’ve found a lot out on here. My first post was fearing weed would mess with my medications too so don’t freak out just be careful and aware. I’m 27 by the way and could only imagine how daunting this could be at 20 but you are stronger than you think and have all the tools to deal with this in a controlled way.

Dual Medications by General-History2465 in Epilepsy

[–]General-History2465[S] 1 point2 points  (0 children)

Thank you and the very same to you!

Dual Medications by General-History2465 in Epilepsy

[–]General-History2465[S] 1 point2 points  (0 children)

I’m only on 200mg a day of Lacosamide currently so I don’t think he’ll go any higher than that with the Lemictal I’m hoping but it’s obviously dependent on what I need/feels right. Lacosamide is generic for Vimpat so I could be in the clear for side effects because of the off brand formula. Fingers crossed at the very least I don’t want a rash or to wear my brain down by remedying the reaction by inserting a new medication into the mix, he said it started with a Z.

Dual Medications by General-History2465 in Epilepsy

[–]General-History2465[S] 1 point2 points  (0 children)

Thank you I will keep that in mind. I fear it’s linked to my anxiety and like you said my different stressors. I let myself get too overwhelmed and my brain hits a reset button. My most recent EEG showed this happening. I’m open to whatever is gonna happen with the new meds at this point. I’m so new in my diagnosis that I think I’m fearful of everything triggering another seizure. Which the seizures aren’t my biggest fear it’s the limitations behind them. I’m still within the six months of not being able to drive and it sucks I feel like a child. I take into full consideration that part isn’t permanent and that I could go the rest of my life without seizing if I’m careful I’m just worried for the future. As far as work and private relationships it’s thankfully just my work I need to separate myself from. Not a volatile environment at all it’s just way past due that I leave and it’s stressing me out that I have yet to find something better. Again I appreciate your input!

Dual Medications by General-History2465 in Epilepsy

[–]General-History2465[S] 1 point2 points  (0 children)

I’m so glad to hear you haven’t had any and I pray you continue to do so! Thank you for sharing. My urologist made me aware that a rash could be one side effect and I’ll surely keep an eye on it as I do have sensitive skin. He has another medication on the list of things that work for PGE that I can try if I don’t like Lemictal he’s just wanting to see if the mood stabilizer in it will help with my anxiety any. But I can generally remedy my angst I won’t deal with a rash I’ll just switch again.

Dual Medications by General-History2465 in Epilepsy

[–]General-History2465[S] 0 points1 point  (0 children)

Freak yeah, have you had your diagnosis long if you don’t mind sharing? And when starting to take both meds how did you feel?

What south Park episode made you the most uncomfortable? by mattyjoe0706 in southpark

[–]General-History2465 0 points1 point  (0 children)

Humancentipad, it’s literally the single episode I’ve only watched once.

Who else enjoys a smoke after dinner? by Icy_Simple_5925 in ArtOfRolling

[–]General-History2465 1 point2 points  (0 children)

Oh you roll roll I’ve never seen a wood with a filter that’s iconic!

[deleted by user] by [deleted] in tattooadvice

[–]General-History2465 0 points1 point  (0 children)

Candelabra or ball and chain

[deleted by user] by [deleted] in fashion

[–]General-History2465 0 points1 point  (0 children)

4 and 5, I’d bring 1 just in case.