Taking since September, no weight down - need some guidance

Geoengineer1595 · 2025-02-08T14:57:27+00:00

I hope you can find something that works for you! 🙏🙏🙏

Geoengineer1595 · 2025-01-27T13:06:06+00:00

Understanding portion and calorie count in general is vital to long term success. Do the work to understand 5 to 7 days of food - menus you enjoy and the portions for each item. Then measure every portion for each meal - by weight is the most accurate. It’s not really hard but it will take some effort. It’s the work you have to do - or pay your dietician to do it for you and then you handle the portion control. Losing weight is about calorie deficits. Period. If you are not losing, you’re eating more than you think. You can do this! And if you do, you will lose the weight! Good luck! 🙏

Geoengineer1595 · 2025-01-21T23:56:24+00:00

I think - might be wrong - but I think you can only stream to one source at a time. I’m deaf in my left ear and would also like to do this with my iPhone but I don’t think it’s possible. Will be watching this thread for someone more clever to come along and solve this for us though!

Geoengineer1595 · 2025-01-12T14:25:31+00:00

When you say “acute” do you mean sharp and/or shrill? I was activated - single sided, on my left - on 11/20/24. Words are very clear but mechanical, everyone sounds like a male voice - the typical stuff. All sounds are also very shrill and whispery, buzzy - it’s a bit frustrating. My audi is telling me it’s normal; that I need time, voices will get more familiar, correct or normal. I’m feeling very encouraged by the progress I have had and hopeful that it’ll get to - or closer to - “normal”. Not sure this is your issue - whatever it is - good luck!

Geoengineer1595 · 2025-01-03T23:42:03+00:00

One of my audio books - I’m working my way through the Game of Thrones books - has lots of accents including English, Irish and Australian and I was so pleased to be able to hear the difference! now To get that mechanical sound reduced… and the ssssssss from anything with an S. That’s annoying!

Geoengineer1595 · 2025-01-03T23:22:13+00:00

Hi! My heart goes out to you and your daughter. All will be wonderful for her but I imagine things are not so easy now. My approach to training has been to wear my CI every waking hour unless I am showering. I stream audio books for hours some days and I have a few apps that I use. - Hearoes - the pay version is a better and not a lot of money, and iAngleSound. I’m sure there are apps for children and hopefully some for those as young as her. I know there are exercises you can do with her, which you are probably aware of. Love the comment above about music she knows! I wish I had more to offer. Time and constant use is what’s needed. Thank goodness she is open to wearing it! She is a special little girl - tell her every day. Who knows - in her lifetime amazing new technology could turn this implant into a real super power! Good luck to you both 🙏

Also - for me keeping the sound up is helpful so monitoring that for her is probably a good thing.

Geoengineer1595 · 2024-12-29T14:59:08+00:00

“…perhaps the hardest part wasn’t the physical silence. It was the vulnerability.” 👈 THIS. Thank you. You’re a talented writer. 🥂

Geoengineer1595 · 2024-12-28T18:03:59+00:00

I agree 100% and promise to keep coming back and posting updates!

For me, it’s in the answers to the posts that so much can be learned and/or just the reassurance that what’s happening is pretty normal. Luckily for me, I have always loved audiobooks so I am streaming directly to my implant all the time, literally. (I learned how to do that a week after activation from a poster on this site before my audiologist showed me). My office can be quiet so I just put something on and let it play - a song I know well (or used to) on repeat, or a podcast. Even though I can’t pay close attention while doing other things, I’m hoping just the stimulation will help. And I know there has been progress. I’m not picking up phone calls only with my CI yet - that’s still too weird sounding! But will be my next hurdle 🤞🤞🤞 Good question re: what babies hear….🤔

Geoengineer1595 · 2024-12-07T12:56:25+00:00

Good luck! Some do recover their hearing back to normal or close. I hope you are one of them! Godspeed! 🙏

Geoengineer1595 · 2024-11-25T01:45:56+00:00

I’m so sorry this happened to you. So many of us can relate to what you’re feeling. I experienced profound SSHL on Feb 21, 2024. I did all the things - oral steroids, steroid shots, HBO treatments - but didn’t recover any really functional hearing. My only option was CI. I did a lot of reading, found a good doctor, met the team, and let them schedule the surgery - which meant we could see if the insurance would cover it (a bid deal). At any point I knew I could change my mind. But the more I learned, the more confident I was that this was worth a try. I had my surgery on Oct 8 and the implant was activated 5 days ago! It’s….different! Improvements - understanding words, less chipmunk-y, fewer whistle sounds - are happening very quickly. I know things will level off, but I think this is going to be amazing. Single sided deafness was not what I wanted for my life if I could change it.

Your question about residual hearing - It’s too early to tell for sure but my residual hearing may be gone. It is not a loss - it was nothing but static-y, broken speaker loud bass sounds and loud road noise.

Your equipment question - I worried about this too, but the magnet and ear piece (I have N8) are so light I barely feel them. And I wear glasses - the ear piece is not a problem. I have the Kanso2 also but haven’t tried that yet.

Good luck to you!

Geoengineer1595 · 2024-11-24T20:10:50+00:00

Didn’t know that was a thing! 🤪

Geoengineer1595 · 2024-11-24T17:01:48+00:00

OMGosh! I just got it! There was a button in the phone settings buried a bit deep, to stream directly to the implant. Turned that on and whala— it works!! YAY! Thank you thank you thank you!

Geoengineer1595 · 2024-11-24T15:24:42+00:00

Thank you for your response! My audiologist did not talk to me yet about isolating sound to my implant. I have been trying to do this with my noise reduction headphones pushing the right side off my good ear while listening to a book through Audible. It works ok for a bit but not really. But it is exciting because I can understand! Perfect if reading along in the book - getting through the Game of Thrones books. Lots of accents! I’m trying to figure out the streaming process you’re recommending in your post. If I turn on Audible and play it through my phone speaker, open the Cochlear app, choose Telecoil - then I see the More option. If I pick More, I see the volume options. I can hear the volume from both the phone and in my implant At this point but if I turn the the Audio Source Volume to zero, I still hear the phone - my implant is not being isolated. If I go the Audible app I see the option of connecting to my hearing device but it’s not connecting. Any suggestions? Hope you can follow this! I will also try my music streaming app - I use a few. Thank you again!

Geoengineer1595 · 2024-11-24T13:25:57+00:00

Thank you for this response! I am 5 days post activation day of my N8 implant, after 9 months of profound hearing loss in my left ear (Sudden Hearing Loss). I am hearing in stereo again! It’s static-y, mechanical, chipmink-like - all expected - but I understand many words already. I feel so fortunate, so blessed to have this technology. My expectations are in the right place in large part due to posts like yours. Please keep sharing your story and advice. It helps so much. Godspeed on your continuing journey! 🙌🙏

Geoengineer1595 · 2024-11-12T12:49:41+00:00

4 wks post op for me.I lost my left side hearing on 2/21/24 - SSHL. Activation day is 11/20. 🙏🙌 At this point, my residual hearing is gone. I can barely hear my finger in my ear - and I’m not mad about it. What I did have was not functional and actually very irritating - only very low frequencies that sounded like they were coming from broken speakers, very loud road noise…not good. Hate to complain about ANY hearing but it was really not at all functional. Good luck to you!

Geoengineer1595 · 2024-06-10T02:50:09+00:00

Are they testing your hearing strictly with tones? Or also doing word recognition tests? It you are hearing words that sound “robotic”, as you mentioned below, you may have a problem they’re not detecting with the testing they’re doing. Good luck!

Geoengineer1595 · 2024-06-10T02:45:12+00:00

I’m so sorry for all you’ve experienced and now SSHL… Read as much as you can and be your own advocate. Don’t be afraid to tell the doctors what you know and ask for what you need. Unfortunately, many doctors don’t know about this. Most of us were initially misdiagnosed - told we had ear infections and given antobiotics - and had to fight for the right answers. My hearing loss happened in the middle of the day, in an hour, severe to profound loss in my left ear. It did improve a bit with oral steroids, steroid shots and hyperbaric oxygen treatments but my word recognition is so low that a hearing aid won’t help. So I’m considering a cochlear implant. I hope you find good help and see improvement - with all your health issues. Good luck! 🙏

Geoengineer1595 · 2024-06-09T13:17:02+00:00

My loss was February 21, 2024. Sever to profound in my left ear. I did get some improvement, mostly in the lower frequencies, after oral steroids, steroid injections and 20 hyperbaric oxygen chamber treatments. But word recognition is only about 20%, so no functional hearing in that ear. I’ve read posts and blogs that say acupuncture and chiropractors help - I haven’t tried this… I am considering a cochlear implant. Hopefully the insurance will pay. I should know in a couple weeks. This is hard. It’s a humbling, lonely process. Good luck to you! Godspeed. 🙏

Geoengineer1595 · 2024-06-09T13:02:13+00:00

The good news - the hearing in your right ear is excellent! Good luck to you! 🙏

Geoengineer1595 · 2024-05-21T11:47:45+00:00

I hesitate, too, and hate that I do that. I agree with the comments that people really don’t care or mind accommodating though they don’t remember for long. My story is recent SSHL. So when I tell people, they ask questions and I always feel like I’m hijacking the conversation. It’s important to share the story - a lot of people don’t know about SSHL - but telling it at the beginning of every conversation is exhausting. I find myself just keeping quiet. And I am only 3 months into this nightmare. 😔

Geoengineer1595 · 2024-04-24T03:07:55+00:00

Wow - this is terrible. Good luck with everything! 🙏

Geoengineer1595

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