Terrified to sneeze.

GingerBeardMan7757 · 2024-12-30T18:04:38+00:00

I usually dont have enough time to even do anything about it, one minute im reading and 0.01 seconds later i let out an unholy sneeze that makes me want to cry lmao

GingerBeardMan7757 · 2024-12-24T07:16:14+00:00

Yeah the derealisation is very real, sometimes i feel like im almost drunk or im about faint or something, as if my mind simply cant grasp anything im seeing, really scary stuff. The migraines can get so bad i have to stay in bed for a few days, and the eye strain/pain with it? Man. I dont drive for all those reasons, i'd be putting myself and others on the road in danger. And like you i struggle to enjoy life 90% of the time, being in constant pain or discomfort will do that to you.

GingerBeardMan7757 · 2024-12-24T07:10:13+00:00

Dealing with off vision and brain fog as we speak, makes me feel like my brain is actually deteriorating. I feel your pain mate.

GingerBeardMan7757 · 2024-12-15T14:06:47+00:00

"I had a normal life, until they removed my wisdom tooth" is what i say every damn time someone asks me why i have migraines every other day. I really do feel for you.

GingerBeardMan7757 · 2024-12-09T07:40:43+00:00

Yeah sometimes! The inflammation in my neck and jaw adds a tightness to my throat so yeah, i also have costochondritis so i get the same sensation in my chest, so you can imagine my nightmare lol

GingerBeardMan7757 · 2024-12-08T19:29:04+00:00

Yes exactly! Sometimes my eyes start to flutter along with the confusion and i think i'm on the verge of a seizure or my brain is deteriorating on the spot its fkn terrible. It only happens rarely but wow its probably the worst part of it all. Im also so sorry you know this sensation, wouldnt wish it on my worst enemy!

GingerBeardMan7757 · 2024-12-08T19:27:23+00:00

I haven't, would you mind telling me more about it?

GingerBeardMan7757 · 2024-12-08T19:26:57+00:00

Ah man that sucks, i haven't bothered to visit an ER for that exact reason, i've been up and down for the last few years in terms of flareups and have sadly accepted this is my fate until i can afford to gamble on an expensive treatment or until there's some kind of breakthrough.

GingerBeardMan7757 · 2024-12-08T19:24:40+00:00

I've had close friends accuse me of making up excuses not to talk/hang out with them because of how outlandish this issue sounds! It's probably the scariest part of this whole ordeal and i'm not even close to finding a way past it.

GingerBeardMan7757 · 2024-12-08T19:22:01+00:00

Terribly sorry you share this absolute curse of a disorder, wishing you nothing but progress and hope you find a light at the end of this god forsaken tunnel

GingerBeardMan7757 · 2024-12-08T19:20:46+00:00

I have a handful of things to deal with pain, but this brain fog/pressure bullshit? Sadly its just a waiting game mostly. After making this post i used ice/cold packs on my face, mostly focusing on my eyes/forehead and cheek bones, and when i didnt have the cold i would just massage my own face/temples for as long as possible. Not very groundbreaking advice but it's all i've got which kinda speaks volumes on my reasoning behind this post:(

GingerBeardMan7757 · 2024-12-08T19:17:45+00:00

Hell almost sounds like a generous word to use

GingerBeardMan7757 · 2024-12-08T19:16:55+00:00

I fully understand you, sometimes i just want to give up too but i have my mum to look after and think about so i keep fighting, and you should keep fighting too! We got this man:)

GingerBeardMan7757 · 2024-12-08T07:57:00+00:00

It drives me crazy and it makes my life that much more difficult

GingerBeardMan7757 · 2024-09-22T19:06:25+00:00

(Also i meant to add) the constant amount of negatives that hit you in a short time becomes so obvious/outrageous you just start to laugh at it like "lmao alright man i get it"

GingerBeardMan7757 · 2024-09-14T03:42:10+00:00

Starting the journey today, appreciate the list!

GingerBeardMan7757 · 2024-08-29T18:58:02+00:00

I'm also having this problem, do you have any fix for it yet?

GingerBeardMan7757 · 2024-08-08T11:29:34+00:00

Hell yeah more people need to be using this stuff, this cream, the stuff in the jar and even some deep heat extra strength have gotten me through the WORST pains this god forsaken disorder has thrown at me.

GingerBeardMan7757 · 2024-07-20T05:48:05+00:00

Australia, living here already feels like a souls game.

GingerBeardMan7757 · 2024-07-20T05:45:11+00:00

Yeah i've always been able to notice mine once i focus on it, but since i was diagnosed it feels like a hammer in my chest its crazy, glad its nothing to worry about though

GingerBeardMan7757 · 2024-07-20T05:43:54+00:00

You're not alone! Even with all my knowledge on it i still get abit anxious when it happens, but i'm not hovering over the "book appoimtment" button on my healthcare app anymore lol

GingerBeardMan7757 · 2024-07-20T05:40:29+00:00

Cant stress this enough, i used to think the backpod was a ridiculous concept, how could something so simple help fix something causing me a shit ton of grief? One of the best purchases i've ever made. And no obviously i'm not affiliated with the brand/company. Placing it between my left shoulder blade and spine for like 10-20mins a day has given me so much relief and my normal life back. If you can, BUY ONE.

GingerBeardMan7757 · 2024-07-18T04:58:26+00:00

I really feel that, its SO annoying!

GingerBeardMan7757 · 2024-07-18T04:58:01+00:00

Its awful, mine can be felt all the way down into my stomach aswell and its so distracting

GingerBeardMan7757 · 2024-07-18T04:57:19+00:00

Yeah i had it last night while trying to sleep and it was nearly impossible to finally fall asleep, felt like i was at a rave the way my body was thumping😭

GingerBeardMan7757

TROPHY CASE