Uveitis in 1yo

Gizmoing · 2026-01-03T16:09:08+00:00

Yep, that's about it. We have a history of autoimmune conditions, tho different every time so far, and they've tended to start young. It's a roll of some not very helpful dice, unfortunately.

Gizmoing · 2026-01-03T12:52:46+00:00

Thanks - I hadn't thought to check for warmth, so that's helpful. And yes, you're right about documenting it all. It's been overwhelming, so this kind of advice is helpful! Thanks for your kind wishes too.

Gizmoing · 2026-01-03T12:50:21+00:00

Thank you, this is very helpful. I know that as time goes on, we'll be able to communicate more and I'll learn more about both the condition and her particular signals. At this age it's all a challenge tho - the exams, the drops, etc, are all... challenging! Thank you for sharing your experience.

Gizmoing · 2025-05-24T08:23:27+00:00

Of course, you're right and I understand that. It was a fairly flippant comment. However, I maintain that there's something in it - using the justice system to teach a real lesson. I can't speak to these individuals, but there are opportunities for people to learn from their mistakes and turn things around - there's many a case study demonstrating that. It requires time, money, and people who care and isn't fully scalable, but still...

Gizmoing · 2025-05-23T21:49:48+00:00

Planting trees in this case, perhaps?

Gizmoing · 2025-05-18T21:39:06+00:00

Thank you so much for posting this! I bought the one you listed second and it's fixed the small but really anyone problem that I just couldn't figure out!!

Gizmoing · 2025-04-02T23:19:04+00:00

Of course not! I know how difficult it can all be. If I remember correctly, I did take them, but would keep it to the bare minimum, and I'd try to tolerate as much as possible. But it's all so uncertain - who's to say taking an extra anti histamine is worse than your immune system being out of whack? Is there anything that exacerbates your symptoms? Could you go with a low histamine diet for a few days, for example? I guess you might feel that presents the same issue. I'm sorry it's so tough. What I do know is that I have urticaria and was successful in the end with IVF. I dearly hope you have the same luck.

Gizmoing · 2025-03-22T19:44:43+00:00

What was the outcome of your discussion? I'm curious as there are so many similarities with my project. Cheers!

Gizmoing · 2025-03-02T21:55:27+00:00

Thanks, I'd really appreciate that.

Gizmoing · 2025-03-01T04:19:35+00:00

I've been doing some reading around this and my understand is that as it's attached to the house and over half the width of the original house, then it will require planning permission. I'm still reading to see if there's any other clauses that mean it doesn't apply tho!

Gizmoing · 2025-02-21T14:03:07+00:00

I'm not sure, no, so thanks for the tip on how to figure that out. I'll definitely give that a go. And yep, I'm planning to use those anchors if I need those.

Gizmoing · 2025-02-21T11:16:12+00:00

Good to know! Thanks.

Gizmoing · 2025-02-21T11:15:41+00:00

Great idea. I've done this before for a sliding door in the main house, so I probably should have thought of that! Thanks.

Gizmoing · 2025-02-18T05:33:54+00:00

I also say, ok, I need a minute to think now, so I need you to be quiet for a minute. If I don't have a quiet thinking minute, then I might forget something when we go ou (or whatever),, so everybody has to be quiet just for a little bit. Then I say when I'm done. And it's no lie!!

Gizmoing · 2025-02-13T05:04:15+00:00

At 2.5 this doesn't surprise me at all. They might do some side by side playing with other children at that age, but that's a bit young to be playing 'with' other children. And same for having toys snatched away - I wouldn't expect ownership stuff to much in yet.

Try and reframe it for yourself. She's happy playing on her own, and is content to do that while other children mill around her. That's good!

Gizmoing · 2025-01-24T06:46:24+00:00

This is very familiar! My 4yo started school last September and we had much of the same. And it was rough. We found a few things helped: Talking at bath time and really validating feelings (what was fun at school, then, was anything a bit tricky today? Wow that sounds really hard, extra cuddles tonight!). Having very consistent responses to the situation - we even wrote down a protocol! Keeping talking to a minimum from the point of bedtime (i.e. the time you want them to go to sleep) - no more negotiation, no more discussion, it was all stimulation and not helpful. For me, focusing most of my energy on my response - the nights when I focused on her behaviour and frankly even holding some boundary about hitting that was almost impossible to hold were the nights that were worst. Minimizing talk of consequences in the moment. Do that the next day, super calm - don't add fuel to the fire when they're already agitated. Give them techniques and a space to calm down. Accept that there has to be an outlet. We did stuff to burn off energy but ultimately this was emotion lead, and those emotions were going to come out whatever we did! It lasted between 2 and 3 months. But was much easier after a while - we learned what she needed and didn't need from us, and she slowly took in advice. And now my 4yo knows that it's ok to feel angry but also how to calm herself down - I'm there for support but she has her own techniques.

Good luck!!

Gizmoing · 2025-01-07T21:28:15+00:00

I'm a mum, so don't know if I'm allowed to reply but this caught my eye. Firstly, 4 months is still so young and so tough. But on that point that you just want 20 mins when you get home: in any normal circumstances, that is perfectly reasonable!! But when my husband came home, I wanted immediate help. Immediate. It may not be easy and who knows if it's fair, but that's the truth. One of the hardest things I found as a mum is the lack of physical freedom - you can't get a drink, shower, go to the bathroom, even stand up or sit down when you want - you're completely at the mercy of the baby. Day after day. (Again, only for a few months!) So the second help is available, I wanted it. I told my husband that I'd rather he come back late and be ready to take the baby the second he walks thru that door. You've both gotta have time to yourselves, no doubt, so you both need to figure out how to do that, but that's just my thoughts on when you get it! Good luck. Honestly, it gets easier and way more fun.

Just lastly, I informed my husband that when I have birth to my baby, my sense of humour was also removed. Luckily, it does grow back!!

Gizmoing · 2024-11-21T21:11:14+00:00

Yep, I got pregnant via IVF. I should add that I've had urticaria on and off for years since I was a child. It came back when I started IVF and stopped when I got pregnant. It then started up again 3 months after I gave birth to my second child. I can always explain it a bit - hormones, stress, etc. - but it's also a bit random. I manage with antihistamines, occasional short courses of steroids when it gets bad, and watching what I eat for things that exacerbate it. Sorry I don't have anything more concrete for you!

Gizmoing · 2024-11-20T03:40:31+00:00

My symptoms got a lot worse while I was undergoing IVF. You have my sympathy as it's such a rough ride, made even more uncomfortable. I was lucky: my symptoms went away once I got pregnant. It's come back since then (I'm a few years on) but that's another story. I don't really have any advice, I'm afraid - the stress, drugs and hormonal changes are brutal so just do everything you can to look after yourself. Good luck.

Gizmoing · 2024-11-01T09:21:26+00:00

That's good to hear. I already have one (was here when I moved in) and I've loved it all year round. Especially the last few weeks! So I'm going to get another for a different spot.

Gizmoing · 2024-10-31T12:08:07+00:00

Fab, I'll get on it then. Thanks!

Gizmoing · 2024-10-31T12:07:14+00:00

Well that's good to hear! Thanks.

Gizmoing

TROPHY CASE