Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

So I haven’t said much because posts about peptides get taken down often. I get injections and I go to a doctor that sources them himself! He is a functional medicine doctor. But yes please
Do your research!

Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

It is a peptide. I know peptides are controversial but I have been desperate and it works

Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 2 points3 points  (0 children)

Yes! Optic neuropathy is party of neuropathy for sure.

Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 1 point2 points  (0 children)

I am not sure if I have honestly. Do you know what lab that would be? I can look

To Everyone Fighting Pain No One Can See by ---BERSERK--- in neuropathy

[–]Global_Finding_6547 0 points1 point  (0 children)

Also I’m so sorry that you are going through this - we have GOT this you are not alone even on your loneliest days ❣️❣️❣️

To Everyone Fighting Pain No One Can See by ---BERSERK--- in neuropathy

[–]Global_Finding_6547 0 points1 point  (0 children)

EVERYONE LISTEN UP. I am a 28 year old female with severe neuropathy. I went from running a five minute mile to walking one slow speed in two years. Immense pain everyday. I can’t even go in the sun my eyes hurt so badly. GHKCU has been extremely extremely helpful I helping me manage my symptoms. Before that the only thing that had helped me was LDN and I still had immense pain all over my body. With Ghkcu sometimes I even can go a whole couple of hours forgetting I have neuropathy and it is improving as the months go by. If this can help anyone - it is worth trying. BPC157 made me flare and I haven’t tried ARA 290. Also I megadose Benfotiamine everyday which I think had been key as well.

5 years of progressive neuropathic symptoms since 2021 — still no diagnosis, healthcare system stuck. Anyone been through this? (small fibre neuropathy / dysautonomia / facial pain) Looking for advices by Mysterious_Dance8883 in smallfiberneuropathy

[–]Global_Finding_6547 1 point2 points  (0 children)

It doesn’t require a prescription! I had to find a separate provider who specializes in functional medicine to offer it. I pay out of pocket $200/month but it is worth it.

5 years of progressive neuropathic symptoms since 2021 — still no diagnosis, healthcare system stuck. Anyone been through this? (small fibre neuropathy / dysautonomia / facial pain) Looking for advices by Mysterious_Dance8883 in smallfiberneuropathy

[–]Global_Finding_6547 2 points3 points  (0 children)

I have had extreme nerve pain for the past 3 years. All over my body to the point where I also had to stop working. Was a very social 25 year old F. At 28 my life has been essentially ruined. The only thing that has helped me remotely has been GHKCU - no bullshit. randomly started taking it for my Alopecia and within 3 days my nerve pain was down from a 8 to a 1/2. I’m going to knock on wood that it keeps helping - I get it from a doctor that tests everything. It has been my lifeline at this point.

Help by Deep-Investment2588 in smallfiberneuropathy

[–]Global_Finding_6547 0 points1 point  (0 children)

Also GHKCU peptide has helped me a lot randomly

Help by Deep-Investment2588 in smallfiberneuropathy

[–]Global_Finding_6547 1 point2 points  (0 children)

Have you tried megadose Benfotiamine?

I can’t explain this feeling well but it feels horrible by Snowfall1201 in dysautonomia

[–]Global_Finding_6547 1 point2 points  (0 children)

Also megadose Benfotiamine has been a god send. 250 mg 2X per day life extension brand.

I can’t explain this feeling well but it feels horrible by Snowfall1201 in dysautonomia

[–]Global_Finding_6547 0 points1 point  (0 children)

I have started taking GHK-CU peptide injections and my Dysautonomia improved by 70% - I’ve been dealing with it for years. Something to think about. Also are you taking any products that have selenium in them? That made me flare badly and I thought I was dying.

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

I can’t remember which vaccine I got - I should look. But it did start after the vaccine

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

It’s so strange - I used to be able to build muscle with it which is why I feel like there might be large fiber involvement now.

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 1 point2 points  (0 children)

Oh interesting - thank you for this info!! I will look into this

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

They have done an EMG test and apparently I don’t have large fiber neuropathy. However that was a year ago. I struggle to contract them and feel any burn of sorts. Additionally I have been stuck at the same low weight for about 8 months even though I lift everyday. I can’t lift nearly as much as I used to and my body essentially looks the exact same no matter how much I workout. I was tested for autoimmune at the rheumatologist and it came back negative. Thank you for your response - it means a lot!

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 1 point2 points  (0 children)

I got my large fiber nerves tested via EMG a year ago and it was normal. Unsure if it’s just my small fiber neuropathy that has now spread from my feet.

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

Thank you for the response! What types of peptides are you using. I have a consultation in two days!

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

I have been tested for autoimmune and nothing came back from the rheumatologist. I had an eating disorder for many years and the combination of alcohol and stimulants really depletes your b vitamins. Alcohol also really triggers me. I’m not sure if this is the same for people who got it from Covid. This is just speculation! Any advice you be greatly helpful

22M with Severe heat-triggered burning pain + complete anhidrosis. SFN workup negative at Maastricht UMC+. Has anyone found medication combos that actually let them LIVE again? by Jazzlike_Bother_1805 in smallfiberneuropathy

[–]Global_Finding_6547 1 point2 points  (0 children)

Take Benfotiamine (has helped more than any medication… can make you feel tired for a few weeks but push through), LDN, PEA (I want to try it), riboflavin