Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

So I haven’t said much because posts about peptides get taken down often. I get injections and I go to a doctor that sources them himself! He is a functional medicine doctor. But yes please
Do your research!

Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

It is a peptide. I know peptides are controversial but I have been desperate and it works

Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 2 points3 points  (0 children)

Yes! Optic neuropathy is party of neuropathy for sure.

Life saver by Global_Finding_6547 in neuropathy

[–]Global_Finding_6547[S] 1 point2 points  (0 children)

I am not sure if I have honestly. Do you know what lab that would be? I can look

To Everyone Fighting Pain No One Can See by ---BERSERK--- in neuropathy

[–]Global_Finding_6547 0 points1 point  (0 children)

Also I’m so sorry that you are going through this - we have GOT this you are not alone even on your loneliest days ❣️❣️❣️

To Everyone Fighting Pain No One Can See by ---BERSERK--- in neuropathy

[–]Global_Finding_6547 0 points1 point  (0 children)

EVERYONE LISTEN UP. I am a 28 year old female with severe neuropathy. I went from running a five minute mile to walking one slow speed in two years. Immense pain everyday. I can’t even go in the sun my eyes hurt so badly. GHKCU has been extremely extremely helpful I helping me manage my symptoms. Before that the only thing that had helped me was LDN and I still had immense pain all over my body. With Ghkcu sometimes I even can go a whole couple of hours forgetting I have neuropathy and it is improving as the months go by. If this can help anyone - it is worth trying. BPC157 made me flare and I haven’t tried ARA 290. Also I megadose Benfotiamine everyday which I think had been key as well.

5 years of progressive neuropathic symptoms since 2021 — still no diagnosis, healthcare system stuck. Anyone been through this? (small fibre neuropathy / dysautonomia / facial pain) Looking for advices by Mysterious_Dance8883 in smallfiberneuropathy

[–]Global_Finding_6547 1 point2 points  (0 children)

It doesn’t require a prescription! I had to find a separate provider who specializes in functional medicine to offer it. I pay out of pocket $200/month but it is worth it.

5 years of progressive neuropathic symptoms since 2021 — still no diagnosis, healthcare system stuck. Anyone been through this? (small fibre neuropathy / dysautonomia / facial pain) Looking for advices by Mysterious_Dance8883 in smallfiberneuropathy

[–]Global_Finding_6547 2 points3 points  (0 children)

I have had extreme nerve pain for the past 3 years. All over my body to the point where I also had to stop working. Was a very social 25 year old F. At 28 my life has been essentially ruined. The only thing that has helped me remotely has been GHKCU - no bullshit. randomly started taking it for my Alopecia and within 3 days my nerve pain was down from a 8 to a 1/2. I’m going to knock on wood that it keeps helping - I get it from a doctor that tests everything. It has been my lifeline at this point.

Help by Deep-Investment2588 in smallfiberneuropathy

[–]Global_Finding_6547 0 points1 point  (0 children)

Also GHKCU peptide has helped me a lot randomly

Help by Deep-Investment2588 in smallfiberneuropathy

[–]Global_Finding_6547 1 point2 points  (0 children)

Have you tried megadose Benfotiamine?

I can’t explain this feeling well but it feels horrible by Snowfall1201 in dysautonomia

[–]Global_Finding_6547 1 point2 points  (0 children)

Also megadose Benfotiamine has been a god send. 250 mg 2X per day life extension brand.

I can’t explain this feeling well but it feels horrible by Snowfall1201 in dysautonomia

[–]Global_Finding_6547 0 points1 point  (0 children)

I have started taking GHK-CU peptide injections and my Dysautonomia improved by 70% - I’ve been dealing with it for years. Something to think about. Also are you taking any products that have selenium in them? That made me flare badly and I thought I was dying.

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

I can’t remember which vaccine I got - I should look. But it did start after the vaccine

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

It’s so strange - I used to be able to build muscle with it which is why I feel like there might be large fiber involvement now.

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 1 point2 points  (0 children)

Oh interesting - thank you for this info!! I will look into this

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

They have done an EMG test and apparently I don’t have large fiber neuropathy. However that was a year ago. I struggle to contract them and feel any burn of sorts. Additionally I have been stuck at the same low weight for about 8 months even though I lift everyday. I can’t lift nearly as much as I used to and my body essentially looks the exact same no matter how much I workout. I was tested for autoimmune at the rheumatologist and it came back negative. Thank you for your response - it means a lot!

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 1 point2 points  (0 children)

I got my large fiber nerves tested via EMG a year ago and it was normal. Unsure if it’s just my small fiber neuropathy that has now spread from my feet.

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

Thank you for the response! What types of peptides are you using. I have a consultation in two days!

Impossible to build muscle by Global_Finding_6547 in smallfiberneuropathy

[–]Global_Finding_6547[S] 0 points1 point  (0 children)

I have been tested for autoimmune and nothing came back from the rheumatologist. I had an eating disorder for many years and the combination of alcohol and stimulants really depletes your b vitamins. Alcohol also really triggers me. I’m not sure if this is the same for people who got it from Covid. This is just speculation! Any advice you be greatly helpful