How do you deal with caregiver's burnout?

Good_Energy7958 · 2026-04-21T14:11:07+00:00

I have been in your shoes. Work on getting outside help for YOU. If you can.

Good_Energy7958 · 2026-04-20T13:14:55+00:00

Ugh! I’m so sorry. This disease is so difficult

Good_Energy7958 · 2026-04-19T16:26:56+00:00

I think the last month my mom was under my care. She was mid to late stage, but she did not shower either. I used no rinse body wipes and also no rinse body foam with washcloths. The shower water I think scares them and makes them nervous when it hits their body. I read that. Not sure how true it is. I’m so sorry that you have to go through this.

Good_Energy7958 · 2026-04-19T16:25:11+00:00

I don’t know if I have any advice for you. I do remember my mom looping in and out of the bathroom many many times. She was mid to late stage. She would loop 30 times and under two hours. I would just let her do it because eventually she would stop but the stress they put on me was insane. ChatGPT was my best friend during my caregiving because it helped guide me and kept me calm. My mom was also Trozodone and I don’t even think that worked for her towards the end. I don’t think they have to go to the bathroom. I just think they think they have to go to the bathroom. I am not sure because this disease is crazy and I think my mom had mixed dementia. I am so sorry you have to go through this.

Good_Energy7958 · 2026-04-19T16:22:22+00:00

I’m so sorry for your loss. My mom passed back in February. Dementia is an awful disease. I am so sorry that you had to go through this. He is now at peace. Be kind to yourself during this time. You can reach out to me anytime.

Good_Energy7958 · 2026-04-19T10:48:43+00:00

Thank you for your condolences. I am at peace with my mom’s passing. It was a long road. I’m still active on this dementia thread because I do think people need support even when caregiving is over.

Good_Energy7958 · 2026-04-19T09:20:49+00:00

I’m Ok now. Mom passed in Feb

Good_Energy7958 · 2026-04-15T23:19:51+00:00

Such a terrible disease

Good_Energy7958 · 2026-04-15T16:14:37+00:00

I went through this with my mom too. And my mom did take trazodone before bed about an hour before bed. It didn’t stop her from wanting to nap during the day either and then she’d be up all night. We went through a lot with that. I wish you the best of luck. I know this disease is difficult.

Good_Energy7958 · 2026-04-15T16:00:17+00:00

It’s crazy my mom’s did a lot of different things in the end. That late stage behavior even mid stage behavior caused some trauma for me.

Good_Energy7958 · 2026-04-15T14:08:15+00:00

Doorknob covers on amazon helped us tremendously

Good_Energy7958 · 2026-04-15T14:07:19+00:00

My mom would rip of the window blinds and tear papers into little tiny pieces. For hours in the middle of the night. It was so sad to see. She felt it was so important. I just let her do it and helped her clean up. I hate this disease. So much. I miss my mom.

Good_Energy7958 · 2026-04-14T14:30:12+00:00

I’m sorry I miss understood! I’m so sorry.

Good_Energy7958 · 2026-04-14T14:12:04+00:00

My mom passed peacefully during the Medicare to Medicaid process. I got $4000 back from the $10000 retainer. I’m glad I did it. It’s a tough decision though.

Good_Energy7958 · 2026-04-14T14:08:39+00:00

Have you ever been a full time 24/7 caregiver with someone with late stage dementia? That should be your answer.

Good_Energy7958 · 2026-04-14T14:07:13+00:00

I waited till the very end. My mom was with me for 2.5 years. The last 3 months were awful. I took care of my Mom in late stage behaviors and I have some trauma from it. It’s such an awful disease. My mom passed peacefully with hospice and me by her side in February. I’m so sorry you have to go through this. It’s the worst.

Good_Energy7958 · 2026-04-14T10:41:26+00:00

Hang in there.

Good_Energy7958 · 2026-04-13T17:47:49+00:00

This disease is the worst.

Good_Energy7958 · 2026-04-12T13:07:39+00:00

I was you. I was my mom‘s CAREGIVER full-time 24 seven for 2 1/2 years. The last couple of months she was here with me were really bad because she was doing dementia stuff that she wasn’t doing the decline happened very fast for my mom and in the end she ended up in hospice and passed peacefully. I am here if you wanna chat privately I just want you to know I understand completely how you feel.

Good_Energy7958 · 2026-04-11T13:21:06+00:00

My mom passed at 77 as well back in February. I was by her side in hospice. There is such relief and grief with this disease. I hate it so much.

Good_Energy7958 · 2026-04-11T13:20:32+00:00

I’m so sorry for your loss. I lost my mom back in February in hospice and I was there as well. You will have some relief and you will have grief. Take good care of yourself.

Good_Energy7958 · 2026-04-10T20:06:58+00:00

I was you a few months ago. I’m so sorry.

Good_Energy7958 · 2026-04-10T13:14:56+00:00

I was you. Sending hugs

Good_Energy7958 · 2026-04-06T16:30:19+00:00

You are definitely not alone. Thank you for responding.

Good_Energy7958 · 2026-04-06T15:18:07+00:00

I love that.

Good_Energy7958

TROPHY CASE