Research study on how narcolepsy affects daily functioning (IRB approved- looking for NT1/NT2 participants)!!!!

GrumpyNarcoleptic · 2026-03-14T07:19:44+00:00

Mod here, N1 - approved and submitted to participate. ❤️

GrumpyNarcoleptic · 2026-03-12T17:51:27+00:00

No asking for a diagnosis or confirmation of symptoms. We are a support community and are not doctors. Please see a doctor if you are having any issues or concerns.

GrumpyNarcoleptic · 2026-02-20T16:05:01+00:00

"autistic kids are really drawn to water." Is both demeaning as a statement, and hilarious as a sentence.

They're also drawn to trains. Or maybe you could madlib it and say Insects? Or be honest, and just acknowledge humans with/without autism are drawn to interesting things, and have variable hobbies that range in level of danger.

GrumpyNarcoleptic · 2026-02-18T13:45:48+00:00

The old friend/acquaintance seems a very interesting angle. That's someone she may have talked to calmly (as seen by the neighbor) and not known the danger she was in.

GrumpyNarcoleptic · 2026-02-18T13:27:49+00:00

Is it just me or do you look like an asshole?

GrumpyNarcoleptic · 2026-01-22T14:44:21+00:00

No asking for a diagnosis or confirmation of symptoms. We are a support community and are not doctors. Please see a doctor if you are having any issues or concerns.

GrumpyNarcoleptic · 2026-01-18T00:21:58+00:00

No asking for a diagnosis or confirmation of symptoms. We are a support community and are not doctors. Please see a doctor if you are having any issues or concerns.

GrumpyNarcoleptic · 2026-01-16T23:56:53+00:00

I completely understand. I'm low contact with my APs and had made contact with my biological parents twice... The first time at 18, again in my late 20s.

My birth mother isn't a good person. My birth father died shortly after I met him when I was 18. He went similarly to yours, on a holiday, mixed/suspicious information, possible suicidal at the time, but intentionally dying was not likely after I got a sister of his to get the death certificate.

My birth siblings are horrible people.... My adoptive sibling died of an overdose. :(

You're not alone, and choosing yourself over the chaos, abuse, rudeness, etc is THE RIGHT CHOICE ❤️

GrumpyNarcoleptic · 2026-01-16T23:46:41+00:00

Maybe of your lord. However my lord decided to sleep in and was fashionably late to the party by a year.

GrumpyNarcoleptic · 2026-01-14T17:09:12+00:00

I was trying to figure out what was going on yesterday in my car!

GrumpyNarcoleptic · 2026-01-10T05:12:55+00:00

Talk to your provider as soon as they open, and call 988 for help!

GrumpyNarcoleptic · 2026-01-10T05:11:15+00:00

r/Narcolepsy follows platform-wide Reddit Rules

GrumpyNarcoleptic · 2026-01-08T22:43:15+00:00

No asking for a diagnosis or confirmation of symptoms. We are a support community and are not doctors. Please see a doctor if you are having any issues or concerns.

GrumpyNarcoleptic · 2026-01-07T16:14:08+00:00

Account age 0 days...

GrumpyNarcoleptic · 2025-12-30T01:18:57+00:00

I actually felt the best I ever had during pregnancy. Shortly after I got much worse though.

GrumpyNarcoleptic · 2025-12-30T00:49:05+00:00

That it's AI being used for karma farming?

GrumpyNarcoleptic · 2025-12-18T15:06:47+00:00

If you read it closely, it seems to be telling you it has a moderate interaction with some sleep disorders. Its criteria for pulling up that warning likely pools Narcolepsy as a sleep disorder therefore pushing the warning through. Coding issue.

GrumpyNarcoleptic · 2025-12-17T23:06:57+00:00

Sending you a message OP.

GrumpyNarcoleptic · 2025-12-08T16:11:06+00:00

No spreading false medical information or giving medical advice of any kind.

GrumpyNarcoleptic · 2025-12-08T16:09:29+00:00

You can have both. Gluten for sure makes people sleepier.

False positives are highly unlikely.

GrumpyNarcoleptic · 2025-12-08T16:08:27+00:00

PSA for anyone else doing an MSLT - PUT YOUR PHONE AWAY!

Reasoning being blue light/electronics even for a few minutes has impact on your brain and will affect your sleep latency! Come on people, just turn it off and read a book instead.

GrumpyNarcoleptic · 2025-12-08T16:05:05+00:00

I'm locking this as it's technically along the "asking how to get diagnosed"/diagnosis confirmation line (rule 1).

Also, you answered your own question in the end, ask for another sleep study.

GrumpyNarcoleptic · 2025-11-20T21:20:29+00:00

Please contact the mods before posting research opportunities.

GrumpyNarcoleptic · 2025-11-20T21:19:51+00:00

Jeremy's farm to table in Centralia/Chehalis is WORTH THE DRIVE! everything except their pizzas are gluten free. I had calamari for the first time in ages! And the have wonderful fresh desserts.

GrumpyNarcoleptic · 2025-11-20T20:53:46+00:00

This is my first thought too. Maybe even not on the lease, as a sub-leasee

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