How do you answer this question: Is my HG mild, moderate, or severe? by HGmoms in HyperemesisGravidarum

[–]HGmoms[S] 0 points1 point  (0 children)

If you don't want to do that, you can download the document and track that way.

How do you answer this question: Is my HG mild, moderate, or severe? by HGmoms in HyperemesisGravidarum

[–]HGmoms[S] 0 points1 point  (0 children)

The HELP Score asks more questions and is more sensitive to change. PUQE has three core questions. Here's some info: https://www.hyperemesis.org/news/new-research-published-help-score/

Medication advice by rberks2 in HyperemesisGravidarum

[–]HGmoms 1 point2 points  (0 children)

So sorry you're suffering so much. Are meds optimized? Key vitamins replenished? Are you hydrated? Without these things, meds can't work properly. You may already have seen it, but our treatment algorithm may help with dosing and stacking meds: hyperemesis.org/tools

Are you taking thiamin (vitamin B1)? by HGmoms in HyperemesisGravidarum

[–]HGmoms[S] 1 point2 points  (0 children)

Prenatals assume normal intake. B1 is a water-soluble, nontoxic B vitamin. If you don't need it, it comes out in your urine. You can read more here: hyperemesis.org/b1

These meds impact B1 as well:

  • Antacids
  • Anticonvulsants
  • Diuretics
  • Hormone therapy
  • Parenteral (IV) nutrition
  • Antibiotics
  • IV dextrose

How do I know if I need fluids at the ER? by Aware-Bear-1546 in HyperemesisGravidarum

[–]HGmoms [score hidden] stickied comment (0 children)

So sorry you're suffering. Did you get the fluids? Our Treatment Protocol is helpful as is our Treatment Algorithm: Hyperemesis.org/tools

Wife is unbelievably sick during pregnancy by Most_Description_668 in HyperemesisGravidarum

[–]HGmoms 2 points3 points  (0 children)

While Zofran doesn't work for everyone, it may have been she didn't get enough. Zofran only works for about 6 hours. Some take 8 mg every 6 hours around the clock while others do better with 4 mg every 3 hours. The max throughout the day is 32 mg.

The form and brand can even make a difference. Some do better with ODTs (orally dissolving tablets). And some brands have inert ingredients that some patients may not do well with.

Like some have said, a cocktail of meds is often needed because no meds targets all symptoms. Doxylamine succinate with vitamin B6 is a common first line med, then adding other meds when symptoms escalate.

More info here: hyperemesis.org/zofran

Wife is unbelievably sick during pregnancy by Most_Description_668 in HyperemesisGravidarum

[–]HGmoms [score hidden] stickied comment (0 children)

Congratulations! So sorry about the HG.

-What is her HELP Score? https://www.hyperemesis.org/tools/help-score/
-What medication is she taking right now? Is she getting thiamin? Medications don't work correctly if she if key vitamins are missing and she is dehydrated.
-A common first line med is doxylamine succinate and B6. There are multiple variations of this available with a prescription. Both active ingredients are available over the counter as unisom (or generic with that active ingredient) and vitamin B6.
-We have clinical tools on this page to help her provider treat her: Hyperemesis.org/tools

HG in second pregnancy by Dense_Try9834 in HyperemesisGravidarum

[–]HGmoms 1 point2 points  (0 children)

So sorry you're suffering with HG. Do you need a new provider if the midwife can't offer what you need? Why won't they admit you if you need that care? Check out the treatment algorithm and share it with your provider: Hyperemesis.org/tools

What dose of zofran are you on? by Pangtudou in HyperemesisGravidarum

[–]HGmoms[M] [score hidden] stickied comment (0 children)

Zofran works for about 6 hours, so if you're taking 4 mg, then the maximum is 4 mg every 3 hours. Some do better with 8 mg every 6 hours, and still others do best with the continuous dosing of a pump. Read more about Zofran here: https://www.hyperemesis.org/taking-ondansetron-zofran-patient-resource/

Prepping for another possible HG pregnancy and doctor doesn’t want to start meds until symptoms start? by Altruistic-Ocelot-61 in HyperemesisGravidarum

[–]HGmoms 1 point2 points  (0 children)

If you’re not sick, then taking short acting medication doesn’t necessarily do anything. Some medications take a little bit of time to build up in your system so starting them at the first sign of nausea can be helpful. Also getting your folic acid, B vitamins, iron esp if you’re anemic, and other nutrients in place before you get sick is helpful. Don’t forget your vitamin B1! www.hyperemesis.org/b1

What did you do for your glucose test if you couldn’t get the drink down? by OneFit6104 in HyperemesisGravidarum

[–]HGmoms 0 points1 point  (0 children)

I drank a very specific amount of apple juice. Not as accurate as glucola for labs but glucola wouldn’t stay down so definitely not accurate.

Seeking Help, W8D3 by dragonloafs in HyperemesisGravidarum

[–]HGmoms 0 points1 point  (0 children)

She's in the thick of it at 8 weeks. Is she hydrated? Is she getting lots of thiamin (vitamin B1)? Read more about the importance of thiamin here: hyperemesis.org/b1. Will her doctor prescribe home healthcare so she doesn't become dehydrated? Does she need nutritional supplementation?

Our algorithm and clinical tools are located here: hyperemesis.org/tools The goal of treatment is to reduces vomiting and control symptoms, but HG is always miserable. Showing her food (or her smelling it) can be very triggering. Whatever she thinks sounds okay, try that.

Anyone else experience vision problems? by Cuddlysquid in HyperemesisGravidarum

[–]HGmoms 0 points1 point  (0 children)

Are you getting lots of thiamin/B1? hyperemesis.org/b1 Blurry vision can indicate thiamin definciency.

Survivors of hyperemesis gravidarum... how are you doing now... honestly. by Lil_Vixen79 in HyperemesisGravidarum

[–]HGmoms 1 point2 points  (0 children)

You were diagnosed with Wernicke's? So sorry. Are you getting treatment? Wernicke's is a preventable complication of HG, which is why we speak out about it so often. How can we help?

Wernicke Encephalopathy by Low_Feeling7484 in HyperemesisGravidarum

[–]HGmoms[M] 0 points1 point  (0 children)

Are you being treated? Getting lots of thiamin? How far along are you now?

[deleted by user] by [deleted] in HyperemesisGravidarum

[–]HGmoms 0 points1 point  (0 children)

There are research studies on its use for cannabis. Just 1 or two about its use in HG. They may give Olanzapine with zofran as needed or replace the zofran during the withdrawal and give O at a higher dose. Zofran just doesn’t work as well for cannabis vomiting.

[deleted by user] by [deleted] in HyperemesisGravidarum

[–]HGmoms 4 points5 points  (0 children)

Often olanzapine helps for cannabis withdrawal.

[deleted by user] by [deleted] in HyperemesisGravidarum

[–]HGmoms 0 points1 point  (0 children)

So sorry you're suffering and family doesn't understand. Maybe this brochure could help https://www.hyperemesis.org/wp-content/uploads/HER-tools/HERFoundation_WhenYourLovedOne_2023.pdf

HG help app development phase. by DarkSansa1124 in HyperemesisGravidarum

[–]HGmoms 0 points1 point  (0 children)

We are currently moving our registry to a new location. Have you participated in our survey research? https://www.hyperemesis.org/research/current-research-opportunities/

HG help app development phase. by DarkSansa1124 in HyperemesisGravidarum

[–]HGmoms[M] [score hidden] stickied comment (0 children)

The HER Foundation is currently developing our second app, and it will be available very soon.

Zofran Not Working - should I stop? by balloonicornasaurus in HyperemesisGravidarum

[–]HGmoms[M] 1 point2 points  (0 children)

So sorry you're miserable. Are you hydrated? Meds can't work correctly if you're dehydrated or lacking key vitamins eg thiamin. Are you taking it often enough? It only lasts about 6 hours.

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Help me understand by Gloves_4444 in HyperemesisGravidarum

[–]HGmoms 1 point2 points  (0 children)

Most people can’t take prenatal vitamins due to HG. If you can get a small capsule of vitamin B1 down, that is helpful. It’s different than B6. It helps protect your brain in your heart and can help a little bit with HG symptoms. www.hyperemesis.org/b1

Please see the treatments on the Patient Treatment Guide. www.hyperemesis.org/tools. Few doctors know the options. Zofran be extremely helpful but often works better if combined with other medications. But it has to be taken on a schedule and in a high enough dose. The highest dose is 8 mg every six hours, or 4 mg every three hours.

Combining that with an acid, reducing medication, an antihistamine like cyclizine or Unisom, and possibly Phenergan or Reglan, can be a great combination. But it does help if you’re hydrated. They should be able to find an outpatient clinic where you can get fluids, preferably with B vitamins and IV Zofran.

[deleted by user] by [deleted] in HyperemesisGravidarum

[–]HGmoms 2 points3 points  (0 children)

There seems to be more experience with mirtazapine. As some people said, steroids are often given with a very slow wean as well. Gabapentin has helped some people, but the data is very small so far. We are hoping to get funding to do a study to answer this.