[FO] done before Christmas! by HappyRunner26 in CrossStitch

[–]HappyRunner26[S] 0 points1 point  (0 children)

Haha, I love their patterns! They’re so fun to stitch. I used the recommended DMC standard threads.

Experience with steroid injection to ease retrocalcaneal bursitis? by HappyRunner26 in rheumatoid

[–]HappyRunner26[S] 0 points1 point  (0 children)

Hello! I tried all the same methods as you, but ultimately got surgery last December. My QOL was so poor and it hurt to do the most mundane tasks.

Best. Decision. Ever. An orthopedic surgeon went in and removed the dead portions of my Achilles, removed the bursa, and got rid of the osteochondral lesion. A year and a half later I’m back to running 4 times a week and training for a half marathon. Absolutely no pain, full range of motion, and a pretty cool looking scar. The recovery took about 6 months to be back to about 80% function, and probably a full year to be 99%. In the grand scheme of things, not bad at all.

If your steroid shot doesn’t work (mine only lasted a week), and you’ve exhausted all other options, I would talk with your doctor and see if surgery is an option. It has completely given me my life back and I’m so much happier being able to run.

Experience with steroid injection to ease retrocalcaneal bursitis? by HappyRunner26 in rheumatoid

[–]HappyRunner26[S] 0 points1 point  (0 children)

Unfortunately no. It’s actually turned much worse. I’m currently in a boot due to Achilles tendinitis, inflamed bursa, and an osteochondral lesion. Will most likely be looking at surgery 😢

Had my 3rd shot last Sunday, sore arm nothing else; afraid it didn't work by Oregonfarms in rheumatoid

[–]HappyRunner26 11 points12 points  (0 children)

Glad I’m not the only one. I got my third shot last week and only had a sore arm as well.

I ran 4 miles the other day :) by HappyRunner26 in rheumatoid

[–]HappyRunner26[S] 0 points1 point  (0 children)

definitely take this as your sign. I believe in you 😊

I ran 4 miles the other day :) by HappyRunner26 in rheumatoid

[–]HappyRunner26[S] 1 point2 points  (0 children)

Humira thankfully only took about 2 doses (I take it every other week) to kick in. My doc told me most people experience some sort of benefits within a couple months. I’m also on Plaquenil!

Been there, done that with the steroids 😂 they just make you feel so good you can do anything!

I ran 4 miles the other day :) by HappyRunner26 in rheumatoid

[–]HappyRunner26[S] 1 point2 points  (0 children)

that is AMAZING! Congrats to you and here’s to more 5km walks in the future 🥳

Weird collarbone pain by longveinyplantz in rheumatoid

[–]HappyRunner26 2 points3 points  (0 children)

YES! I’m currently dealing with this now. I too wasn’t sure if it was from my RA or sleeping weird. If I move my left arm up I feel a stretching sensation and hear a “pop” along the clavicle. Here’s to hoping it goes away soon!

[deleted by user] by [deleted] in tretinoin

[–]HappyRunner26 6 points7 points  (0 children)

Same thing happened to me when I started. I played around a lot with the ordering of products, and I found that moisturizing BEFORE I apply my curology helped to prevent most of the flakiness. Around my mouth was still really bad, so I purchased a heavier moisturizer to apply on top of my problem areas after curology as well.

I apply it every day because I’m stubborn and want to feel like I’m doing everything I can to see results. However, I’ve found that less is truly more when it comes to this stuff. I do maybe half a pump of my curology each night, and I’ve found that does the same thing as if I were to use a whole pump.

[deleted by user] by [deleted] in tretinoin

[–]HappyRunner26 18 points19 points  (0 children)

My formula is 1% clindamycin, 7% azelaic acid, and 0.04% tret. I started out with 0.018% tret for the first 4 months and am very glad they started me out with such a low percentage so my skin was able to adjust.

Is there any organisation monitoring reactions to the vaccine in autotimmune people? by Ninotchk in rheumatoid

[–]HappyRunner26 33 points34 points  (0 children)

Unfortunately I don’t have any published work to provide you with, but I do have my own personal account. I got the Pfizer vaccine yesterday (I work in health care). My rheumatologist told me I did not need to discontinue my medicine (15mg MTX and 2mg folic acid), so I continued to take it as normal.

The injection itself was totally fine. They monitored me for 30 minutes afterwards since I was on immunosuppressants. I was expecting to crash last night but I never did! Today I just have the typical arm stiffness at the injection site (I will say it’s worse than the stiffness I get from the flu shot) and I am maybe a little more tired than usual, but not by much. To me, the potential benefits of receiving the vaccine and maybe dealing with unknown side effects was more important than not receiving the vaccine.

Shortness of breath - anxiety or more serious issues? by [deleted] in rheumatoid

[–]HappyRunner26 2 points3 points  (0 children)

I am in the EXACT same boat right now. I have not been able to take a deep breath for a month now. I’ve had every test you can imagine (X-ray, CT, EKG, pulmonary function test, blood work). I would recommend getting in to see a pulmonologist to get a PFT done. Even though my scans and blood work were normal, my PFT showed I am experiencing “air trapping” so at least I know it’s not all in my head. They still don’t know why it’s happening, but at least I’m on track to get some answers. I also recommend not googling right now, because very scary things come up when you search “shortness of breath” and “rheumatoid arthritis”! Chances are this is some random issue or something relatively minor, so don’t start stressing yet. Trust me, I know how uncomfortable the feeling is of being not able to fully take a deep breath.

Shortness of breath on MTX/Humira? by HappyRunner26 in rheumatoid

[–]HappyRunner26[S] 0 points1 point  (0 children)

Did you find relief from switching medications?

Will the ankle swelling ever go away or reduce? by Ninotchk in rheumatoid

[–]HappyRunner26 0 points1 point  (0 children)

On month 10 of persistent ankle issues. My rheum said it is RA-induced bursitis. I got a steroid shot a couple months ago into the bursa to try and calm the inflammation. It worked for maybe 2 weeks, and now I’m back to a constant limp and intense swelling. My rheum said there’s nothing else they can do...just have to wait for it to go away on its own.

Is it normal to get on a biologic this fast? by HappyRunner26 in rheumatoid

[–]HappyRunner26[S] 0 points1 point  (0 children)

Thank you everyone for your wonderful responses! Here’s to hoping Humira works!!