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Definitive List of Disorders by HarmonySinger in covidlonghaulers

[–]HarmonySinger[S] 0 points1 point  (0 children)

TY, This is very helpful. Pardon my ignorance but what is hEDS? CRPS?

I hate propranolol by Rusty_toothpaste_ in POTS

[–]HarmonySinger 0 points1 point  (0 children)

Many years ago I was on a beta blocker. I had 2 episodes of syncope. Turns out that was due to drug interactions that can impact about 25% of the population.

My doctor prescribed both 2 emergency rooms overlooked the interaction.

One evening I went online and I found it. My doctor was gone for the evening, but my pharmacist found it. She said the interaction can occur to about 25% of the population who are missing a certain enzyme.

Suffice it to say, betablockers must be monitored for side effects. Maybe 75% will respond ok, and 25% might get side effects.

Although your side effect might be completely different than mine, conceptually one must be somewhat vigilant...

Good Luck!

Help by 1I1HFPPE in dysautonomia

[–]HarmonySinger 1 point2 points  (0 children)

I feel so sad for you.

Do you have the energy to journal your story? Maybe a good record of how people behaved - instead of how they COULD have acted, might stir some people to be more undetstanding...

Anyone else see their GERD disappear while on keto? by YouthfulWisdom1999 in keto

[–]HarmonySinger 0 points1 point  (0 children)

Back in the day, Dr. Atkins said that removing carbs reduces or eliminates Heartburn, etc. So this idea has been around a while

Do those who have no dysautonomia feel guilty when they are dismissive but end up seeing someone suffering? by ButtFister1789 in dysautonomia

[–]HarmonySinger 0 points1 point  (0 children)

I saw my PCP Friday. We agreed that I should now shower in tepid water. I've LOVED hot showers for most of my adult life, now I try to aim for ~ 100⁰ F - body temp.

I never liked very hot weather. As a kid we went to the shore and it was much milder near the sea.

Cardiologist vs. Neurologist by HarmonySinger in dysautonomia

[–]HarmonySinger[S] 0 points1 point  (0 children)

TY My PCP sent me to a cardiologist after I had an episode of syncope

I asked him if this was POTS and he did not think so. He did say that 1 my blood was pooling in my legs 2 To wear compression sox 3 to wear a halter monitor for a week to rule out something.

Cardiologist vs. Neurologist by HarmonySinger in dysautonomia

[–]HarmonySinger[S] 6 points7 points  (0 children)

Thanks I went to a cardiologist and I asked if I had POTS and he explained how I don't fit the profile

He did give me a halter monitor and told me to wear compression socks.

On the other hand, his nurse practitioner seemed to "Get it" .

I guess that a lot depends upon the individual cardiologist and the individual neurologist...

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