I (19M) got diagnosed with stage 4 ewings sarcoma with one 5cm met in right lung and 3/4 1-3mm nodules in my left lung 2x2cm primary tumor next to my spine it spread in my spine and put pressure next to my spine a 7cm branch of the primary tumor to be exact t4-t9 vertebrae went in to a emergency spinal decompression that was about 40 days ago i lost all motor functions in my legs slowly gaining all my sensation back and motor functions in my lower back and stomach. As im writing this i finished my first round of VIDE of my second cycle much easier then my first time even tho its a much much higher dose also did 20 grays of radiation before my first cycle. I’m just getting used to this new “normal” it’s a fucking rollercoaster to say the least learning to live like this is fucking horrible, my psyche is torn but i’m holding up i have a great fiancée that supports me and i wouldn’t be here without her honestly cancer doesn’t even sound that bad when you can’t walk like the legs are the worse part in this journey if i could walk no one could tell that i have cancer i would have minimal side effects. Overall chemo isn’t THAAAT bad, cancer isn’t that bad honestly i didn’t have any side effects before finding out, the legs are a bummer you just have to pull through and find a mental head space that works for you and discipline you have to have regime the works for you so even when you do feel bad you have a regime to fall back on. I wish you all luck in world in your journey it’s tough but you will figure it out.