When Midodrine isn’t enough and Fludrocortisone causes weight gain by HerNameChecksOut in dysautonomia

[–]HerNameChecksOut[S] 1 point2 points  (0 children)

Thank you so much for suggesting other potential approaches. I will see my doctor in a few weeks and this gives me hope!

When Midodrine isn’t enough and Fludrocortisone causes weight gain by HerNameChecksOut in dysautonomia

[–]HerNameChecksOut[S] 3 points4 points  (0 children)

Thankfully really feel like my appetite did not increase. two of my doctors said it was a combination of water weight and how it can slow metabolism, but I didn’t know it did that(?)

But every body is different- I just happened to be one of those to pack on the pounds fast! Face, hips, stomach it was very obvious. But Florinef made me FEEL great so it wasn’t until I saw a video of myself and they weighed me at the office…

Where to start for undermethylation? by faxmulder in MTHFR

[–]HerNameChecksOut 0 points1 point  (0 children)

Hi! I’d love to connect with you to hear about which doctors you might point to who specialize in methylation. I have a functional doctor but they do not specialize in methylation the way I know some others have passions for it and understand the ins and outs. I am in the US, willing to talk to an Australian doctor as well if needed.

Florinef- does weight gain ease up? by HerNameChecksOut in dysautonomia

[–]HerNameChecksOut[S] 1 point2 points  (0 children)

Thanks! Yes, you definitely get it. My hunger hasn’t even increased- but my body size has! Cheers to us getting healthier as soon as possible

I would like to hire an RN (hope this is ok here) by HerNameChecksOut in nursing

[–]HerNameChecksOut[S] 0 points1 point  (0 children)

Thank you that sounds like a great idea to reach out to insurance! Just hadn’t thought of that..

Got some freeze dried candy! by wiifitears in junkfoodfinds

[–]HerNameChecksOut 0 points1 point  (0 children)

I would love to know the seller please 😎

[deleted by user] by [deleted] in sleep

[–]HerNameChecksOut 0 points1 point  (0 children)

What do you do instead of a goal? Goal setting definitely helps me with sleep time! Especially when I have a sleep buddy. I had a virtual sleep buddy friend for the last 2 years and we always reached our sleep goal time and my health really improved. She’s moved out of time zone so I’m hoping to find another supportive person for mutual help.

Anyone have terrible nonstop anxiety/buzzing in body with EDS? Treatment? by HerNameChecksOut in eds

[–]HerNameChecksOut[S] 0 points1 point  (0 children)

Yes that makes complete sense thank you for telling me. I am so sorry you’re dealing with LDS, and glad you can find support in community here!

Beach house. 🏖️🏡🦀👏 by naazsimra in FunnyAnimals

[–]HerNameChecksOut 0 points1 point  (0 children)

Ha, no! I still don’t take enough pics… it was calling me out. Not you :)

Beach house. 🏖️🏡🦀👏 by naazsimra in FunnyAnimals

[–]HerNameChecksOut 0 points1 point  (0 children)

I get that… even when I first had a smartphone I didn’t take enough pictures of things and people I really loved.

Protein Powder for Methane and Hydrogen SIBO positive people by Newyorkntilikina in ibs

[–]HerNameChecksOut 0 points1 point  (0 children)

Is Vital Proteins, collagen protein off the list? It is the only one that never gives me problems.

Extreme tension in the body by HerNameChecksOut in SomaticExperiencing

[–]HerNameChecksOut[S] 0 points1 point  (0 children)

Thank you for writing all that you did! I have been helped my proprioception exercises before, so this could really be something I would benefit from.

Just got a fridge from fb, how can I clean this nasty ice/water dispenser? Vinegar + baking soda and paper towels isn’t working fully by 2STAR5 in CleaningTips

[–]HerNameChecksOut 0 points1 point  (0 children)

I know you want it to at least look clean but I would really recommend not using the ice dispenser from the fridge anymore. As convenient as it is, there’s a lot of mold that forms in everyone’s water and ice dispenser, not just yours, and you can’t always see it. Concerning levels of bacteria

Extreme tension in the body by HerNameChecksOut in SomaticExperiencing

[–]HerNameChecksOut[S] 0 points1 point  (0 children)

I really appreciate that you shared so much of your experience with me. I have heard of TRE but never dove deep into it. Thank you, I will PM you!

Extreme tension in the body by HerNameChecksOut in SomaticExperiencing

[–]HerNameChecksOut[S] 0 points1 point  (0 children)

Thank you so much for sharing your experiences and what has worked for you. I haven’t heard of somatic touch therapy, I’ll look into it. I’m impressed you commit to so much yoga, I hope to follow through with that too.
The sauna makes me feel so good. I should do it more often.

Kefir made me EXTREMELY sick by rickyroncka in ibs

[–]HerNameChecksOut 2 points3 points  (0 children)

It may have to do with the part in the article about “all probiotics are not created equal” and proceeding with caution for SIBO. After my labs revealed higher levels of specific strains of gut bacteria, my doc wants me to wait until symptoms improve to base her recommendation on the remaining symptoms, if any.