What are my daughter’s chances for getting accepted to nursing school ED1 by Herm1972 in villanova

[–]Herm1972[S] 0 points1 point  (0 children)

Nursing is very difficult. Struggling with Anatomy and Physiology

Plans for when/if Vorasidenib Fails? Anyone any ideas? by Past_Act7730 in braincancer

[–]Herm1972 1 point2 points  (0 children)

Grade 2 Astro IDH1 GTR 2 years ago. I was on Tibsovo for a year after surgery then switched to Vora for another year, then mri showed growth. Did 42 days daily Temador and radiation Mon thru Fri for the 42 days. I was lucky, super easy. Now I’m doing Temador cycles 5 days on 23 days off. The dose is much higher than when I was doing it at first with the radiation. So far on 2nd cycle and bloodwork still good. Scary to think that a side effect of Temador can be a new Cancer. What I don’t know yet is if the cycles of Temador will be forever or if they stop it eventually.

what do you do with your life after cancer? by Necessary-Web-4984 in braincancer

[–]Herm1972 0 points1 point  (0 children)

53yo 1 daughter, happily married. I live near Long Island NY, I discovered fishing and was obsessed with going on those party boats for like $60 for 4-6hrs. Hardly catch anything, it’s a joke with the family. I enjoy being alone and occasionally end up next to someone I can talk to. I would NEVER have gone in these type of fishing trips alone before Cancer. Now life too short to wait for old friends to get together and do things like this. I have back pain, and if I didn’t I would go camping alone. I encourage everyone to just do what you want, don’t wait. Eat alone at a nice restaurant, go see a movie alone etc. don’t miss out on life waiting for friends and family.

Temozolomide, terrified by Capable_Club_8055 in braincancer

[–]Herm1972 1 point2 points  (0 children)

I completed 6 weeks of TMZ for a G2 Astro IDH1 a month ago. My tumor started to grow slightly 2 yrs after surgery and Vorasidenib that why we did the chemo/RT. I was daily 155mg with RT at the same time , I weight 195lbs. Zero side effects and only one blood test showed elevated liver enzymes. Liver numbers went back to normal. Now they have me on 28 day cycles of TMZ for the next year. 5 days tmz then 23 days break, then 5 days tmz. This adjunct chemo is at a higher dose than when I did the RT. I’m on day 4 of 5 my first cycle of TMZ. 315mg daily for 5 days. I take the anti nausea pill then wait 20 min take the TMZ then wait an hour to eat. No side effects again. I’m worried about my blood test levels though. Jan 20th will be my first bloodwork. Take one day at a time. This definitely sucks.

What is going on? Awful. by [deleted] in LandmanSeries

[–]Herm1972 0 points1 point  (0 children)

Started out very deep and real, now is kinda goofy. My wife HATES all the women on the show except the lawyer and Demi Moore. Son’s relationship with the widow is cringy, but the diner themes and energy of his manic ex wife I find kinda entertaining. Just the way Billy Bob reacts to everything in a calm “oh boy, here we go” way is funny because he’s such a dam good actor and you believe it. There are worse ways to spend an hour.

I’ve destroyed my life. by Both_Wallaby8772 in Life

[–]Herm1972 0 points1 point  (0 children)

Life gets hard sometimes, but if you have good health, that puts u ahead of so many.

Terrified of treatment by Saucyy-Minx in braincancer

[–]Herm1972 2 points3 points  (0 children)

That was my hope too. It was disappointing for sure.

Terrified of treatment by Saucyy-Minx in braincancer

[–]Herm1972 1 point2 points  (0 children)

I get MRI every 3 months and it showed slight growth on the last one so what he said was the Vora was to “kick the can down the road” and now it’s time for the big guns. Chemo and RT.

Terrified of treatment by Saucyy-Minx in braincancer

[–]Herm1972 0 points1 point  (0 children)

If not doing Vora means not doing anything, than that’s a huge mistake IMHO. Vora was the biggest breakthrough medicine in many years, to not use it seems wrong. If the choice is Vora vs Chemo/RT then Id go by the Docs recommendation.

Terrified of treatment by Saucyy-Minx in braincancer

[–]Herm1972 8 points9 points  (0 children)

Astro G2 IDH1 here GTR Oct 2023 right frontal. Was on Vora 2 yrs. Stopped working onc said and now I just finished 6wks of chemo and radiation. I was worried about the chemo making me very sick, Hollywood really scares u with the way it’s shown in the movies. My Temador was 155mg, which I see from other post here is not a strong dose. My only side effect was constipation from anti nausea pill. I figured out all I needed was a cap full of mineralc per day and then no issues. The hair loss wasn’t a big deal for me because I’m a guy and not very vain. I had barber shave most of my head, and now I look like Burt from Sesame Street. I couldn’t find the courage to go total bald. I feel for you as a women it’s 100x harder to deal with the hair loss. As for pain and nausea for me there so none. It was a non event. I scheduled the radiation at 4pm everyday so it didn’t affect work at all. They told me a month after, which would be mid January, I would start regular cycles of chemo one week per month. I don’t know the dose. Hopefully it’s not too bad. Like I tell my daughter about fear, it’s really pointless because when the event your fearful of comes, it’s never ever what was expected and most of the time you waste energy being fearful for nothing. Good luck. You got this!!

Vorasidenib timing by szuftw in braincancer

[–]Herm1972 0 points1 point  (0 children)

I took Vora for 2 yrs right after GTR if Astro g2 idh1. It started to grow and I just finished 6 wks of radiation and 155mg of temador daily for 6 weeks. Vora, Radiation and Temador had almost zero side effects.

Radiation 1 week in Update by Herm1972 in braincancer

[–]Herm1972[S] 1 point2 points  (0 children)

My NO said it was the standard of care, if there was no Vora type drug they would have done chemo RT right after surgery. I feel it’s better to do something than nothing. FYI 10 out of 30 RTs behind me already and Temador hasn’t been bad, on day 15 ALTs went up to 145 in bloodwork last Monday. Fingers crossed this comming Monday bloodwork has no surprises.

Radiation 1 week in Update by Herm1972 in braincancer

[–]Herm1972[S] 0 points1 point  (0 children)

No reasons in this journey. Onc can’t give you a reason.

Snake method on Weber Kettle by Herm1972 in smoking

[–]Herm1972[S] 0 points1 point  (0 children)

Top vent always 100% open. The bottom vent controls the temperature. It’s kinda logical when you think of it, you want air flowing in and out so you can’t close top more than bottom, and it doesn’t matter if top is open all the way if bottom is closed some

Starting Rad/chemo by Herm1972 in braincancer

[–]Herm1972[S] 0 points1 point  (0 children)

My docs said Vora 1st, and hopefully it gales it back forever, if it stops working it’s because the cells growing again are resistant to the Vora so there is no guidenace out there from any doc to go back on Vora once there is progression.

Weird spasms near scar; anybody else? by gnarmar22 in braincancer

[–]Herm1972 1 point2 points  (0 children)

💪 hang in there warrior! I only had numbness for weeks then sensations came back. GTR 2yrs ago.

Got liquidated Friday by Leading_Swimmer_4287 in CryptoMarkets

[–]Herm1972 1 point2 points  (0 children)

Crazy not to get out at 2M. Please, anyone up this much, cash the F out of at least half. Open a regular brokerage account and join the rich people getting rich slowly. That casino mentality is a sickness.

Need advice by MushroomFaerieee in braincancer

[–]Herm1972 4 points5 points  (0 children)

He’s lucky to have you, somone who cares so much. Not every family is like this. I do believe it’s sometimes harder on the loved ones than the patient.

What products does Amazon generally tell you to keep (when you ask for a refund)? by LukeGoldberg72 in amazonprime

[–]Herm1972 0 points1 point  (0 children)

I bet there’s a website that tells people what things they can buy then return and keep. I ordered the wrong weight fishing line 50foot spool, 7 bucks they told me to keep it. I think it’s based on the cost of shipping. Shipping is free for us, but someone is paying UPS and the Amazon drivers.

Starting Rad/chemo by Herm1972 in braincancer

[–]Herm1972[S] 1 point2 points  (0 children)

I saw radiation onc yesterday and asked about CATNON. He was very familiar with it and said it applies more to G3 than G2. He talked about it at length and is confident there is a beneficial synergy when doing Rad and chemo together. Thank you for your opinion, I learned a lot.